BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-c1ba099b22d65b3903891b885dc686f9@newenglandhemophilia.org DTSTART:20200603T230000Z DTEND:20200604T000000Z DTSTAMP:20231117T163100Z CREATED:20231117 LAST-MODIFIED:20231117 PRIORITY:5 SEQUENCE:0 TRANSP:OPAQUE SUMMARY:Educational Webinar: The Good, The Bad, The Ugly DESCRIPTION:This was the eleventh event in our Webinar Wednesday Series. Throughout this series, we will be hosting a live webinar or virtual hangout every Wednesday evening at 7 PM ET about various topics of interest and importance in our community.\n \nAbout This Webinar\nThis webinar was held on Wednesday, June 3. Here, we heard from different generations of families in the bleeding disorders community. Hearing from older generations and keeping their experiences in the limelight is what ties the bond of our community.\nSharing our stories has a powerful impact as barriers of fear can be broken down. That vulnerability turns into strength for someone else, giving them the courage to share their experience, too. The sharing of stories has a powerful ability to bring people together, help them understand each other’s perspectives, and find common ground. There will be time for Q&A’s at the end of the discussion.\n \nAbout Our Panelists\n\nDiane Bruno, hemophilia mom\nMackenzie Hebert, sibling\nJohn Duddleston, adult living with hemophilia\nLaura Kinson Curtin, adult living with von Willebrnads Disease (vWD)\n\n \nWatch The Webinar Here ( https://youtu.be/fpo1QP1ZTLc )\n URL:https://www.newenglandhemophilia.org/events/educational-webinar-the-good-the-bad-the-ugly/ ATTACH;FMTTYPE=image/jpeg:/wp-content/uploads/2020/05/960x0-1.jpg END:VEVENT END:VCALENDAR