Our Consumer Medical Symposium was created five years ago to help you better understand what current and potential medical advancements, including gene therapy, may mean for you and your family.

Information was presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. This also included information about insurance barriers and trends, as well as a forum about the psychosocial and emotional implications of change.

Agenda Overview

This month-long, virtual event included weekly webinars, an interactive event, a scavenger hunt, and a virtual exhibit hall for consumers to learn more about products and services. Recordings of these webinars and notes from each session are below.

• Webinar I: Emerging Therapies
  • Presenter: Stacy Croteau, MD, MMS, Boston Children’s Hospital
  • An overview of emerging therapies, including standard and extended half-life factor replacement therapies, subcutaneous treatments, and cell therapy.
  • To watch the recording of this webinar, please email [email protected].
  • Read webinar notes here.

• Webinar II: Current Therapies Panel Discussion
  • Panelists: Salley Pels, MD, RI Hospital; Jeremy Madrid, MD, Dartmouth Hitchcock; Shelia O’Donnell, APRN-FNP, Maine Medical Center; Emily Bisson, CPNP-PC, Connecticut Children’s Medical Center
  • A panel discussion on current treatment for bleeding disorders with health care providers from around New England.
  • Watch The Webinar Here.
  • Read webinar notes here.

• Webinar III: COVID-19 & Bleeding Disorders
  • Presenter: Leonard Valentino, MD, CEO, National Hemophilia Foundation
  • An overview of bleeding disorders and COVID-19, including the effects of the virus and what to know about getting vaccinated.
  • Watch The Webinar Here.
  • Read webinar notes here.

Event Sponsors

We are thankful to these companies for supporting this event:

Presenting Sponsors

Champion Sponsors

Advocate Sponsors