About Advocacy

Advocacy is a key part of the New England Hemophilia Association’s mission. The Advocacy Committee listed below, which is staffed by NEHA’s Advocacy Coordinator, spearheads our advocacy efforts.

Adv Committee Membership List 2012.doc

 

GOALS

The ultimate goals of NEHA’s advocacy efforts are to:

  • Provide NEHA members with the skills and information they need to successfully advocate on a personal and public level.
  • Ensure affordable access to appropriate providers and effective treatments.
  • Make sure that policies, regulations, laws, and services help people with hemophilia live normal, productive lives.

 

Advocacy is “the act of pleading or arguing in favor of something, such as a cause, idea, or policy.”  There are many types of advocacy, including:

 

Legislative Advocacy: Influencing state and federal lawmakers to pass legislation that supports our goals or to oppose legislation that is harmful to our community. This includes safe product advocacy.

State Agency Advocacy: Working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community.

Insurance Advocacy: Monitoring individual insurance agency and the state’s Department of Insurance practices that affect the bleeding disorders community.

Personal Advocacy: Addressing school and workplace issues facing our families, individuals, and children.

 

YOU CAN BE AN EFFECTIVE ADVOCATE!

  • Communicate with decision makers via letters, email, telephone calls, and personal visits.
  • Enlist the local media to tell your story and write articles/editorials supporting our cause.
  • Create coalitions to work on behalf of our cause.
  • Learn more about the issues facing our community. 
  • Sign up to be a part of our Advocacy Alert Network.

 

For more information, contact Laura Salomons at lsalomons@newenglandhemophilia.org.

You can also follow NEHA Advocacy on Facebook and Twitter.