BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-d87d3902e1c4efdc9d79e94c4921bb40@newenglandhemophilia.org DTSTART:20230506T130000Z DTEND:20230506T210000Z DTSTAMP:20231117T163000Z CREATED:20231117 LAST-MODIFIED:20231117 PRIORITY:5 SEQUENCE:0 TRANSP:OPAQUE SUMMARY:Von Willebrand Retreat DESCRIPTION:[vc_row][vc_column][vc_column_text]Our 6th Annual Von Willebrand Retreat was held on Saturday, May 6, at the Providence Marriott Downtown ( https://www.marriott.com/hotels/travel/pvdri-providence-marriott-downtown/ ) in Providence, RI.\nThe educational programming throughout the event focuses solely on Von Willebrand Disease. This goal of this event is to provide community members living with VWD a chance to learn, network, and ask questions in a focused setting.[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nAgenda Overview\n\n8 AM: Registration and exhibit booths open.\n\nBreakfast will begin.\n\n\n9 AM: Programming will begin for adults. Separate programming for youth will run concurrently throughout the day.\n9:30 AM: Keynote Presentation with Dr. Nathan Connell, Associate Director, Boston Hemophilia Center\n11 AM: Educational Sessions\n12 PM: Lunch\n1 PM: Educational Sessions, Rap Sessions, and Family Activity\n5:15 PM: Closing Reception\n\nBefore leaving the retreat, please join us for an informal social event. Appetizers and desserts will be provided. \n\n\n\nSee our full agenda by clicking here ( https://www.newenglandhemophilia.org/wp-content/uploads/2023/05/vWD_Retreat_Agenda_2023_FINAL.pdf ).[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nTravel and Accommodations\n\nParking at the hotel is free.\nWe have secured a room block at the Providence Marriott Downtown ( https://www.marriott.com/en-us/hotels/pvdri-providence-marriott-downtown/overview/ ) in Providence, RI for the nights of Friday, May 5 and/or Saturday, May 6, at the rate of $189 per night, per room.\n\nDuring registration, you will be asked if you would like to book a hotel room.\n\nWe will secure the reservation on your behalf, but you will be responsible for paying the $189 per night upon check-in at the hotel.\nFor questions about hotel rooms, please contact Jodi, NEHA’s Outreach and Engagement Manager, at jweeks@nehemophilia.org ( mailto:jweeks@nehemophilia.org ).\n\n\n\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nRegistration\n\nThis event is free for 2023 NEHA members ( http://www.nehamembership.org ).\nIf you are not a member, the cost is only $10 per attendee. Become a member here ( https://www.newenglandhemophilia.org/get-involved/become-a-member/ ).\n\nRegister Here ( https://www.eventbrite.com/e/von-willebrand-vwd-retreat-registration-529839172227 )\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\n\nHealth and Wellness\n\nPlease do not attend this event if you have tested positive for COVID-19, the flu, RSV, or have cold-like symptoms.\nNEHA strongly recommends that anyone eligible for the COVID-19 vaccine be fully vaccinated prior to attending any event.\nIf you have any questions or concerns regarding these guidelines, or need to cancel your registration due to illness, please contact: info@nehemophilia.org.\n\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nCancellation Policy\nIf you cancel your registration within one week of the event or do not show up for the event, you will be charged a $30 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nEvent Sponsors\nWe are thankful to these companies for supporting this event:[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”4148″ img_size=”medium” alignment=”center”][vc_column_text]\nChampion Sponsor\n[/vc_column_text][/vc_column][vc_column width=”1/2″][vc_single_image image=”4159″ img_size=”medium” alignment=”center”][vc_column_text]\nChampion Sponsor\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_single_image image=”7950″ img_size=”medium” alignment=”center”][vc_column_text]\nAdvocate Sponsor\n[/vc_column_text][vc_single_image image=”4151″ img_size=”medium” alignment=”center”][vc_column_text]\nAdvocate Sponsor\n[/vc_column_text][/vc_column][vc_column width=”1/3″][vc_single_image image=”4147″ img_size=”medium” alignment=”center”][vc_column_text]\nAdvocate Sponsor\n[/vc_column_text][vc_single_image image=”5825″ img_size=”medium” alignment=”center”][vc_column_text]\nAdvocate Sponsor\n[/vc_column_text][/vc_column][vc_column width=”1/3″][vc_single_image image=”4223″ img_size=”medium” alignment=”center”][vc_column_text]\nAdvocate Sponsor\n[/vc_column_text][vc_single_image image=”4350″ img_size=”medium” alignment=”center”][vc_column_text]\nAdvocate Sponsor\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/5″][/vc_column][vc_column width=”1/5″][/vc_column][vc_column width=”1/5″][vc_single_image image=”4790″ img_size=”medium” alignment=”center”][vc_column_text]\nFriend Sponsor\n[/vc_column_text][/vc_column][vc_column width=”1/5″][/vc_column][vc_column width=”1/5″][/vc_column][/vc_row]\n URL:https://www.newenglandhemophilia.org/events/von-willebrand-retreat/ CATEGORIES:Conferences,Programs LOCATION:1 Orms St ATTACH;FMTTYPE=image/jpeg:/wp-content/uploads/2022/11/VWD-2022.jpg END:VEVENT END:VCALENDAR