The application process for Family Camp 2019 has closed. If you wish to be added to the wishlist, please email Heather Case, NEHA Family Camp Director, at hcase@nehemophilia.org. About Family Camp Since 1992 we have offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. Now serving 77 families (300+ individuals) annually, Camp has earned support from many of the providers of our local Hemophilia Treatment Centers. Family Camp…

We are hosting our first annual Murder Mystery Dinner to bring together community members and supporters.  This event will offer engagement to the bleeding disorder community that will raise awareness and funds for the New England bleeding community.

Each year, we host a women's retreat that brings together 40 females (ages 13+) with any type of a bleeding disorder, carriers, and caregivers living in New England.  The weekend features educational keynote sessions from New England Hemophilia Treatment Center (HTC) physicians, nurses, social workers, health and wellness workshops, breakout sessions, and much more! We had over 40 women attend in 2018.

Building on the success of the Adventure Club and Junior Counselor programs at NEHA Family Camp, this two-day, 1 night program offers young adults with a bleeding disorder and their siblings (ages 13-19) an opportunity to expand their leadership skills, participate in educational activities designed specifically for teens that include: a high ropes course, skill development activities, campfire, group interaction, infusion sessions, etc. Attendance for our 2018 BLeaders teen retreat was 11 young adults.  We are at new location in…

First Connections is a new NEHA program dedicated to families who are recently diagnosed and new to the community. The objective of the program is to * serve as touchpoint for families who have young children who were recently diagnosed * connect families to NEHA * share resources * provide tailored, smaller events specifically to meet the needs of newly diagnosed families. One aspect of the First Connections program in 2019 is a collaboration with PEP.  PEP stands for Parents…

Each year, NEHA is proud to offer programming specific to our Hispanic community. In 2018, nearly 60 individuals attended our annual Hispanic Heritage Month Event.  The conference is filled with educational opportunities for community members to learn and connect with others.  All educational sessions are presented in Spanish only. Our Annual Hispanic Heritage Month Event takes place on Saturday, September 28, 2019.  The entire event is in Spanish with multiple presentations and exhibits focused on our Spanish-speaking community. The event…

Educational Programing FallFest is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). Highlights include: Providers from New England Hemophilia Treatment Centers (HTCs) will give an important update about medical advancements NEHA's Annual Meeting 2019 volunteer awards A family friendly dinner  And much more! Keynote Speaker FallFest offically begins with check-in at 7:30 AM on Saturday, October 26th.  The keynote talk will be on Saturday, October 26th at…

A New Program For The VWD Community We are thrilled to announce our 2nd Annual von Willebrand's Retreat. This event is focused solely on families living von Willebrand's Disease (VWD). Developed with community feedback, this retreat led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. A formal agenda will be…

The NEHA Holiday Party is an annual tradition and is held on the first Sunday of December.  Families have an opportunity to spend a lot of time with friends new and old. Not to mention a special visit from the North Pole! The 2019 Holiday Party will be held in Newburyport. Additional details will become available in the coming months.