BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-7d5c5d752a36bf2c89c4e8a2467aad13@newenglandhemophilia.org DTSTART:20250315T130000Z DTEND:20250316T153000Z DTSTAMP:20241017T034700Z CREATED:20241016 LAST-MODIFIED:20250317 PRIORITY:5 SEQUENCE:86 TRANSP:OPAQUE SUMMARY:Consumer Medical Symposium DESCRIPTION:[vc_row][vc_column width=”1/4″][vc_btn title=”Program” color=”juicy-pink” align=”center” css=”” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fwp-content%2Fuploads%2F2025%2F03%2FCMS_program_2025_FINAL_compressed-1.pdf|target:_blank”][/vc_column][vc_column width=”1/4″][vc_btn title=”Speaker Bios” color=”juicy-pink” align=”center” button_block=”true” link=”url:https%3A%2F%2Fdocs.google.com%2Fdocument%2Fd%2F1jFQIGAZZ6JCkUR2vXVfvOmILTYfi0L1Ly8MSofyXl5w%2Fedit%3Fusp%3Dsharing||target:%20_blank|”][/vc_column][vc_column width=”1/4″][vc_btn title=”Glossary” color=”juicy-pink” align=”center” css=”” button_block=”true” link=”url:https%3A%2F%2Fdocs.google.com%2Fdocument%2Fd%2F1f47ebE_SJnNVGcGHtZXD0ehnuEMFrSRJHrZASPdUeJI%2Fedit%3Fusp%3Dsharing|target:_blank”][/vc_column][vc_column width=”1/4″][vc_btn title=”$100 for 100 Miles” color=”juicy-pink” align=”center” css=”” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fresources%2Ffinancial-assistance%2F100-for-100-miles%2F|target:_blank”][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column width=”1/4″][vc_btn title=”Registration” color=”juicy-pink” align=”center” button_block=”true” link=”url:%23register|||”][/vc_column][vc_column width=”1/4″][/vc_column][vc_column width=”1/4″][vc_btn title=”Agenda” color=”juicy-pink” align=”center” css=”” button_block=”true” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fwp-content%2Fuploads%2F2025%2F03%2F2025_FinalAgenda_Consumer-Medical-.pdf|target:_blank”][/vc_column][vc_column width=”1/4″][/vc_column][/vc_row][vc_row][vc_column][vc_column_text css=””]\nOur Consumer Medical Symposium was held on Saturday, March 15 and Sunday, March 16 at the Mystic Marriott Hotel & Spa in Groton, CT. \nThe goal of this event is to help you better understand what current and potential medical advancements are available to treat bleeding disorders and what they may mean for you and your family. \n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”agenda”][vc_column][vc_empty_space height=”18px”][vc_column_text css=””]\nProgramming Overview\n\nChildcare is available for infants to age 3.\nChildren ages 4-12 and Teens ages 13-18 will enjoy fun and interactive program, followed by a field trip to the Mystic Aquarium.\nAdults will have their own educational sessions all-day Saturday and Sunday morning, including keynote presentations, breakout sessions, and roundtable discussions.\n\nSessions will be led by medical providers from Hemophilia Treatment Centers (HTCs) in our region along with advocacy professionals, and other dynamic speakers.\nInformation will be presented about hemophilia, VWD, inhibitors, and other rare bleeding disorders.\nParticipate in roundtable discussions with our industry partners to learn about treatment options available and potentially in the future.\nSpecific topic will include: overview of current and emerging therapies, insurance and the barriers and trends consumers should be aware of to access treatment, the psychosocial and emotional implications of changing products, and more.\n\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text css=””]\nAgenda Overview \n\nFriday, March 14 (optional, unofficial kick-off to Consumer Medical Symposium).\n\n6 PM: Welcome Reception – Join us for dinner for the entire family and a cash bar to kick-off the weekend. The reception is sponsored by Sanofi and will include an interactive presentation where you will learn what balloons and Factor VIII levels have in common.\n\n\nSaturday, March 15 (breakfast, lunch and dinner will be provided). \n\n8 AM: Registration & Breakfast.\n9 AM: Programming Begins. \n6 PM: Dinner & Family-Friendly Activity featuring music bingo and an optional documentary screening about the journey of people living with bleeding disorders. \n\n\nSunday, March 16 (breakfast will be provided).\n\n8 AM: Breakfast.\n9 AM: Programming Begins.\n11:30 AM: Consumer Medical Symposium Ends.\n\n\n\nA full agenda will be shared with registered attendees before the event begins.[/vc_column_text][vc_btn title=”See Our Agenda” color=”juicy-pink” align=”center” css=”” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fwp-content%2Fuploads%2F2025%2F03%2F2025_FinalAgenda_Consumer-Medical-.pdf|target:_blank”][vc_btn title=”View The Program” color=”juicy-pink” align=”center” css=”” link=”url:https%3A%2F%2Fwww.newenglandhemophilia.org%2Fwp-content%2Fuploads%2F2025%2F03%2FCMS_program_2025_FINAL_compressed-1.pdf|target:_blank”][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”hotel”][vc_column][vc_empty_space height=”18px”][vc_column_text css=””]\nTravel and Accommodations\n\nHotel: We have secured a room block at the hotel for both Friday and Saturday evening at the rate of $179 per night. Attendees can stay for one or both nights. \n\nCommunity Members: click here to reserve your room.