Past Events › Conferences

Our Consumer Medical Symposium was created five years ago to help you better understand what current and potential medical advancements, including gene therapy, may mean for you and your family. Information was presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. This also included information about insurance barriers and trends, as well as a forum about the psychosocial and emotional implications of change. Agenda Overview This month-long, virtual event included weekly webinars, an interactive event, a scavenger…

Our 4th Annual von Willebrand’s Retreat was held virtually on Saturday, July 17. This event was focused solely on families living von Willebrand’s Disease (vWD). Developed with community feedback, this virtual event was led by professional facilitators and Hemophilia Treatment Center (HTC) providers. The goal of this retreat was to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Watch The Keynote Presentation  Event Sponsors We are thankful to these…

La Asociación de Hemofilia de New England (NEHA) los invita a celebrar el mes de la Hispanidad! Invitamos a las familias con un desorden de coagulación a un evento de 1 día. Todas las sesiones serán en español. Fecha y Lugar Fecha: Sábado 18 de septiembre, 2021. La conferencia tendrá lugar en el hotel: Holiday Inn & Suites (265 Lakeside Ave, Marlborough, MA) Agenda Nuestro evento consistirá en diversos talleres y presentaciones por 2 días. Contaremos con sesiones para niños y…

At the recommendation of NEHA’s Medical Advisors and Board of Directors, and following guidance from the Centers for Disease Control and Prevention, we transitioned FallFest to be a hybrid event, where events happened virtually and in a socially-distant outdoor setting.   Each Fall, the New England Hemophilia Association (NEHA) hosts our annual meeting, called FallFest. At FallFest, NEHA will provide educational programming for adults, teenagers (13+), and kids (2–12 years old). FallFest was held over three days: Part I: Saturday…

This event was Part III of FallFest. Learn more about FallFest by clicking here. On Saturday, October 23 from 9 AM to 11:30 AM we hosted our final component of FallFest. Attendees participated in educational sessions and the annual New England Bleeding Disorders Advocacy Coalition (NEBDAC) Meeting.  

Our Consumer Medical Symposium was created six years ago to help you better understand what current and potential medical advancements are available to treat bleeding disorders and what they may mean for you and your family. This year's event was held on Saturday, April 9, 2022 at the Providence Marriott Downtown in Providence, RI. Agenda Information will be presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. This also includes information about insurance barriers and trends, as…

We hosted our 5th Annual von Willebrand Retreat on Saturday, July 23, at the Sheraton Springfield Monarch Place Hotel in Springfield, MA. This annual event was focused solely on families living with von Willebrand Disease (vWD). Developed with community feedback, this retreat was led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat was intended to provide community members living with vWD a chance to learn, network, and ask questions in a focused setting. Agenda Overview 8 AM:…

La Asociación de Hemofilia de New England (NEHA) los invita a celebrar el mes de la Hispanidad con una conferencia dirigida a las familias latinas. Todas las sesiones serán en español. Fecha y Lugar Sábado 24 de Septiembre del 2022 Sheraton Rocky Hill (100 Capital Blvd, Rocky Hill, CT 06067) Agenda El evento será de un solo día lleno de muchas actividades que tenemos preparadas para ustedes. Contaremos con habitaciones en el hotel para que descansen por una noche. Registro…

Each Fall, the New England Hemophilia Association (NEHA) hosts our annual meeting, called FallFest. At FallFest, NEHA will provide a wide-range of educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and childcare (0–5 years old). FallFest was held from Saturday, November 12 to Sunday, November 13 at the Four Points by Sheraton Hotel in Norwood, MA. Agenda Overview See our full program and agenda here. Friday, November 11 (optional, unofficial kick-off to FallFest) 6 PM: Welcome Reception…

Our Consumer Medical Symposium was held on Saturday, March 25 and Sunday, March 26 in Hartford, CT. This event was created to help you better understand what current and potential medical advancements are available to treat bleeding disorders and what they may mean for you and your family.  Agenda Overview Friday, March 24 (optional, unofficial kick-off to Consumer Medical Symposium). 6 PM: Welcome Reception Saturday, March 25 (breakfast, lunch and dinner will be provided).  8 AM: Registration & Breakfast 9 AM:…