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Recent Achievements
- Membership has more than doubled since 1994, so that now 65% of New England families with hemophilia are now members of NEHA.
- Each year NEHA responds to about 500 requests for information and referral from persons with bleeding disorders, family members, health care professionals and the general public; educational programs are attended by over 500 persons; 15 or more individuals receive emergency financial assistance; and the NEHA News is mailed to over 850 households quarterly.
- A satellite office was opened in Maine for Maine families with bleeding disorders.
- With the National Hemophilia Foundation, NEHA helped to pass the Ricky Ray Hemophilia Relief Fund Act to compensate persons with hemophilia and HIV/AIDS and acknowledge the tragedy of HIV infection in this community and the failure of government oversight.
- NEHA benefits from collaborative relationships with the eight Hemophilia Treatment Centers across New England.
- A committed and active group of over 70 volunteers help with programs, newsletter, fundraising and office help.
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