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Virtual Newly Diagnosed Families Retreat

May 15 @ 9:00 am - 11:30 am

The New England Hemophilia Association (NEHA) will host a virtual Newly Diagnosed Families Retreat on Saturday, May 15 from 9 AM to 11:30 AM.

This event was created to bring families together in a relaxed setting to ease the anxiety surrounding a bleeding disorder diagnosis and offer peer support from other families in similar situations. The retreat is intended for families with kids ages 10 and under who have been diagnosed with a bleeding disorder.



The Retreat will feature three sessions. The first two are intended for parents and our final activity is for the whole family!

  • 9:00 AM: Welcome
  • 9:15 AM: Parenting During the Pandemic
    • Parents will hear from a psychologist and pediatric neuropsychologist, Juliana S. Bloom, PhD, who will talk about parenting a child with a bleeding disorder. This will focus on managing behavior around treatment, talking about your child’s diagnosis with others, and coping during the pandemic.
  • 10:00 AM: Breakout Rooms with Experienced Parents
    • Parents will be placed into small groups to share their stories, receive peer support from other families, and build new connections.
  • 10:45 AM: Panel & Scavenger Hunt
    • The whole family will come together for our final activity: a bleeding disorders scavenger hunt and panel discussion. This session will feature a local HTC nurse, a school counselor, the parent of a child with a bleeding disorder, and an affected teen.

All registered families living in New England will also receive one $50 Gift Card per household to cover the cost of breakfast that morning, in addition to a box with program supplies and materials!



This event is open to 2021 NEHA Members only. New families are welcome to become a member at any time. To learn more about becoming a member, or to request a free membership scholarship, please click here. If you are unsure if you are a 2021 NEHA member, please email [email protected].


Register Here

Event Sponsors

We are thankful to these companies for supporting this event:

Champion Sponsor

Champion Sponsor

Champion Sponsor

Advocate Sponsor


May 15
9:00 am - 11:30 am
Event Categories:


United States