We are thrilled to announce our 5th Annual von Willebrand Retreat will be held on Saturday, July 23, at the Sheraton Springfield Monarch Place Hotel in Springfield, MA.

This event is focused solely on families living with von Willebrand Disease (vWD). Developed with community feedback, this retreat is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a focused setting.

Agenda Overview

• 8 AM: Registration and exhibit booths open. Light breakfast will be available.
• 9 AM: Programming will begin for adults. Separate programming for youth will run concurrently throughout the day.
• 9:30 AM: Keynote Presentation
• 11 AM: Educational Sessions
• 12:30 PM: Lunch
• 1:30 PM: Rap Sessions
• 2:45 PM: Educational Sessions
• 4:30 PM: Closing Remarks
• 5 PM: Educational program concludes. Appetizers and desserts to follow in an informal reception.

A formal agenda will be sent to registered attendees closer to the event.

Travel and Accommodations

• The event will take place at the Sheraton Springfield Monarch Place Hotel in Springfield, MA.
• Parking will be free for all event attendees. You will receive a validated parking ticket when you leave the event.
• All 2022 NEHA Members who travel over 100 miles roundtrip to this event are eligible for our $100 for 100 miles program. More information will be shared after the event.
• We have secured a room block at the hotel if you need lodging for Friday and/or Saturday nights at the rate of $159 per night. Book a room here.
• If you are a 2022 NEHA member and are attending the event as a patient or caregiver and need a hotel scholarship, please email [email protected].

Registration

• This event is free for 2022 NEHA members.
• If you are not a member, the cost is only $10 per attendee. Become a member here.

Register Here

COVID-19 Guidelines

NEHA will follow all COVID-19 guidelines set by the venue and the local government.

• All attendees, regardless of vaccination status, must complete a simple and quick online COVID-19 Check-In form before attending the event. The form was created to protect your family and other attendees. The form will be emailed to you 72 hours before the event begins.
• NEHA strongly recommends that anyone eligible for the COVID-19 vaccine be fully vaccinated prior to attending any event.
• When transmission rates of COVID-19 is high, the CDC recommends wearing masks in all public spaces. Currently, Massachusetts has a high COVID-19 transmission rate. Masks are recommended, but not required.
• Please stay home and do not attend the event if you have tested positive for COVID-19, are waiting for COVID-19 test results, have COVID-19 symptoms, feel sick or unwell, or if you have had close contact with a person who has tested positive for or who has symptoms of COVID-19.
• If you have any questions or concerns regarding symptoms, please contact: [email protected].

Cancelation Policy

If you cancel within a week of the event, you will be charged a $30 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss. No-shows will also be charged the $30 per person fee.

Event Sponsors

We are thankful to these companies for supporting this event:

Champion Sponsor

Champion Sponsor

Champion Sponsor