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March 2021

Virtual Consumer Medical Symposium

March 10 - March 31
United States

Our Consumer Medical Symposium was created five years ago to help you better understand what current and potential medical advancements, including gene therapy, may mean for you and your family. Presentations will include information about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. This will also include information about insurance barriers and trends, as well as a forum about the psychosocial and emotional implications of change. Agenda Overview Beginning on Wednesday, March 10, this month-long, virtual event will…

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April 2021

Virtual Couple’s Retreat

April 9 @ 8:00 pm - 9:30 pm
United States

Join us for our Virtual Couples Retreat on Friday, April 9 from 8 PM to 9:30 PM. During this event, couples will connect via Zoom for a fun, interactive evening of games and education. This event will help couples better navigate the stresses and burdens associated with bleeding disorders. A detailed description of the session and speakers will be released soon.   Registration This event is open only to 2021 NEHA Members. To become a member, or to request a…

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May 2021

Virtual Newly Diagnosed Families Retreat

May 15
United States

The New England Hemophilia Association (NEHA) will host a virtual Newly Diagnosed Families Retreat on Saturday, May 15. This retreat was created to help new members of our community meet and connect with other new families. The objective of the program is to serve as touchpoint for families who have young children who were recently diagnosed and/or have children under the age of 6, connect new families to NEHA, share resources, and provide tailored, smaller events specifically to meet the…

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July 2021

Von Willebrand Retreat

July 24

NEHA’s staff, board of directors, and healthcare advisors are closely monitoring the ongoing COVID-19 pandemic. We are currently planning to host this event in-person on Saturday, July 24. As we get closer to the program, a decision will be made with the community’s safety our top priority on keeping this as an in-person event or transitioning to a virtual platform. Please check back regularly to this page as more information will be released.   Our 4th Annual von Willebrand’s Retreat…

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August 2021

Family Camp

August 15 - August 21
Geneva Point Conference Center, 108 Geneva Point Rd Moultonborough, NH 03254 United States

Since 1992, NEHA has offered a Family Camp program to anyone with a bleeding disorder who receives care New England. This event focuses on achieving two key goals: increasing and enhancing self-infusion skills, and community building. NEHA’s Staff, Board of Directors and Medical Team are closely monitoring the COVID-19 situation. Right now, we are planning to host an in-person Family Camp from August 15 to August 21. Depending on the situation, this may be transitioned to a virtual event. A…

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October 2021

FallFest

October 15 - October 17
Jay Peak Resort, 830 Jay Peak Rd Jay, VT 05859 United States

NEHA’s staff, board of directors, and healthcare advisors are closely monitoring the ongoing COVID-19 pandemic. We are currently planning to host this event in-person from Friday, October 15 to Sunday, October 17 in Jay Peak, VT. As we get closer to the program, a decision will be made with the community’s safety our top priority on keeping this as an in-person event or transitioning to a virtual platform. Please check back regularly to this page as more information will be…

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