Title: Advocacy Coordinator

Organization: New England Hemophilia Association

Location: Dedham, Massachusetts

The New England Hemophilia Association seeks a part-time (24 hr/wk) Advocacy Coordinator to manage the planning, coordination and successful implementation of its advocacy activities. He/she serves as the principal conduit for all advocacy event planning and communications.

Background

Founded in 1957, the New England Hemophilia Association (NEHA) is dedicated to improving the quality of life for persons with bleeding disorders and their families through education, support, and advocacy.

Living with a bleeding disorder means living with the steady risk of injury, disability and financial calamity. For a child, it can mean unexplainable pain, physical restrictions, and feeling different from one’s friends; for parents and siblings, constant worry and disruptions from day-to-day activities; for an adult, restricted employment options, financial insecurity, and disruptive bleeding episodes; and for survivors of the tainted blood pools of the 1970s and 1980s, dealing with HIV and hepatitis C infections.

Today, NEHA aims to give these individuals every chance to lead active lives and realize their potential. We do so through education by providing them with the information they require to understand their condition and obtain appropriate medical care. We provide support to the community of affected individuals. And we advocate for their interests with state and regional agencies.

Essential Functions

• Maintains, organizes and coordinates advocacy activities and projects from concept to completion, including tracking and monitoring of all these activities, ensuring they operate smoothly, efficiently, and generate maximum impact and results for the organization and its constituents.
• Coordinates, manages and tracks all legislative activities to ensure advocacy goals are met, regularly updates the NEHA website with legislative and policy activities, including recent testimony and legislative alerts.
• Provides input on advocacy and community building strategies, working closely with the Executive Director, Advocacy Committee Chair(s), committee members, and contracted legislative liaison.
• Provides administrative support to Advocacy Committee to ensure activities and events are successfully carried out and program goals met, including scheduling meetings and recording and tracking results.

Other Related Duties :

• Works alongside Committee Chair(s), co-facilitates various event-related committees, as directed.
• Serves as liaison with volunteer leadership on the development of new events, as well as media, marketing materials, announcements, and photo opportunities.
• Responds to inquiries about legislation and advocacy events, including assisting with media requests as directed.
• Develops and maintains connections with: 1) local, state and national groups that share similar advocacy goals, and 2) regulators, legislative staff and other government personnel.
• Perform other related duties as directed by the Executive Director. 

Requirements:

• Minimum Bachelor’s Degree and two or more years of experience in community planning, public policy, advocacy or political work.
• Knowledge of legislative process.
• Project management, organizational and prioritizing skills; problem solving skills; attention to detail and proven ability to meet goals, ensuring a professional execution of all related advocacy events and programs.
• Ability to maintain confidential information and sensitivity to correct protocol for specific situations and audiences.
• Excellent written and oral communication skills.
• Must be a team player, and have the ability to work with a diverse group of individuals, work in a team environment and be self- motivated.

Availability of position: Immediate opening

If interested, please email letter of interest and resume to info@newenglandhemophilia.org