The New England Hemophilia Association (NEHA) will host a virtual Newly Diagnosed Families Retreat on Saturday, May 15 from 9 AM to 11:30 AM. This event was created to bring families together in a relaxed setting to ease the anxiety surrounding a bleeding disorder diagnosis and offer peer support from other families in similar situations. The retreat is intended for families with kids ages 10 and under who have been diagnosed with a bleeding disorder.   Agenda The Retreat will feature three…

Throughout our Webinar Wednesday Series, we will be hosting a live webinar on Wednesday evenings at 7 PM about various topics of interest and importance in our community. To watch one of our previous webinars, click here.   About This Webinar This webinar, "Bleeds: How to Recognize and Respond," will be held on Wednesday, May 19 at 7 PM.  In this talk, you will hear about different types of bleeds and their impact, how to recognize and respond to bleeds, and…

We created Virtual Chats to allow our community members to stay connected during the pandemic.  Join us for our second Virtual Community Chat of the year on Sunday, May 23 at 4 PM. Chats are intended to give community members an opportunity to gather in small groups for informal conversation. When registering, please select your preferred breakout room: Adult Men (Blood Brothers) Adult Women (Blood Sisters) Moms (Moms in Action) Dads (Dads in Action) Newly Diagnosed Families If multiple people…

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   Our 4th Annual von Willebrand’s Retreat will take place on Saturday, July 17. This event is focused solely on families living von Willebrand’s Disease (vWD). Developed with community feedback, this virtual event will be led by professional…

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   About the BLeaders Teen Retreat Our 6th Annual BLeaders Teen Retreat will be held virtually on Monday, July 26 and Tuesday, July 27. This program will be open to all teens with a bleeding disorder (ages 13-18)…

About Family Camp Since 1992, NEHA has offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. This event focuses on two key goals: increasing and enhancing self-infusion skills, and building connections within our community. The mission of Family Camp remains our north star as we create new ways of offering safe and meaningful education and connection to families.  Family Camp 2021 Plans We are pleased to announce…

Cada año, NEHA ofrece un programa específicamente dirigido a la comunidad hispana de NEHA. Este evento virtual se llevó a cabo el sábado 18 de septiembre de 4 pm. El programa incluye la oportunidad para nuestros miembros de la comunidad hispana a aprender y conectarse unas con otras. Todas las sesiones estarán presentadas en español.     Each year, NEHA is proud to offer programming specific to our Latino community. This virtual event will take place on Saturday, September 18,…

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   FallFest is NEHA’s Annual Meeting and our largest educational event of the year. We invite the bleeding disorders community of New England to attend this three-day event. This year, FallFest will be held from Friday, October 15…

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   Registration will open soon.   About The Women's Retreat Our annual Women's Retreat will be held from Thursday, November 11 to Saturday, November 13. This annual event brings together females (ages 18+) with a bleeding disorder, carriers,…