Recent Achievements

  • Membership has more than doubled since 1994, so that now 65% of New England families with hemophilia are now members of NEHA.
  • Each year NEHA responds to about 500 requests for information and referral from persons with bleeding disorders, family members, health care professionals and the general public; educational programs are attended by over 500 persons; 15 or more individuals receive emergency financial assistance; and the NEHA News is mailed to over 850 households quarterly.
  • A satellite office was opened in Maine for Maine families with bleeding disorders.
  • With the National Hemophilia Foundation, NEHA helped to pass the Ricky Ray Hemophilia Relief Fund Act to compensate persons with hemophilia and HIV/AIDS and acknowledge the tragedy of HIV infection in this community and the failure of government oversight.
  • NEHA benefits from collaborative relationships with the eight Hemophilia Treatment Centers across New England.
  • A committed and active group of over 70 volunteers help with programs, newsletter, fundraising and office help.
Main NEHA Event


For additional information visit:
National Hemophilia Foundation

http://www.hemophilia.org/home.htm

World Federation of Hemophilia
http://www.wfh.org
FDA’s Blood Products Hot Line
http://www.fda.gov/cber/products.htm

© 2005 New England Hemophilia Association