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Consumer Medical Symposium

July 8 @ 7:00 pm - August 8 @ 7:00 pm

This event was originally scheduled for Saturday, March 28, but has been moved to a virtual event. 
 

This event helps consumers understand what current and potential medical advancements (including gene therapy) may mean for you and your family. Information will be presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. Information will also be shared about current insurance barriers and trends, as well as a forum about the psychosocial and emotional implications of change.

Agenda Overview

Our Consumer Medical Symposium will be held over the course of one month, starting on July 8. These events will include a weekly webinar series, a live event on Saturday, July 25, a Virtual Exhibit Hall, and a Scavenger Hunt.

Participating in each session will help you earn points in our Scavenger Hunt! You must register separately and attend each event in order to receive points.

 

Looking Ahead: Treatment For vWD and Other Rare Bleeding Disorders

  • Wednesday, July 15 at 7 PM ET
  • Presenter: Aric Parnes, MD, Brigham and Women’s Hospital
  • Register Here

 

Understanding Research: It Starts with a Zebrafish

  • Wednesday, July 22 at 7 PM ET
  • Presenters: Jordan Shavit, MD, University of Michigan and Maria Santaella, BSN, National Hemophilia Foundation Research Nurse Specialist
  • Register Here

 

Interactive Live Sessions

  • Saturday, July 25 at 9 AM ET
  • This live session will include breakout sessions to help you understand more about health insurance, and the psychosocial impact of processing changes.
  • Participants will then attend two industry breakout sessions from our presenting sponsors.
  • See an Agenda and Register by clicking here.

 

Virtual Exhibit Hall

  • Saturday, July 25 – Saturday, August 8
  • This allows you to learn more about the products and therapies of our industry partners.
  • More information will be provided soon!

 

Scavenger Hunt

  • Participants will be able to earn points by collecting clues from our weekly webinars, our live session on Saturday, July 25, and through our Virtual Exhibit Hall from Sunday, July 26 to Saturday, August 8.
  • Each household that earns 2,500 points will receive a $100 Amazon Gift Card!
  • More information will be provided soon!

 

Missed a previous session? Watch the recordings below:

Event Sponsors

We are thankful to these companies for supporting this event:

Presenting Sponsors
Champion Sponsors
Advocate Sponsors

Details

Start:
July 8 @ 7:00 pm
End:
August 8 @ 7:00 pm
Event Category:

Venue

United States

Organizer

NEHA
Phone:
781-326-7645
Email:
info@nehemophilia.org
Website:
www.nehemophilia.org