This event was originally scheduled to take place from September 25 – September 27, but was moved to a virtual event.   About The Women's Retreat Our Virtual Women's Retreat was held on Friday, August 14. This annual event brings together females (ages 18+) with a bleeding disorder, carriers, and caregivers living in New England. The retreat featured a distance reiki session, small group discussions, and attendees received a special package with items to help with self-care! Event Sponsors We…

For the third year in a row, NEHA was selected as a non-profit partner of the New Balance Falmouth Road Race. While this race was supposed to take place in-person, this took place as an At-Home Competition. From August 15 to August 29, the ten runners on Team NEHA were challenged to run seven miles anywhere they wanted. So far, over $11,000 has been raised during this event! These funds will ensure New England families have continued access to programs…

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Wednesday, August 19, we hosted a Virtual Chat focused on going back to school for parents with kids of all ages. A school psychologist, school nurse, and teacher, guided our conversation around helping families transition to a new learning environment. This virtual chat allowed parents to ask questions and connect from others facing similar changes and challenges. Speakers Included: Kathy Secinaro, certified school psychologist…

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Thursday, September 3, we hosted a special virtual chat for both Dads and Blood Brothers (men with a bleeding disorders ages 16 and over). This informal conversation allows you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques to help us stay connected virtually.

This was the thirteenth event in our Webinar Wednesday Series. Throughout this series, we will be hosting a live webinar or virtual hangout every Wednesday evening at 7 PM ET about various topics of interest and importance in our community.   About This Webinar This webinar was held on Wednesday, September 9 at 7 PM. Recently there has been an explosion of innovation in the treatment of Hemophilia. It is becoming more important than ever to stay informed on all…

Our 30th Annual Golf Tournament and Raffle took place on at the beautiful Cyprian Keyes Golf Club in Boylston, MA on Monday, September 14. All proceeds from this event assist the New England Hemophilia Association (NEHA) to fulfill its mission by providing support, education, and advocacy to the bleeding disorder community.   About the Golf Tournament Golfers were invited to participate as individuals or as a foursome. At the event, there was also a raffle and a silent auction with…

This was the fourteenth event in our Webinar Wednesday Series. Throughout this series, we will be hosting a live webinar or virtual hangout every Wednesday evening at 7 PM about various topics of interest and importance in our community.   About This Webinar This webinar was held on Wednesday, September 16 at 7 PM. The worldwide pandemic has created unforeseen challenges for our health and well-being. This presentation helped our community learn how to manage a bleeding disorder amidst shelter-in-place…

Cada año, NEHA ofrece un programa específicamente dirigido a la comunidad hispana de NEHA. Este evento virtual se llevó a cabo el sábado 19 de septiembre de 4 pm. El programa incluye una demonstración de comida, una sesión interactiva sobre salud y bienestar, y la oportunidad para nuestros miembros de la comunidad hispana a aprender y conectarse unas con otras. Todas las sesiones estarán presentadas en español.     Each year, NEHA is proud to offer programming specific to our…

This was the fifteenth event in our Webinar Wednesday Series. Throughout this series, we will be hosting a live webinar or virtual hangout every Wednesday evening at 7 PM about various topics of interest and importance in our community.   About This Webinar This webinar was held on Wednesday, September 23 at 7 PM. Bleeding disorders affect the whole family. Providing education to unaffected siblings is an important part of the continuum of care for families with bleeding disorders. This…

The New England Hemophilia Association (NEHA) hosts an Annual Walk to bring together the community and supporters to raise funds for the bleeding disorders community.   Virtual Walk Celebration On Saturday, September 26 we hosted an interactive Virtual Walk Celebration! While we were disappointed that we could not be together in-person, we must continue to be united. Holding this virtual event allowed us to maintain the emotion, unity, and spirit that make this event special year after year. This event was…