NEHA is excited to offer an educational event that will include a special private tour of Insa Easthampton, a cannabis (marijuana) cultivator, manufacturer and dispensary and an educational presentation by Jennifer Sacco, PharmD. The speaker will address the benefits of medical marijuana to manage pain and reduce inflammation as well as review different consumption methods available. They will discuss terpenoids, cannabinoids, delivery methods, and potential drug interactions. Mark Zaytrka, a NEHA community member, Blood Brotherhood Coordinator, and co-owner/CEO of Insa,…

Our annual Women's Retreat at the beautiful Guest House Retreat and Conference Center in Chester, CT is from Friday, August 2nd to Sunday, August 4th. This year we are proud to collaborate with the Connecticut Hemophilia Society on this retreat. This important event brings together females (ages 18+) with any type of a bleeding disorder, carriers, and caregivers living in New England. The weekend will feature team building activities, health and wellness workshops, breakout sessions, and much more! The event…

Join the NEHA Dads in Action group for a kids hike on Saturday, August 3rd from 10:00 AM – 4:00 PM in Bristol, NH at Wellington State Park. The Dads in Action is open to any father with child(ren) with a bleeding disorder or any father who has a bleeding disorder themselves. NEHA hosts regular Dads in Action events throughout the year and is always open to new members. Although this event is intended for Dads and their kids but…

Building on the success of the Adventure Club and Junior Counselor programs at NEHA Family Camp, this two-day, 1 night program offers young adults with a bleeding disorder and their siblings (ages 13-19) an opportunity to expand their leadership skills, participate in educational activities designed specifically for teens. NEHA is thrilled to offer our 4th Annual BLeaders Teen Retreat on August 13th and 14th at The Browne Center for Innovative Learning in Durham, NH. This program is open to all teens…

We invite all families and friends of the bleeding disorder community to join us for the official launch of NEHA's Backpacks & Bleeders on Saturday, August 17th at West Rattlesnake Mountain! Backpacks and Bleeders is was created by Chris Bombardier in conjunction with the Colorado Chapter of NHF with a goal of making outdoor experiences more accessible to the bleeding disorders community. Now that Chris has joined the NEHA community, we want to begin to build the program in New…

Join us for a family-friendly mini-golf and lunch event on Sunday, September 9th! Our mini-golf event will take place the day before Monday's Annual Golf Tournament at Trombetta's Farm in Marlborough, MA! During this event on Sunday, you and your family will be able to make thank you cards to be given out to all the golfers during this year’s tournament. Everyone will also receive a token for one free ice cream cone! All proceeds raised during the tournament will allow…

First Connections is a new NEHA program dedicated to families who are recently diagnosed and new to the community. The objective of the program is to * serve as touchpoint for families who have young children who were recently diagnosed * connect families to NEHA * share resources * provide tailored, smaller events specifically to meet the needs of newly diagnosed families. One aspect of the First Connections program in 2019 is a collaboration with PEP.  PEP stands for Parents…

Each year, NEHA is proud to offer programming specific to our Hispanic community. In 2018, nearly 60 individuals attended our annual Hispanic Heritage Month Event.  The conference is filled with educational opportunities for community members to learn and connect with others.  All educational sessions are presented in Spanish only. Our Annual Hispanic Heritage Month Event takes place on Saturday, September 28, 2019.  The entire event is in Spanish with multiple presentations and exhibits focused on our Spanish-speaking community. The event…

Educational Programing FallFest is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). Highlights include: Providers from New England Hemophilia Treatment Centers (HTCs) will give an important update about medical advancements NEHA's Annual Meeting 2019 volunteer awards A family friendly dinner  And much more! Keynote Speaker FallFest offically begins with check-in at 7:30 AM on Saturday, October 26th.  The keynote talk will be on Saturday, October 26th at…

A New Program For The VWD Community We are thrilled to announce our 2nd Annual von Willebrand's Retreat. This event is focused solely on families living von Willebrand's Disease (VWD). Developed with community feedback, this retreat led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. A formal agenda will be…