BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-ee0d6c58f0f8345eefda7e85c449b783@newenglandhemophilia.org DTSTART:20240328T220000Z DTEND:20240329T000000Z DTSTAMP:20240228T231900Z CREATED:20240228 LAST-MODIFIED:20260318 PRIORITY:5 SEQUENCE:22 TRANSP:OPAQUE SUMMARY:Educational Dinner: Exploring Gene Therapy for Hemophilia B DESCRIPTION:[vc_row][vc_column][vc_column_text]\nOn Thursday, March 28 we hosted an educational dinner with CSL Behring at the Hilton Garden Inn ( https://www.hilton.com/en/hotels/bgrbagi-hilton-garden-inn-bangor/ ) in Bangor, ME. During the event, attendees learned more about HEMGENIX–the first and only gene therapy that is currently approved for hemophilia B.\nThe speaker was Guy Young, MD. Dr. Young is the Director of the Hemostasis and Thrombosis Center and the Clinical Coagulation Laboratory at Children’s Hospital Los Angeles and a Professor of Pediatrics at the University of Southern California Keck School of Medicine.\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_column_text]\nJoin us on Thursday, March 28 at 6 PM for an educational dinner with CSL Behring at the Hilton Garden Inn ( https://www.hilton.com/en/hotels/bgrbagi-hilton-garden-inn-bangor/ ) in Bangor, ME. Here, you will learn more about HEMGENIX–the first and only gene therapy that is currently approved for hemophilia B.\nAttendees will be treated to dinner, receive resources on gene therapy and gain a deeper understanding from Dr. Guy Young, MD. Dr. Young is the Director of the Hemostasis and Thrombosis Center and the Clinical Coagulation Laboratory at Children’s Hospital Los Angeles and a Professor of Pediatrics at the University of Southern California Keck School of Medicine.\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nAgenda\n\n6:00 PM: Arrive and check-in.\n\nThere is ample, free parking at the hotel.\n\n\n6:15 PM: Dinner is served and the educational presentation begins, followed by an interactive question and answer period.\n\nPlease note: the educational presentation will be geared towards adults, but all ages can attend. Small activities will be provided for children to complete at the table during the presentation.\n\n\n8:00 PM: Event ends.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nRegistration\n\nThis event is free to all 2024 NEHA members.\nThe cost for non-NEHA members is $10 per person. Become a member here.\nPlease register before Wednesday, March 20.\n\n[/vc_column_text][vc_btn title=”Register Here” color=”juicy-pink” align=”center” link=”url:https%3A%2F%2Fwww.eventbrite.com%2Fe%2Feducational-dinner-exploring-gene-therapy-for-hemophilia-b-registration-852629948127%3Faff%3Doddtdtcreator||target:%20_blank|”][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nDisclaimer\nThis event is a paid advertisement and does not constitute an endorsement or recommendation from the New England Hemophilia Association (NEHA). The information presented during this event is provided for your general information only. NEHA does not give medical advice or engage in the practice of medicine. NEHA, under no circumstances, recommends particular treatment options for specific individuals, and, in all cases, recommends that you consult your physician or local treatment center before pursuing any course of treatment.[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nHealth and Wellness\n\nPlease do not attend this event if you have tested positive for COVID-19, the flu, RSV, or have cold-like symptoms.\nNEHA strongly recommends that anyone eligible for the COVID-19 vaccine be fully vaccinated prior to attending any event.\nIf you have any questions or concerns regarding these guidelines, or need to cancel your registration due to illness, please contact: info@nehemophilia.org ( mailto:info@nehemophilia.org ).\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nCancellation Policy\nIf you cancel your registration within one week of the event or do not show up for the event, you will be charged a $30 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss: info@nehemophilia.org ( mailto:info@nehemophilia.org ).[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nEvent Sponsors\nWe are thankful to these companies for supporting this event:[/vc_column_text][vc_single_image image=”4147″ img_size=”medium” alignment=”center”][/vc_column][/vc_row]\n URL:https://www.newenglandhemophilia.org/events/dinner324/ LOCATION:250 Haskell Rd, Bangor ME, 04401 ATTACH;FMTTYPE=image/png:/wp-content/uploads/2024/02/NORTH_educational_dinner_2000X600.png END:VEVENT END:VCALENDAR