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METHOD:PUBLISH
CALSCALE:GREGORIAN
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X-ORIGINAL-URL:https://www.newenglandhemophilia.org/
X-WR-CALNAME:New England Hemophilia Association
X-WR-CALDESC:New England Hemophilia Association
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
X-MS-OLK-FORCEINSPECTOROPEN:TRUE
BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-6217b2f7e4634fa665d31d3b4df81b56@newenglandhemophilia.org
DTSTART:20241109T140000Z
DTEND:20241110T173000Z
DTSTAMP:20231117T173000Z
CREATED:20231117
LAST-MODIFIED:20241112
PRIORITY:5
SEQUENCE:57
TRANSP:OPAQUE
SUMMARY:FallFest
DESCRIPTION:[vc_row][vc_column width=”1/3″][vc_btn title=”FallFest Survey” color=”juicy-pink” align=”center” button_block=”true” link=”url:https%3A%2F%2Fforms.gle%2Fg1rWqYBjAF1BYxbU8||target:%20_blank|”][/vc_column][vc_column width=”1/3″][vc_btn title=”Travel Assistance” color=”juicy-pink” align=”center” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fresources%2Ffinancial-assistance%2F100-for-100-miles%2F||target:%20_blank|”][/vc_column][vc_column width=”1/3″][vc_btn title=”NEHA Needs Assessment” color=”juicy-pink” align=”center” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fneeds-assessment%2F||target:%20_blank|”][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_btn title=”Become a 2025 Member” color=”juicy-pink” align=”center” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fsupport%2Fbecome-a-member%2F||target:%20_blank|”][/vc_column][vc_column width=”1/3″][vc_btn title=”2025 Events” color=”juicy-pink” align=”center” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fcalendar%2F||target:%20_blank|”][/vc_column][vc_column width=”1/3″][vc_btn title=”Volunteer With NEHA” color=”juicy-pink” align=”center” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fget-involved%2Fvolunteer-opportunities%2F||target:%20_blank|”][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][/vc_column][/vc_row][vc_row][vc_column][vc_column_text]\nEvery year, we host our annual meeting, called FallFest. At FallFest, there is wide-range of educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and childcare (0–5 years old). \n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_column_text]\nThis year, FallFest was held from Saturday, November 9 to Sunday, November 10 at the Sheraton Springfield Monarch Place ( https://www.marriott.com/en-us/hotels/bdlsm-sheraton-springfield-monarch-place-hotel/ ) in Springfield, MA. \nWatch this video to learn more about FallFest.\n[/vc_column_text][/vc_column][vc_column width=”1/2″][vc_video link=”https://youtu.be/EySOF4YytVQ” align=”center”][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”agenda”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nAgenda Overview \n\nFriday, November 8 (Pre-Conference Activities)\n\n12 PM: NEBDAC Advocacy Stakeholder Meeting (invitation only)\n6 PM: Membership and Welcome Reception (optional)\n\nAll are invited to help us kick-off FallFest! Appetizers and a cash bar will be available. All 2024 Silver, Gold, and Platinum NEHA Members ( https://www.newenglandhemophilia.org/support/become-a-member/ ) will be recognized during the reception.\n\n\n\n\nSaturday, November 9\n\n7:30 AM: Registration and breakfast begin.\n9 AM: Programming begins, featuring:\n\nPresentations by HTC medical providers on hot topics for the bleeding disorders community. Have your questions answered by providers in an open forum for patients and caregivers.\nMeet the National Bleeding Disorders Foundation’s (NBDF) new CEO, Phil Gattone, and hear updates from the national organization.\nInteractive keynote session on understanding potential with Pat Torrey from GutMonkey.\nConnect with others experiencing similar circumstances during our rap sessions.\nFamily-friendly activity and dance party on Saturday Evening.\nChildcare, Youth & Teen Tracks featuring fun programming by Believe Limited and other local organizations, along with activities by our Camp Counselors. Attendees will also enjoy a field trip to nearby museums to explore everything from science and art to the whimsical world of Dr. Seuss\nLunch and dinner will be provided on Saturday.\n\n\n\n\nSunday, November 10\n\n8 AM: Breakfast begins.\n9 AM: Programming begins, featuring:\n\nPresentations on transitioning for kids, young adults, and adults. \nNEHA Annual Meeting featuring an organizational update and what to expect in 2025.\nNew England Bleeding Disorders Advocacy Coalition (NEBDAC) presentation and advocacy recap. \n\n\n12:30 PM: FallFest ends.\n\n\nA detailed agenda will be shared with registered attendees. \n\n\n[/vc_column_text][vc_column_text]\n\nAgenda Overview \n\nFriday Welcome Reception: Join us on Friday at 6 PM in the Mahogany Room on Floor 2 for heavy appetizers and a cash bar as we welcome you to FallFest!\nFallFest Begins: Our conference will officially begin on Saturday at 7:30 AM in the foyer on Floor 3 with breakfast and registration.\nFallFest Concludes: Our conference will end on Sunday at 12:30 PM. Please note: room check-out is at noon on Sunday. Please have your belongings packed before coming down to breakfast. The hotel front desk offers free bag storage, or you can keep your bags with you during sessions on Sunday morning.