BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-c8b9abffb45bf79a630fb613dcd23449@newenglandhemophilia.org DTSTART:20200923T230000Z DTEND:20200924T000000Z DTSTAMP:20231117T163100Z CREATED:20231117 LAST-MODIFIED:20231117 PRIORITY:5 SEQUENCE:0 TRANSP:OPAQUE SUMMARY:Educational Webinar: Spotlight on Unaffected Siblings DESCRIPTION:This was the fifteenth event in our Webinar Wednesday Series. Throughout this series, we will be hosting a live webinar or virtual hangout every Wednesday evening at 7 PM about various topics of interest and importance in our community.\n \nAbout This Webinar\nThis webinar was held on Wednesday, September 23 at 7 PM.\nBleeding disorders affect the whole family. Providing education to unaffected siblings is an important part of the continuum of care for families with bleeding disorders. This webinar was intended for the whole family and will offer tools to help attendees feel more empowered and prepared to ensure that each child’s needs are met.\n \nAbout Our Speaker\nRachel Miller Kroouze began advocating for the bleeding disorders community as part of the National Hemophilia Foundation’s National Youth Leadership Institute, and continued as a board member for the NHF. Making a career of being a CoRe Manager was a no-brainer. While Rachel has worked across disease communities, she always comes back to bleeding disorders. Not only because she lives with one, but also because the sense of camaraderie draws her in.\n \nThis presentation was supported by Sanofi Genzyme.\n URL:https://www.newenglandhemophilia.org/events/educational-webinar-spotlight-on-unaffected-siblings/ ATTACH;FMTTYPE=image/jpeg:/wp-content/uploads/2020/09/IMG_0044-X4-1.jpg END:VEVENT END:VCALENDAR