At the national level, NEHA supports: (1) the maintenance of the Affordable Care Act provisions that allow individuals with high-cost conditions, such as hemophilia, access to adequate and affordable coverage; and (2) maintenance of funding for the hemophilia programs at the Centers for Disease Control (CDC) and Health Resources and Services Administration (HRSA).
Each year NEHA members travel to Washington, DC as part of the National Hemophilia Foundation's (NHF) Washington Days event to meet with their federal lawmakers about national issues of concern to the bleeding disorders community. You can learn more about Washington Days here.
To learn more about national issues related to bleeding disorders, please visit the Advocacy section of NHF's web site.
