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June 2020

Virtual Chat: Dads in Action

June 7 @ 5:00 pm - 6:00 pm

We created our Virtual Chats to allow our community members to stay connected during this public health emergency. On Sunday, June 7, we hosted a Virtual Chat for Dads in Action. All dads with a bleeding disorder, or dads that have children with a bleeding disorders were invited to grab their beverage of choice and join other dads for this chat. This informal conversation will allow you to come together and chat about the challenging situation we are all going…

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Virtual Chat: Moms & Women

June 9 @ 9:00 am - 10:00 am

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Tuesday, June 9, we hosted a Virtual Chat for moms and women with a bleeding disorder. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques to help us stay connected virtually.

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Educational Webinar: Mindfulness

June 10 @ 7:00 pm - 8:00 pm

This was the twelfth event in our Webinar Wednesday Series. Throughout this series, we will be hosting a live webinar or virtual hangout every Wednesday evening at 7 PM ET about various topics of interest and importance in our community.   About This Webinar This webinar was held on Wednesday, June 10 in collaboration with the Connecticut Hemophilia Society (CHS). We are constantly being pulled in different directions with work and family responsibilities, social commitments, and now, virtual education and…

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Virtual Family Fitness Class

June 14 @ 10:00 am - 11:00 am

On Sunday, June 14, we hosted a Virtual Family Fitness Class to help you learn and practice exercises and stretches that can be done while inside your home. While many gyms and recreational areas are closed due to COVID-19, it is crucial that both children and adults living with a bleeding disorder continue to be active. To see what this class is like, watch a recording of our previous classes. Watch the videos here.   About Our Instructor As a person…

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Family Camp

June 15 - June 28

Since 1992, NEHA has offered a Family Camp program to anyone with a bleeding disorder who receives care New England. This event focuses on 2 key goals: increasing and enhancing self-infusion skills, and community building.   About Virtual Camp Due to the COVID-19 pandemic, we decided to host our first-ever Virtual Family Camp experience! Here, families from New England and the New York City area participated in a virtual scavenger hunt where they completed a variety of camp-themed activities. This…

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Virtual Chat: Families

June 16 @ 8:00 pm - 9:00 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Tuesday, June 16, we held our first Virtual Chat for Families in our community. From distance learning, to preparing multiple meals and finding time for your own work and self-care, many parents are feeling overextended. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping…

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Virtual Chat: Blood Brotherhood

June 18 @ 8:00 pm - 9:00 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Thursday, June 18, we hosted a Blood Brotherhood Virtual Chat for men with a bleeding disorders ages 16 and over. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques to help us stay connected virtually.

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July 2020

Virtual Chat: Moms & Women

July 7 @ 9:00 am - 10:00 am

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Tuesday, July 7, we hosted a Virtual Chat for moms and women with a bleeding disorder. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques to help us stay connected virtually.

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Educational Webinar – The Shifting Paradigms of Hemophilia Treatment

July 8 @ 7:00 pm - 8:00 pm

This was the first event during our Virtual Consumer Medical Symposium. To learn more about this virtual series of events, please click here.   About This Webinar This webinar was held on Wednesday, July 8 at 7 PM ET. This session provided an overview of the current and emerging treatment landscape for people with hemophilia. During this talk, she addressed topics like: the pros and cons of current and emerging therapies, standard and extended half-life factor replacement therapies, subcutaneous therapies,…

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Virtual Chat: Dads in Action

July 9 @ 8:00 pm - 9:00 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Thursday, July 9, we held a Virtual Chat for Dads in Action. All dads with a bleeding disorder, or dads that have children with a bleeding disorders were invited to grab their beverage of choice and join other dads for this chat. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees…

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