BEGIN:VCALENDAR VERSION:2.0 METHOD:PUBLISH CALSCALE:GREGORIAN PRODID:-//WordPress - MECv7.3.1//EN X-ORIGINAL-URL:https://www.newenglandhemophilia.org/ X-WR-CALNAME:New England Hemophilia Association X-WR-CALDESC:New England Hemophilia Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-PUBLISHED-TTL:PT1H X-MS-OLK-FORCEINSPECTOROPEN:TRUE BEGIN:VEVENT CLASS:PUBLIC UID:MEC-eed43ed95207149ced1c0f1f8a2c0f67@newenglandhemophilia.org DTSTART:20250508T220000Z DTEND:20250509T000000Z DTSTAMP:20250316T222400Z CREATED:20250316 LAST-MODIFIED:20250509 PRIORITY:5 SEQUENCE:65 TRANSP:OPAQUE SUMMARY:Educational Dinner: Treatment Option for Hemophilia B DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]\nOn Thursday, May 8, we hosted an educational dinner with CSL Behring, followed by an ice cream sundae bar, provided by Superior Biologics. Here, patients learned about a long-term treatment option for patients with hemophilia B from Dr. Guy Young, MD.\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_column_text css=””]\nOn Thursday, May 8 at 6 PM, we are hosting an educational dinner with CSL Behring, followed by an ice cream sundae bar, provided by Superior Biologics. Here, patients will learn about HEMGENIX, a long-term treatment option for patients with hemophilia B.\nAttendees will receive resources on how to treat hemophilia B from Dr. Guy Young, MD, and have a chance to ask questions in this relaxed environment.\nDr. Guy Young, Director of the Hemostasis and Thrombosis Center at Children’s Hospital Los Angeles and Professor of Pediatrics at USC Keck School of Medicine, is a renowned pediatric hematologist with extensive research, publications, and leadership in thrombosis and hemostasis.[/vc_column_text][vc_empty_space height=”18px”][vc_column_text css=””]\nAgenda\n\n6:00 PM: Arrive and check-in.\n\nAmple free parking is available on Front Street and in the surrounding area.\n\n\n6:15 PM: Dinner is served. Attendees can order off of the restaurant menu.\n7:00 PM: Educational presentation begins, followed by an interactive question and answer period.\n\nDr. Guy Young, MD, will provide you with a clear overview of how HEMGENIX works, the process for treatment and how CSL Behring can best support your treatment decisions.\nPlease note: the educational presentation will be geared towards adults.\n\n\n7:30 PM: Ice cream is served as part of a make your own sundae bar, provided by Superior Biologics.\n8:00 PM: Event ends.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row disable_element=”yes”][vc_column][vc_empty_space height=”18px”][vc_column_text]\nRegistration\n\nThis event is free to all 2025 NEHA members.\nThe cost for non-NEHA members is $10 per person.\n\nTo become a member, or to request a membership scholarship, please click here.\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n[/vc_column_text][vc_btn title=”Register Here” color=”juicy-pink” align=”center” css=”” link=”url:https%3A%2F%2Fwww.eventbrite.com%2Fe%2Feducational-dinner-treatment-option-for-hemophilia-b-registration-1288735836579%3Faff%3Doddtdtcreator|target:_blank”][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nDisclaimer\nThis event is a paid advertisement and does not constitute an endorsement or recommendation from the New England Hemophilia Association (NEHA). The information presented during this event is provided for your general information only. NEHA does not give medical advice or engage in the practice of medicine. NEHA, under no circumstances, recommends particular treatment options for specific individuals, and, in all cases, recommends that you consult your physician or local treatment center before pursuing any course of treatment.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nCancellation Policy\n\nIf you cancel your registration within one week of the event or do not show up for the event, you will be charged a cancellation fee of $30 per person.\nPlease do not attend this event if you have tested positive for COVID-19, the flu, RSV, or have cold-like symptoms.\nIf you are sick or are experiencing a personal or medical emergency, please contact us to discuss: info@nehemophilia.org ( mailto:info@nehemophilia.org ).\n\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”18px”][vc_column_text]\nEvent Sponsors\nWe are thankful to these companies for supporting this event:[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”4147″ img_size=”medium” alignment=”center”][/vc_column][vc_column width=”1/2″][vc_single_image image=”4350″ img_size=”medium” alignment=”center” css=””][/vc_column][/vc_row]\n URL:https://www.newenglandhemophilia.org/events/dinner25may/ LOCATION:26 Front Street. Bangor, ME 04401 ATTACH;FMTTYPE=image/png:/wp-content/uploads/2024/02/NORTH_educational_dinner_2000X600.png END:VEVENT END:VCALENDAR