BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-ec0387f057705a013c09bc5508249ea7@newenglandhemophilia.org DTSTART:20240417T213000Z DTEND:20240418T000000Z DTSTAMP:20240321T202900Z CREATED:20240321 LAST-MODIFIED:20240418 PRIORITY:5 SEQUENCE:13 TRANSP:OPAQUE SUMMARY:Community Dinner: NH Advocacy Get Together DESCRIPTION:[vc_row][vc_column][vc_column_text]\nOn Wednesday, April 17 at 5:30 PM, New Hampshire families in the bleeding disorders community came together for a dinner at The Common Man Restaurant in Concord to discuss our advocacy efforts in the Granite State!\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_column_text]\nOn Wednesday, April 17 at 5:30 PM, New Hampshire families in the bleeding disorders community are coming together for a dinner at The Common Man Restaurant in Concord to discuss our advocacy efforts in the Granite State in the year ahead as New Hampshire lawmakers consider S.B. 354, legislation that would ban copay accumulator adjusters.\n\nDinner will be held at The Common Man Restaurant in Concord and will begin at 5:30 PM.\nAfter dinner, we will have an informal conversation about some of the easy and quick, yet effective ways you can make a difference in our advocacy efforts–whether that is by emailing your lawmaker, sharing your story on social media, or something else.\nDinner will be provided courtesy of NEHA.\n\n[/vc_column_text][vc_column_text]\nIn March, Governor Chris Sununu signed a proclamation ( https://www.newenglandhemophilia.org/wp-content/uploads/2023/03/Bleeding-Disorders-Awareness-Month-Proclamation-2023.pdf ) to recognize March as Bleeding Disorders Awareness Month!\nOn Thursday, March 16, New Hampshire patients with bleeding disorders and their families gathered to celebrate Bleeding Disorders Awareness Month at the New Hampshire State House. This was followed by dinner at the New Hampshire Pizza Company, courtesy of NEHA and NEBDAC.\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nCommunity Driven Program\n\nThis is a community driven program being coordinated by NEBDAC State Leaders for New Hampshire: Mary & Scott Fitzpatrick and Susi von Oettingen.\nCommunity-driven programs are designed by community members with support from NEHA. The goal of this event is to provide a space where families in New Hampshire can connect with each other and discuss local advocacy efforts for the year ahead in an informal, social setting. Learn more about community-driven programs.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nRegistration\n\nThis event is free to all 2024 NEHA members.\nThe cost for non-NEHA members is $10 per person. Become a member here ( https://www.newenglandhemophilia.org/support/become-a-member/ ).\n\n[/vc_column_text][vc_btn title=”Register Here” color=”juicy-pink” align=”center” link=”url:https%3A%2F%2Fwww.eventbrite.com%2Fe%2Fcommunity-dinner-nh-advocacy-get-together-registration-870681540927%3Faff%3Doddtdtcreator||target:%20_blank|”][/vc_column][/vc_row]\n URL:https://www.newenglandhemophilia.org/events/nh24/ LOCATION:25 Water St ATTACH;FMTTYPE=image/jpeg:/wp-content/uploads/2024/03/433542275_828314846004732_2035893160643948906_n.jpg END:VEVENT END:VCALENDAR