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Consumer Medical Symposium
NEHA was proud to host our 3rd Annual Consumer Medical Symposium in Portland, Maine on Saturday, March 9, 2019 to recognize March as Bleeding Disorders Awareness Month and to help you understand what these potential medical advancements may mean for you and your family. Here, information was presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. Learn more about this event in 2020 by clicking here.
World Hemophilia Day
We were proud to co-host an event with Sanofi Genzyme to recognize World Hemophilia Day in 2019! The event took place on Wednesday, April 17th at 6PM at the UMass Club, and included a free dinner and activities for the entire family. Here, each family could to take part in hands-on activities that included team challenges related to this year's theme, Project Gratitude. This location has some of the best views in the city! The Zakim Bridge and South Station…
Hispanic Heritage Month Event
Each year, NEHA is proud to offer programming specific to our Hispanic community. The conference is filled with educational opportunities for community members to learn and connect with others. All educational sessions are presented in Spanish only. Si usted está interesado en aprender más de NEHA y habla español, por favor póngase en contacto con NEHA, [email protected] Learn more about this event in 2020 by clicking here.
Each Fall, the New England Hemophilia Association (NEHA) hosts our annual meeting, called FallFest. This is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). In 2019, over 300 community members and industry partners attend FallFest in Warwick, RI at the Crowne Plaza Hotel from Saturday October 26 to Sunday, October 27! Our Keynote speaker was Heather Abbott, a survivor of the Boston Marathon bombing. She gave an inspirational…
von Willebrands Retreat
This retreat is focused solely on families living von Willebrand's Disease (VWD). Developed with community feedback, this retreat is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. Learn more about this event in 2020 by clicking here.
Educational Advocacy Dinner
Individuals and families like you can make a huge impact when it comes to shaping public policy. Your story is powerful, and we want to help you share it. On Wednesday, November 13 from 6:00 PM to 8:00 PM, NEHA and Takeda are hosting a free Educational Dinner entitled "Self-Advocacy: Sharing Your Story." This discussion will focus on understanding and practicing self-advocacy and how to build the confidence you need to speak up for yourself as an advocate. This talk…
Family Educational Cooking Class
Maintaining a proper diet is key to managing your bleeding disorder. The New England Hemophilia Association is happy to partner with CSL Behring to host an educational cooking class on Wednesday, November 20 from 6 PM - 9 PM at Taste Buds Kitchen in North Andover! Dr. Diane Dimon, CSL Behring Common Factors Advocate and founder and director of Matters of the Mind, will teach us about mindful eating while we whip up some culinary masterpieces! This program is open to adults and families (children…
Educational Dinner: Cognitive Conversations
The New England Hemophilia Association was happy to partner with Sanofi Genzyme to host this educational dinner on Thursday, December 12 at Waterman Grille in Providence, RI! This ground-breaking program explained how different parts of our brain work and why we make the choices we do. This presentation also explored insights from the field of behavioral science and how they can be applied in conversations and behaviors related to managing Hemophilia. This interactive program was presented by facilitators Gretchen Hover and…