\n\n\n[/vc_column_text][vc_btn title=”Explore Our Digital Program” color=”juicy-pink” align=”center” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fwp-content%2Fuploads%2F2024%2F11%2Ffallfest_program_2024_FINAL_compressed.pdf|||”][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”logistics”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nLogistical Details for Attendees\n\nFirst Time Attendees: We’d like to extend a special welcome to anyone attending FallFest for the first time! NEHA Staff and Volunteers are available to help you make the most of your weekend. Please stop by the tables with balloons on them during meals to meet other new attendees and NEHA Ambassadors.\nWiFi: Please use the network NEHA2024 with password Sanofi2024.\nFood: Meals will be provided by NEHA during the conference. If you indicated you have allergies or a special diet, that has been communicated with the hotel prior to arrival but please check-in with the wait staff if you have any questions.\nField Trip: Children, ages 5-17, will be attending a field trip to the Springfield Museum Square, located 2 blocks from the hotel. Children will be walking to the museums with chaperones. Please bring weather appropriate clothing for the walk.\nChildcare: For those families who have children in childcare, please bring anything your child requires including strollers, special snacks due to allergies and/or dietary restrictions, etc. If you have any questions regarding your child’s needs (i.e., nap time, etc.), please reach out to us ahead of time.\nChildcare Waiver: If you have not done so already, please fill out a waiver for any children under the age of 18. Complete our childcare waiver here.\nAdditional Teen Waiver: In addition to the link above, if you have a child between the ages of 12-17, please also complete GutMonkey’s participation waiver by clicking here.\nSaturday Night Activity: Break out your country western attire for Saturday night’s activity featuring line dancing and other western-themed activities! Think plaid, flannels, boots and hats. Do not bring real or toy weapons.\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”hotel”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nTravel and Accommodations \n\nHotel: We have secured a room block at the Sheraton Springfield Monarch Place Hotel for both Friday and Saturday evening at the rate of $149 per night. Attendees can stay one or both nights. \n\nCommunity Members: click here to reserve your room.\nIndustry Partners and Speakers: click here to reserve your room.\n\nThe last day to get this discounted rate is Wednesday, October 16.\n\n\n\n\nHotel Scholarships: A limited number of hotel scholarships are available to 2024 NEHA Members who would not otherwise be able to afford a hotel room. To request a scholarship, please email Diane at dbruno@nehemophilia.org ( mailto:dbruno@nehemophilia.org ). Requesting a scholarship does not guarantee acceptance. If you receive a hotel scholarship for this event, you are ineligible to also receive travel assistance through our $100 for 100 miles program for this event.\n\nThe last day to request a hotel scholarship is Wednesday, October 16.\n\n\nTravel Assistance: All NEHA 2024 members in need of financial assistance, who traveled more than 100 miles roundtrip to this event, are eligible for our $100 for 100 miles program. Funds for this program are limited. More details will be shared after the event.\n\n\n[/vc_column_text][vc_column_text]\n\nTravel and Accommodations \n\nHotel: Our discounted hotel room block is full, and most hotels in Springfield are sold out. If you still need a hotel room, there are affordable options within driving distance near Hartford’s Bradley International Airport.\nHotel Scholarships: A limited number of hotel scholarships are available to 2024 NEHA Members who would not otherwise be able to afford a hotel room. To request a scholarship, please email Diane at dbruno@nehemophilia.org ( mailto:dbruno@nehemophilia.org ). Requesting a scholarship does not guarantee acceptance. If you receive a hotel scholarship for this event, you are ineligible to also receive travel assistance through our $100 for 100 miles program for this event.\n\nThe deadline to request a hotel scholarship has passed.\n\n\nTravel Assistance: All NEHA 2024 members in need of financial assistance, who traveled more than 100 miles roundtrip to this event, are eligible for our $100 for 100 miles program. Funds for this program are limited. More details will be shared after the event.\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”reg”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nRegistration \n\nThe event is free for any 2024 NEHA member ( https://www.newenglandhemophilia.org/support/become-a-member/ ).\nThe fee for non-members is only $10 per person.\n\nTo become a member, or to request a membership scholarship, please click here.\n\n\n\n\n[/vc_column_text][vc_btn title=”Register Here” color=”juicy-pink” align=”center” link=”url:https%3A%2F%2Fwww.eventbrite.com%2Fe%2Ffallfest-registration-997141736777%3Faff%3Doddtdtcreator||target:%20_blank|”][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”awards”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nAnnual NEHA Awards\nEach year during FallFest, we present awards to leaders in the New England bleeding disorders community who have gone above and beyond and demonstrated commitment to our mission of providing education, support, and advocacy.