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News & Calendar

Newsletters

 

NewsletterNEHA News is a regular publication of the New England Hemophilia Association.  It contains a variety of topics of interest including Advocacy updates, personal stories, announcements, educational articles, research studies, volunteer recognition, and more. 

Click below to download a newsletter as a printable Adobe Acrobat (PDF) document.  Reprints are permitted provided credit is given to the New England Hemophilia Association.  Approximately 4-5 issues are kept on the site before being rotated off as new issues become available.

 

Click on the links below to read our most recent issues.

 

Autumn 2011 Issue.pdf
Fall 2010 Issue
Spring 2010 Issue
Spring 2009 Issue
Fall 2008 Issue
Summer 2008 Issue
Spring 2008 Issue
Winter 2008 Issue

 

As part of NEHA's efforts to GO GREEN, we have moved to an electronic version of the newsletter.  An email announcing each issue would be sent to all registered NEHA members.  While limited hardcopies will be available, our intentions are to reduce costs and resources used by posting the NEHA News to our website, and by sending out a .pdf version that can be read through email.   To assure you receive notice of each new issue, please share your email address with the NEHA office at info@newenglandhemophilia.org.

Latest News

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Family Camp Pre-Registration is NOW OPEN!

If your family would like to come to NEHA's Family Camp this summer on July 25-28. 2012, it's now time to pre-register for consideration.  The forms were recently mailed to all members and are also available HERE.  Deadline for pre-registration is March 16, 2012.

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Change in NEHA Golf Tournament Date:

Due to an internal conflict, NEHA is moving the NEHA Golf Tournament to September 17th, 2012 (instead of the original date of Sept. 10).  Save-The-Date!

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Inhibitor Family Camp:

Held on April 13-15, 2012 at the Painted Turtle Camp in Lake Hughes, California.  This special weeekend of education, support and fun is designed for children 6-19 living with an active inhibitor and heir families.  There are no fees associated with attending Camp.  For more information, visit www.inhibitorfamilycamp.org, or call toll free 877-749-2437.

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SpringFest Highlights:

NEHA is excited to announce 2 outstanding guest speakers that are scheduled to attend our next SpringFest event on April 28th, 2012 in Westborough, MA.  The first is Val Bias, CEO of the National Hemophilia Foundation, and the second is Ellis Neufeld, MD, PhD who will join us from the Boston Hemophilia Center.  Registrations will open soon, so please plan to attend SpringFest 2012 on April 28th!

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Couples Weekend - Cape Cod:

Save-the-Date:  NEHA is planning another Couples Retreat in cooporation with Inalex Communication.  Tentative date is May 19-20, 2012 at the Cape Codder Hotel in Hyannis.  Registration will open online in mid-February.

 Upcoming Events

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March 7-9, 2012

Washington Days, Crystal Gateway Marriott, Washington DC

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March 12, 2012

NEHA Board of Directors Meeting,  Waltham, MA

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April 28, 2012

SpringFest, Doubletree Westborough/ Boston

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May 14, 2012

NEHA Board of Directors Meeting, Waltham, MA

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May 19th-20th, 2012 (tentative date)

Couples Retreat ,Cape Cod, MA

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June 2, 2012

Hemophilia Walkathon, Bird Park, Walpole, MA

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July 24-28th, 2012

Geneva Point Center, Moultonborough, NH

calendar September 10, 2012

NEHA Board of Directors Meeting, Waltham, MA

 
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September 15-16th, 2012

Youth Leading Edge Program, Ages 16-24, Location TBD (Pat Torrey facilitated)

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September 17, 2012

NEHA Golf Tournament and Auction, Boylston, MA

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November 3, 2012

Fall Fest, Sheraton Hotel, Springfield, MA

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November 7-10, 2012

NHF Annual Meeting and Conference, Orlando, FL

 

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December 2, 2012

NEHA Holiday Party, Village Club, Needham, MA