NEHA is excited to announce our first Dads in Action event of 2020! Get your race on at the world's largest multi-level indoor race track! Please join us on Sunday, January 26 at Supercharged Entertainment in Wrentham, MA. This event is FREE for any 2020 NEHA members who are dads in the New England bleeding disorders community. Lunch will be provided along with an educational presentation. Please note: Children are welcome to attend, however, all racers must be at least 4 foot…

During NEHA's Annual FallFest in 2019, Debbie de la Riva, founder of Mental Health Matters Too, provided an interactive keynote session about mental health. We are excited that Debbie will be offering this session for NEHA community members as a webinar on Wednesday, January 29 from 7 PM - 8 PM to discuss mental health issues in the bleeding disorders community, to help you recognize when someone is struggling psychologically, and to offer resources on where to turn for help.…

Join NEHA's Moms in Action and Blood Sisterhood for a Paint N' Sip educational dinner on Sunday, February 2 from 11:30 AM – 2:00 PM at the Muse Paintbar in Dedham, MA. All moms from the New England bleeding disorders community and women with a bleeding disorder are invited to attend. This event will include a painting session, dinner, and an educational presentation. Due to the size of Muse Paintbar, there are limited spots available. There is no cost to attend this event…

The Hemophilia Alliance of Maine (HAM) and the New England Hemophilia Association (NEHA) are excited to host Winter Camp at Camp Mechuwana in Winthrop, Maine from Friday, February 14 to Sunday, February 16. Winter Camp is a weekend of fun, engaging, and intergenerational outdoor programming that includes ice fishing and snow shoeing, sled dog rides, and lots of outdoor activities! Please note that registration will be open until Wednesday, January 15 at 5 PM.   Learn More and Register Here  …

NEHA will be holding our Newly Diagnosed Families Retreat at the Sheraton Springfield Monarch Place Hotel in Springfield, MA from Saturday, March 7 to Sunday, March 8. This retreat was created last year after new members of our community requested this type of retreat to meet and connect with other new families. The objective of the program is to: serve as touchpoint for families who have young children who were recently diagnosed and/or have children under the age of 6.…

We are excited to host our 4th Annual Consumer Medical Symposium at the Sheraton Hartford South Hotel in Rocky Hill, CT on Saturday, March 28. This event recognizes March as Bleeding Disorders Awareness Month by helping you understand what current and potential medical advancements (including gene therapy) may mean for you and your family. Information will be presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. Information will also be shared about current insurance barriers and trends,…

We were proud to recognize the 30th Annual World Hemophilia Day in 2020! This event will take place on Friday, April 17. This will include a free dinner and activities for the entire family. To learn more about World Hemophilia Day, click here! More information on this event will be released soon. Registration Will Open Soon

Our 2020 Couples' Retreat will be held at the beautiful Gurney's Newport Resort in Newport, RI from Saturday, April 18 to Sunday, April 19! This retreat includes a day and a half workshop led by professional facilitators. Attendees will also receive a complimentary hotel room on Saturday, April 18 and all meals on Saturday and Sunday morning are included! More information will be released soon. Registration Will Open February 28

Family Camp 2020 will be held at the Geneva Point Center in Moultonborough, NH from Wednesday, June 24 to Saturday, June 27.  Since 1992, NEHA has offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. This event focuses on 2 key goals: increasing and enhancing self-infusion skills, and community building. Now serving 77 families (300+ individuals) annually, NEHA's Family Camp has earned support from many of the…

We are happy to host a retreat for families living von Willebrand's Disease (VWD). Please join us at the Providence Marriott Downtown in Providence, RI on Saturday, July 18. This retreat was developed with community feedback, and is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. More information will…