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January 2022

Educational Webinar: Team IMPACT

January 26 @ 7:00 pm - 8:00 pm

On Wednesday, January 26 at 7 PM, we are hosting a joint webinar with Team IMPACT to explore how children and teenagers with a bleeding disorder can overcome isolation and emotional trauma in the realm of sports and physical activities. This interactive webinar will give you and your family an opportunity to learn more about how you can get involved with Team IMPACT. During this webinar, you will hear from Team IMPACT participants and their families as they share their…

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En Español: Feliz Año Nuevo!

January 27 @ 7:00 pm - 8:00 pm

Te esperamos a ti y a tus hijos el jueves 27/Enero de 7 a 8pm via Zoom. Te invitamos a participar en una sesión virtual con Guadalupe Hayes-Mota, un mexicano con hemofilia severa que tenía que viajar 8 horas para conseguir su factor en Mexico. Vino a estudiar a EU y se graduó de MIT en Ingeniería y Negocios. Actualmente estudia en la Universidad de Harvard Política Pública. Nos va a platicar un poco el proceso de cómo aplicó a…

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February 2022

Virtual Game Night

February 4 @ 7:00 pm - 8:00 pm

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! This event will take place on Friday, February 4 at 7 PM to allow families from our communities to come together for a night full of fun, community, and laughs.   Register Here

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Winter Camp

February 18 @ 5:00 pm - February 20 @ 2:00 pm
Camp Mechuwana, 93 Holmes Road Winthrop, ME 04364 United States

At the recommendation of NEHA’s Medical Advisors and Board of Directors, and following guidance from the Centers for Disease Control and Prevention, Winter Camp will be held in a hybrid model with events happening virtually and in a socially-distant outdoor setting. Face masks will be required.   The Hemophilia Alliance of Maine (HAM) will again be partnering with the New England Hemophilia Association (NEHA) to host our annual Winter Camp from Friday, February 18 to Sunday, February 20, 2022! Winter…

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March 2022

Virtual Washington Days

March 1 - March 2

Each year, the National Hemophilia Foundation (NHF) hosts Washington Days to allow the bleeding disorders community to advocate for issues that are important to us. In 2021, more than 400 advocates from 45 states met virtually with legislators and staff to ask for their support of policies that increase affordability of coverage and access to care. Washington Days 2022 will be an entirely virtual experience and will take place on Tuesday, March 1 and Wednesday, March 2.   Learn More & Register

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Virtual Game Night

March 4 @ 7:00 pm - 8:00 pm

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! This event will take place on Friday, March 4 at 7 PM to allow families from our communities to come together for a night full of fun, community, and laughs.   Register Here

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Couple’s Retreat

March 18 - March 20
Gurney’s Newport Resort, 1 Goat Island Newport, RI 02840 United States

Our Couples Retreat helps couples connect for a fun, interactive weekend to help you better navigate the stresses and burdens associated with bleeding disorders. Our 2022 Couple's Retreat will be held from Friday, March 18 to Sunday, March 20 at Gurney's Newport Resort & Marina in Newport, Rhode Island. More information will be provided soon. Event Sponsors We are thankful to these companies for supporting this event: Champion Sponsor Snack Sponsor

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April 2022

Virtual Game Night

April 1 @ 7:00 pm - 8:00 pm

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! This event will take place on Friday, April 1 at 7 PM to allow families from our communities to come together for a night full of fun, community, and laughs.   Register Here

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Consumer Medical Symposium

April 9
Providence Marriott Downtown, 1 Orms St Providence, RI 02904 United States

Our Consumer Medical Symposium was created six years ago to help you better understand what current and potential medical advancements, including gene therapy, may mean for you and your family. Information was presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. This also included information about insurance barriers and trends, as well as a forum about the psychosocial and emotional implications of change. The 2022 Consumer Medical Symposium will be held on Saturday, April 9, 2022 at…

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May 2022

Virtual Game Night

May 6 @ 7:00 pm - 8:00 pm

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! This event will take place on Friday, May 6 at 7 PM to allow families from our communities to come together for a night full of fun, community, and laughs.   Register Here

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