NEHA held their inaugural New Families Retreat at the John Carver Inn in Plymouth, MA from Friday, September 20 to Sunday, September 22, 2019. This was a new event in 2019 and was created after members of our community requested this type of retreat for new families in our community.   The objective of the program was to: serve as touchpoint for families who have young children who were recently diagnosed connect new families to NEHA share resources provide tailored, smaller…

Each year, NEHA is proud to offer programming specific to our Hispanic community. The conference is filled with educational opportunities for community members to learn and connect with others.  All educational sessions are presented in Spanish only.   Si usted está interesado en aprender más de NEHA y habla español, por favor póngase en contacto con Heather, hcase@nehemophilia.org o 781.326.7645. Check Back Soon for 2020 Information

The New England Hemophilia Association (NEHA) is proud to partner again with Baramor in Newton Center, MA to raise money for the bleeding disorder community through their draught line dedicated to charity. The "Wicked Strong Family" brew for the entire month of October is Maritime Lager! For every pint purchased, Baramor will donate $3 to NEHA. The money collected from this will help raise vital funds and awareness for those living with a bleeding disorder! In addition to holding this…

In the Fall of 2019, we partnered with another New England farm to host a corn maze! This year, we collaborated with Sherman Farm in East Conway, New Hampshire on a campaign to raise awareness about bleeding disorders! People from all over New England traveled to Sherman Farms to explore the maze, enjoy hayrides, pick pumpkins, and eat delicious cider donuts and ice cream! This 10-acre corn maze helped educate the public about bleeding disorders with facts displayed throughout the…

After two extremely successful sold-out Best Bloody Mary competitions in Providence, Rhode Island, the New England Hemophilia Association (NEHA) brought this competition to northern Vermont! Champlain Valley's Best Bloody Mary competition took place on Saturday, October 5 from 11 AM - 2 PM at the Champlain Valley Exposition in Essex Junction, Vermont.   Nearly 175 people enjoyed a day of tasting bloody marys that were whipped up by local bartenders! Attendees tasted samples from Drink, The Friendly Toast, Waterworks Food &…

Since 2016, the New England Hemophilia Association has been the beneficiary of a Casino Night. On Friday, October 18, over 100 people enjoyed friendly casino table gambling, delicious food, and great cocktails at Game On at Fenway Park! A special thanks to Jon Taylor, a financial advisor, for putting this event together, which is 100% supported by local startup companies and entrepreneurs. Since the event began in 2016, over $20,000 has been raised for NEHA's programs and services. Check Back…

Each Fall, the New England Hemophilia Association (NEHA) hosts our annual meeting, called FallFest. This is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). In 2019, over 300 community members and industry partners attend FallFest in Warwick, RI at the Crowne Plaza Hotel from Saturday October 26 to Sunday, October 27! Our Keynote speaker was Heather Abbott, a survivor of the Boston Marathon bombing. She gave an inspirational…

The New England Hemophilia Association (NEHA) and Baramor will be hosting a Trivia Night! Put your trivia skills to the test with us on Tuesday, October 29 from 7:30 PM - 9:30 PM while you try the "Wicked Strong Family Brew" and order from their delicious menu! Come as a pair or bring a team of up to six people to compete for three great prizes! Tickets for Trivia are only $5 per person.   Buy Tickets to Trivia Here…

A Retreat for the vWD Community This event is focused solely on families living von Willebrand's Disease (VWD). Developed with community feedback, this retreat is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend.

Individuals and families like you can make a huge impact when it comes to shaping public policy. Your story is powerful, and we want to help you share it. On Wednesday, November 13 from 6:00 PM to 8:00 PM, NEHA and Takeda are hosting a free Educational Dinner entitled "Self-Advocacy: Sharing Your Story." This discussion will focus on understanding and practicing self-advocacy and how to build the confidence you need to speak up for yourself as an advocate. This talk…