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Consumer Medical Symposium

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Consumer Medical Symposium

March 9 @ 8:30 am - 5:30 pm

NEHA was proud to host our 3rd Annual Consumer Medical Symposium in Portland, Maine on Saturday, March 9, 2019 to recognize March as Bleeding Disorders Awareness Month and to help you understand what these potential medical advancements may mean for you and your family. Here, information was presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders.

The goals of this meeting were to provide consumers in the New England bleeding disorders community with the foundation and tools to discuss the current treatments and potential treatments in clinical trials (subcutaneous injections and gene therapy), to have conversations around future insurance barriers to these treatments, and to begin to process what the psychosocial implications may be to patients. Our keynote speaker was Dr. Steven Pipe, Chair of the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC). This year, we offered an adult, teen and youth track. In addition, childcare was provided.


Check back soon for the 2020 Schedule Announcement!


March 9
8:30 am - 5:30 pm
Event Category:


Westin Portland Harborview
157 High Street
Maine, ME 04101 United States
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