The ultimate goals of NEHA’s advocacy efforts are to:
- Provide NEHA members with the skills and information they need to successfully advocate on a personal and public level.
- Ensure affordable access to appropriate providers and effective treatments.
- Make sure that policies, regulations, laws, and services help people with hemophilia live normal, productive lives.
Advocacy is “the act of pleading or arguing in favor of something, such as a cause, idea, or policy.” There are many types of advocacy, including:
Legislative Advocacy: Influencing state and federal lawmakers to pass legislation that supports our goals or to oppose legislation that is harmful to our community. This includes safe product advocacy.
State Agency Advocacy: Working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community.
Insurance Advocacy: Monitoring individual insurance agency and the state’s Department of Insurance practices that affect the bleeding disorders community.
Personal Advocacy: Addressing school and workplace issues facing our families, individuals, and children.
YOU CAN BE AN EFFECTIVE ADVOCATE!
- Communicate with decision makers via letters, email, telephone calls, and personal visits.
- Enlist the local media to tell your story and write articles/editorials supporting our cause.
- Create coalitions to work on behalf of our cause.
- Learn more about the issues facing our community.
- Sign up to be a part of our Advocacy Alert Network.
For more information, contact Laura Salomons at firstname.lastname@example.org.
You can also follow NEHA Advocacy on Facebook and Twitter.