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June 2019

Family Camp

June 26 - June 29
Geneva Point Conference Center, 108 Geneva Point Rd Moultonborough, NH 03254 United States

The application process for Family Camp 2019 has closed. If you wish to be added to the wishlist, please email Heather Case, NEHA Family Camp Director, at About Family Camp Since 1992 we have offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. Now serving 77 families (300+ individuals) annually, Camp has earned support from many of the providers of our local Hemophilia Treatment Centers. Family Camp…

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July 2019

Murder Mystery Dinner

July 27

We are hosting our first annual Murder Mystery Dinner to bring together community members and supporters.  This event will offer engagement to the bleeding disorder community that will raise awareness and funds for the New England bleeding community.

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August 2019

Women’s Retreat

August 2 @ 5:00 pm - August 4 @ 12:00 pm
The Guest House, 318 W Main Street Chester, CT 06412 United States

Each year, we host a women's retreat that brings together 40 females (ages 13+) with any type of a bleeding disorder, carriers, and caregivers living in New England.  The weekend features educational keynote sessions from New England Hemophilia Treatment Center (HTC) physicians, nurses, social workers, health and wellness workshops, breakout sessions, and much more! We had over 40 women attend in 2018.

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BLeaders Teen Retreat

August 13 @ 9:00 am - August 14 @ 3:00 pm
Browne Center UNH, 340 Dame Road Durham, New Hampshire 03824 United States

Building on the success of the Adventure Club and Junior Counselor programs at NEHA Family Camp, this two-day, 1 night program offers young adults with a bleeding disorder and their siblings (ages 13-19) an opportunity to expand their leadership skills, participate in educational activities designed specifically for teens that include: a high ropes course, skill development activities, campfire, group interaction, infusion sessions, etc. Attendance for our 2018 BLeaders teen retreat was 11 young adults.  We are at new location in…

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September 2019

First Connections

September 20 @ 5:00 pm - September 22 @ 12:00 pm
John Carver Inn, 25 Summer Street Suite 1 Plymouth, MA 02360 United States

First Connections is a new NEHA program dedicated to families who are recently diagnosed and new to the community. The objective of the program is to * serve as touchpoint for families who have young children who were recently diagnosed * connect families to NEHA * share resources * provide tailored, smaller events specifically to meet the needs of newly diagnosed families. One aspect of the First Connections program in 2019 is a collaboration with PEP.  PEP stands for Parents…

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Hispanic Heritage Month Event

September 28
UMASS Boston, 100 William T. Morrissey Blvd. Boston, MA 02125 United States

Each year, NEHA is proud to offer programming specific to our Hispanic community. In 2018, nearly 60 individuals attended our annual Hispanic Heritage Month Event.  The conference is filled with educational opportunities for community members to learn and connect with others.  All educational sessions are presented in Spanish only. Our Annual Hispanic Heritage Month Event takes place on Saturday, September 28, 2019.  The entire event is in Spanish with multiple presentations and exhibits focused on our Spanish-speaking community. The event…

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October 2019

FallFest 2019

October 26 - October 27
Crowne Plaza, 801 Greenwich Avenue Warwick, RI 02886 United States

Educational Programing FallFest is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). Highlights include: Providers from New England Hemophilia Treatment Centers (HTCs) will give an important update about medical advancements NEHA's Annual Meeting 2019 volunteer awards A family friendly dinner  And much more! Keynote Speaker FallFest offically begins with check-in at 7:30 AM on Saturday, October 26th.  The keynote talk will be on Saturday, October 26th at…

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November 2019

von Willebrands Retreat

November 9
Sheraton Portsmouth, 250 Market Street Portsmouth, NH 03801 United States

A New Program For The VWD Community We are thrilled to announce our 2nd Annual von Willebrand's Retreat. This event is focused solely on families living von Willebrand's Disease (VWD). Developed with community feedback, this retreat led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. A formal agenda will be…

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December 2019

Holiday Party 2019

December 1 @ 12:00 pm - 4:00 pm
NH United States

The NEHA Holiday Party is an annual tradition and is held on the first Sunday of December.  Families have an opportunity to spend a lot of time with friends new and old. Not to mention a special visit from the North Pole! The 2019 Holiday Party will be held in Newburyport. Additional details will become available in the coming months.

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