BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-ff70ea41bc4d78c076f1a002add81da6@newenglandhemophilia.org DTSTART:20250205T233000Z DTEND:20250206T003000Z DTSTAMP:20250102T163700Z CREATED:20250102 LAST-MODIFIED:20250205 PRIORITY:5 SEQUENCE:59 TRANSP:OPAQUE SUMMARY:Virtual Educational Presentation: Treatment Option for Hemophilia B DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]\nOn Wednesday, February 5, we hosted a virtual presentation with CSL Behring. Here, patients learned about HEMGENIX, a long-term treatment option for patients with hemophilia B.\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_column_text css=””]\nOn Wednesday, February 5 at 6:30 PM, we are hosting a virtual presentation with CSL Behring. Here, patients will learn about HEMGENIX, a long-term treatment option for patients with hemophilia B.\nAttendees will receive resources on how to treat hemophilia B from Dr. Richard Lemons, MD, PhD, and have a chance to ask questions in this relaxed environment.\nDr. Lemons is the medical director and division chief and a professor of pediatrics in the Division of Pediatric Hematology/Oncology at the University of Utah. He is also director of the pediatric hematology oncology fellowship program at the University of Utah. He is currently a principal investigator for several clinical studies related to pediatric malignancies and pediatric hematologic disorders, including a gene therapy study for hemophilia B.[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nAgenda\n\n6:00 PM: Arrive and check-in.\n\nFree parking is available at Legacy Place.\nWhen you enter the restaurant, tell the hostess you are with NEHA. They will direct you to the private dining room.\n\n\n6:15 PM: Dinner is served. Attendees will enjoy a delicious three-course meal with a choice of Short Rib Gnocchi, Vegan Ravioli, or Pollo ai Funghi. Dessert will follow.\n7:00 PM: Educational presentation begins, followed by an interactive question and answer period.\n\nDr. Richard Lemons, MD, PhD, will provide you with a clear overview of how HEMGENIX works, the process for treatment and how CSL Behring can best support your treatment decisions.\nPlease note: the educational presentation will be geared towards adults.\n\n\n8:00 PM: Event ends.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nRegistration\n\nThis event is free to all 2025 NEHA members.\nThe cost for non-NEHA members is $10 per person.\n\nTo become a member, or to request a membership scholarship, please click here.\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n[/vc_column_text][vc_btn title=”Register Here” color=”juicy-pink” align=”center” link=”url:https%3A%2F%2Fwww.eventbrite.com%2Fe%2Feducational-dinner-treatment-option-for-hemophilia-b-registration-1130924618979%3Faff%3Doddtdtcreator||target:%20_blank|”][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nDisclaimer\nThis event is a paid advertisement and does not constitute an endorsement or recommendation from the New England Hemophilia Association (NEHA). The information presented during this event is provided for your general information only. NEHA does not give medical advice or engage in the practice of medicine. NEHA, under no circumstances, recommends particular treatment options for specific individuals, and, in all cases, recommends that you consult your physician or local treatment center before pursuing any course of treatment.[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nCancellation Policy\n\nIf you cancel your registration within one week of the event or do not show up for the event, you will be charged a cancellation fee of $30 per person.\nPlease do not attend this event if you have tested positive for COVID-19, the flu, RSV, or have cold-like symptoms.\nIf you are sick or are experiencing a personal or medical emergency, please contact us to discuss: info@nehemophilia.org ( mailto:info@nehemophilia.org ).\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nEvent Sponsors\nWe are thankful to these companies for supporting this event:[/vc_column_text][vc_single_image image=”4147″ img_size=”medium” alignment=”center”][/vc_column][/vc_row]\n URL:https://www.newenglandhemophilia.org/events/dinner25feb/ ATTACH;FMTTYPE=image/jpeg:/wp-content/uploads/2025/01/150401-dna-strand-mn-1645.jpeg END:VEVENT END:VCALENDAR