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column width=”2/3″][vc_column_text]\n\nThe following awards are given: Advocate of the Year, The Matty Vieira Service Award, New Family Engagement Award, The Spirit of Philanthropy Award, Volunteer of the Year Award, Champion of Healthcare Award, BLeader Teen Award.\nThe deadline to make a nomination is Monday, October 7.\n\n[/vc_column_text][vc_btn title=”Nominate A Leader Here” color=”juicy-pink” align=”center” link=”url:https%3A%2F%2Fforms.gle%2FWXaW15GuyMZhEDyb6||target:%20_blank|”][/vc_column][vc_column width=”1/3″][vc_images_carousel images=”11038,11041,11043,11039,11042,11040,11044″ img_size=”full” onclick=”link_no” speed=”3000″ autoplay=”yes” wrap=”yes”][vc_column_text]\n\nOur 2023 Award Recipients\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\n\nHealth and Wellness\n\nPlease do not attend this event if you have tested positive for COVID-19, the flu, RSV, or have cold-like symptoms.\nNEHA strongly recommends that anyone eligible for the COVID-19 vaccine be fully vaccinated prior to attending any event.\nIf you have any questions or concerns regarding these guidelines, or need to cancel your registration due to illness, please contact: info@nehemophilia.org.\n\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nCancellation Policy\nIf you cancel your registration within one week of the event or do not show up for the event, you will be charged a $30 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss: info@nehemophilia.org ( mailto:info@nehemophilia.org ).\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nEvent Sponsors\nWe are thankful to these companies for supporting this event:\n\n[/vc_column_text][vc_column_text]\n\nPresenting Sponsors\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_single_image image=”4344″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/3″][vc_single_image image=”4147″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/3″][vc_single_image image=”7491″ img_size=”medium” alignment=”center”][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][vc_column_text]\n\nChampion Sponsors\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”4310″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/2″][vc_single_image image=”4150″ img_size=”medium” alignment=”center”][/vc_column][/vc_row][vc_row][vc_column width=”1/4″][/vc_column][vc_column width=”1/2″][vc_single_image image=”4148″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/4″][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][vc_column_text]\n\nFamily Activity Sponsor\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][/vc_column][vc_column width=”1/3″][vc_single_image image=”4163″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/3″][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][vc_column_text]\n\nAdvocate Sponsors\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_single_image image=”4372″ img_size=”medium” alignment=”center”][vc_single_image image=”4223″ img_size=”medium” alignment=”center”][vc_single_image image=”11032″ img_size=”medium” alignment=”center”][vc_single_image image=”7605″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/3″][vc_single_image image=”11120″ img_size=”medium” alignment=”center”][vc_single_image image=”9905″ img_size=”medium” alignment=”center”][vc_single_image image=”4164″ img_size=”medium” alignment=”center”][vc_single_image image=”4832″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/3″][vc_single_image image=”9588″ img_size=”medium” alignment=”center”][vc_single_image image=”6280″ img_size=”medium” alignment=”center”][vc_single_image image=”5877″ img_size=”medium” alignment=”center”][vc_single_image image=”5546″ img_size=”medium” alignment=”center”][/vc_column][/vc_row][vc_row][vc_column width=”1/6″][/vc_column][vc_column width=”1/3″][vc_single_image image=”11115″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/3″][vc_single_image image=”4350″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/6″][/vc_column][/vc_row][vc_row][vc_column][vc_column_text]\n\n340B Factor Programs at UConn Health, MaineHealth Bleeding Disorders, Boston Bleeding Disorders Center, New England Hemophilia Center, Massachusetts General Hospital, and Vermont Regional Hemophilia Center\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][/vc_column][/vc_row][vc_row][vc_column width=”1/4″][vc_column_text]\n\nWiFi Sponsor\n\n[/vc_column_text][vc_single_image image=”7491″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/4″][vc_column_text]\n\nSnack Sponsor\n\n[/vc_column_text][vc_single_image image=”4150″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/4″][vc_column_text]\n\nFriend Sponsor\n\n[/vc_column_text][vc_single_image image=”9603″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/4″][vc_column_text]\n\nFriend Sponsor\n\n[/vc_column_text][vc_single_image image=”4159″ img_size=”medium” alignment=”center”][/vc_column][/vc_row]\n
URL:https://www.newenglandhemophilia.org/events/ff24/
LOCATION:One Monarch Place, Springfield, MA 01144
ATTACH;FMTTYPE=image/png:/wp-content/uploads/2023/11/neha_FallFest_header_2024_1164x2200_BORDER-2.png
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