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Von Willebrand Retreat

May 6 @ 9:00 am - 5:00 pm

Our 6th Annual von Willebrand Retreat will be held on Saturday, May 6, at the Providence Marriott Downtown in Providence, RI.

The educational programming throughout the retreat will be led by Hemophilia Treatment Center (HTC) medical providers and will focus solely on von Willebrand Disease. This event is intended to provide community members living with vWD a chance to learn, network, and ask questions in a focused setting.

Agenda Overview

  • 8 AM: Registration and exhibit booths open.
    • Breakfast will begin.
  • 9 AM: Programming will begin for adults. Separate programming for youth will run concurrently throughout the day.
  • 9:30 AM: Keynote Presentation with Dr. Nathan Connell, Associate Director, Boston Hemophilia Center
  • 11 AM: Educational Sessions
  • 12:30 PM: Lunch
  • 1:30 PM: Rap Sessions
  • 2:45 PM: Educational Sessions
  • 4:30 PM: Closing Remarks
  • 5 PM: Educational program concludes
  • 5:30 PM: Closing Reception
    • Before leaving the retreat, please join us for an informal social event. Appetizers and desserts will be provided. 
  • 7:30 PM: Event ends

A formal agenda will be sent to registered attendees closer to the event.

Travel and Accommodations

  • Parking at the hotel is free.
  • We have secured a room block at the Providence Marriott Downtown in Providence, RI for the nights of Friday, May 5 and/or Saturday, May 6, at the rate of $189 per night, per room.
    • During registration, you will be asked if you would like to book a hotel room.
      • We will secure the reservation on your behalf, but you will be responsible for paying the $189 per night upon check-in at the hotel.
      • For questions about hotel rooms, please contact Jodi, NEHA’s Outreach and Engagement Manager, at [email protected].


Register Here

Health and Wellness

  • Please do not attend this event if you have tested positive for COVID-19, the flu, RSV, or have cold-like symptoms.
  • NEHA strongly recommends that anyone eligible for the COVID-19 vaccine be fully vaccinated prior to attending any event.
  • If you have any questions or concerns regarding these guidelines, or need to cancel your registration due to illness, please contact: [email protected].

Cancellation Policy

If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $30 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Event Sponsors

We are thankful to these companies for supporting this event:

Champion Sponsor

Champion Sponsor

Advocate Sponsor

Advocate Sponsor

Advocate Sponsor


May 6
9:00 am - 5:00 pm
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Providence Marriott Downtown
1 Orms St
Providence, RI 02904 United States
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