NEHA held their inaugural New Families Retreat at the John Carver Inn in Plymouth, MA from Friday, September 20 to Sunday, September 22, 2019. This was a new event in 2019 and was created after members of our community requested this type of retreat for new families in our community.

The event was open to families with children ages 12 and under and who have been diagnosed with a bleeding disorder.

The objective of the program was to:

• serve as touchpoint for families who have young children who were recently diagnosed
• connect families to NEHA
• share resources
• provide tailored, smaller events specifically to meet the needs of newly diagnosed families

In order to make this event possible, we collaborated with EEMinds (formerly known as PEP, Parents Empowering Parents). EEMinds has created the content and been hosting this workshop for over 22 years. They are experts in the field! They specialize in helping families manage special and complicated challenges associated with having children that have serious medical conditions. Their mission is to help grow and nurture productive and independent adults by providing skills-based educational programming, community, and resources to parents in need.