Consumer Medical Symposium

To recognize March as Bleeding Disorders Awareness Month we are proud to host our 3rd Annual Consumer Medical Symposium in Portland, Maine on Saturday, March 9, 2019. This unique event offers consumers a program focused on the possible breakthrough treatments for bleeding disorders, to understand current and future insurance barriers, and to process the psychological impact of change. Information will be presented about hemophilia, von Willebrand disease (vWD), and other rare bleeding disorders.


Our keynote speaker is Dr. Steven Pipe, Chair of the National Hemophilia Foundationís Medical and Scientific Advisory Council (MASAC). This year, we are offering an adult, teen and youth track. In addition, childcare will be provided. Please note that registration will close on Friday, February 9th.



Frequently Asked Questions:


Q. Has the Medical Symposium replaced SpringFest?


Yes. Based on the community response to a needs assessment, NEHA altered their spring event to be medically focused event to provide community members an opportunity to learn about the emerging therapies and shifting landscape.


Q. How much does it cost?


Registration is free for NEHA members, and only $10 a person for any non-member. Click here to become a 2019 member. Please note, if you are registered but can no longer attend, please notify us immediately. If a cancellation occurs within 72 hours of the event, you will be charged with a $30 fee.


Q. Does NEHA offer financial assistance?


Yes! If you are need of financial assistance, we can with help travel costs to and from the conference through our $100 for 100 miles program. A $100 lodging subsidy can be offered to anyone traveling more than 100 miles roundtrip to Portland. You must reserve and pay for your hotel room(s), and then provide NEHA with a receipt and proof of the 100 miles driven. A check for $100 will be mailed out after the event.


Q. Will there be childcare or a young track?


Yes, there will be a teen, youth, and childcare track at this event.


Q. Do you have a room block?


Yes, we have a room block at the Westin Portland Harborview for Friday, March 9th and Saturday, March 10th for $139 a night. To reserve your room, click here.


Q. How do I learn more about NEHA?


Go to www.newenglandhemophilia.org or call us at 781-326-7645.