\nIndustry Partners and Speakers: click here to reserve your room.\nThe last day to get this discounted rate is Friday, February 14.\n\n\nHotel Scholarships: A limited number of hotel scholarships are available to 2025 NEHA Members who would not otherwise be able to afford a hotel room.\n\nIf you receive a hotel scholarship for this event, you are ineligible to also receive travel assistance through our $100 for 100 miles program for this event.\nTo request a scholarship, please email Diane at dbruno@nehemophilia.org. Requesting a scholarship does not guarantee acceptance.\n\n\nTravel Assistance: NEHA 2025 members in need of financial assistance, who traveled more than 100 miles roundtrip to this event, are eligible for our $100 for 100 miles program. Funds for this program are limited. More details will be shared after the event.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes” el_id=”register”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nRegistration\n\nThe event is free for any 2025 NEHA member ( https://www.newenglandhemophilia.org/support/become-a-member/ ).\nThe fee for non-members is only $10 per person.\n\nTo become a member, or to request a membership scholarship, please click here.\n\n\n\n[/vc_column_text][vc_btn title=”Register Here” color=”juicy-pink” align=”center” link=”url:https%3A%2F%2Fwww.eventbrite.com%2Fe%2Fconsumer-medical-symposium-registration-1107100039019%3Faff%3Doddtdtcreator||target:%20_blank|”][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\n\nCancellation Policy\n\nIf you cancel your registration within one week of the event or do not show up for the event, you will be charged a cancellation fee of $30 per person.\nPlease do not attend this event if you have tested positive for COVID-19, the flu, RSV, or have cold-like symptoms.\nIf you are sick or are experiencing a personal or medical emergency, please contact us to discuss: info@nehemophilia.org.\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nEvent Sponsors\nWe are thankful to these companies for supporting this event:[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][vc_column_text]\nPresenting Sponsors\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_single_image image=”4147″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/3″][vc_single_image image=”9905″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/3″][vc_single_image image=”10018″ img_size=”medium” alignment=”center” css=””][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_single_image image=”4159″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/3″][vc_single_image image=”5546″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/3″][vc_single_image image=”7491″ img_size=”medium” alignment=”center” css=””][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][vc_column_text css=””]\nFamily Activity Sponsor\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][/vc_column][vc_column width=”1/3″][vc_single_image image=”4163″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/3″][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][vc_column_text css=””]\nAdvocate Sponsors\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_single_image image=”4372″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”9588″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”11032″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”4150″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”11115″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/3″][vc_single_image image=”4310″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”4348″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”4164″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”7605″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”4350″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/3″][vc_single_image image=”11484″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”6280″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”5877″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”5825″ img_size=”medium” alignment=”center” css=””][vc_single_image image=”4148″ img_size=”medium” alignment=”center” css=””][/vc_column][/vc_row][vc_row][vc_column][vc_separator el_width=”80″][/vc_column][/vc_row][vc_row][vc_column width=”1/4″][/vc_column][vc_column width=”1/4″][vc_column_text css=””]\nFriend Sponsor\n[/vc_column_text][vc_single_image image=”4714″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/4″][vc_column_text css=””]\nSnack Sponsor\n[/vc_column_text][vc_single_image image=”10783″ img_size=”medium” alignment=”center” css=””][/vc_column][vc_column width=”1/4″][/vc_column][/vc_row]\n URL:https://www.newenglandhemophilia.org/events/cms25/ LOCATION:625 N Rd, Groton, CT 06340 ATTACH;FMTTYPE=image/png:/wp-content/uploads/2024/10/neha_ConsumerMed_header_2025_1164x2200_BORDER-2.png END:VEVENT END:VCALENDAR