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March 2023


March 18 @ 9:30 am - 12:00 pm

To recognize Bleeding Disorders Awareness Month, Mastery Martial Arts partnered with the New England Hemophilia Association (NEHA) to host a push-up-a-thon on Saturday, March 18. Together, across all six Mastery locations in Rhode Island and Massachusetts, participants did 89,538 push-ups--far surpassing their goal of 50,000 push-ups! While the push-up-a-thon is over, Mastery's fundraising efforts are still ongoing in support of Bleeding Disorders Awareness Month. All funds raised will support NEHA's Emergency Assistance program to assist families in facing unexpected financial…

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Educational Webinar: Harness The Power Of Joy

March 19 @ 5:30 pm - 6:30 pm

We're hosted an interactive workshop on Sunday, March 19 to explore how to strengthen relationships through better communication and sharing in another's joy. This program was created as a follow-up to our BLeader Teen Retreat. This was developed in partnership with the University of Pennsylvania, and is supported by Genentech.

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Consumer Medical Symposium

March 25 @ 9:00 am - March 26 @ 11:30 am
Hartford Marriott Downtown, 200 Columbus Blvd Hartford, CT 06103 United States

Our Consumer Medical Symposium was held on Saturday, March 25 and Sunday, March 26 in Hartford, CT. This event was created to help you better understand what current and potential medical advancements are available to treat bleeding disorders and what they may mean for you and your family.  Agenda Overview Friday, March 24 (optional, unofficial kick-off to Consumer Medical Symposium). 6 PM: Welcome Reception Saturday, March 25 (breakfast, lunch and dinner will be provided).  8 AM: Registration & Breakfast 9 AM:…

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April 2023

Taco Cook-Off

April 2 @ 4:30 pm - 7:00 pm
Foodology Cooking School, 991 S. Main Street Plantsville, CT 06479 United States

On Sunday, April 2, we hosted a Taco Cook-Off at Foodology Cooking School in Plantsville, CT! With the help of a culinary expert, families created a unique interpretation of both sweet and savory tacos! Our Taco Cook-Off was also blended with an educational session, "Rebuilding the Body With Diet" to help attendees understand the components of food that help balance not only a plate, but an entire day’s nutrition. The interactive presentation also showed how specific patterns in diet may…

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HFA Symposium

April 13 - April 16

The Hemophilia Federation of America (HFA) is heading to Orlando for what is shaping up to be their biggest and best Symposium yet! Join them for this year's conference from Thursday, April 13 to Sunday, April 16 at the Sea World Renaissance Hotel in Orlando, FL. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with the new and old friends from around the country. You won't…

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World Hemophilia Day Celebration

April 14 @ 6:00 pm - 8:30 pm
Le Méridien Boston Cambridge, 20 Sidney Street Cambridge, MA 02139 United States

To recognize World Hemophilia Day, we hosted a special celebration on Friday, April 14 at Le Méridien Boston Cambridge in Cambridge, MA.  In recognition of World Hemophilia Day, we are hosting a special celebration in Cambridge, MA! Wear something red and join us for a free dinner and family-friendly, hands-on activities (including team challenges) to help celebrate together as a community. Join us for the celebration on Friday, April 14 from 6 PM to 8:30 PM at Le Méridien Boston…

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Men’s Retreat

April 21 @ 6:00 pm - April 23 @ 11:30 am
Stratton Mountain Resort, 5 Village Lodge Rd Stratton Mountain, VT 05155 United States

This year, we were happy to host a Men's Retreat from Friday, April 21 to Sunday, April 23, at Stratton Mountain Resort in Vermont. The weekend-long retreat featured educational sessions, social activities, health and wellness workshops, breakout sessions, and much more!Based on your feedback, we are excited to host a Men's Retreat! Join us from Friday, April 21 to Sunday, April 23, at Stratton Mountain Resort in Vermont. The weekend-long retreat will feature educational sessions, social activities, health and wellness…

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May 2023

Fitness Challenge: Destination GO

May 1 - May 5

Being physically active is one key to managing a bleeding disorder. It also helps reduce stress, strengthens connections within the community, and improves general quality of life. To help encourage physical activity within our community, the New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) partnered to host a Fitness Challenge! The Challenge will run from May 24 to July 26. We are no longer accepting applications for this year. Applications were accepted until May 5,…

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Von Willebrand Retreat

May 6 @ 9:00 am - 5:00 pm
Providence Marriott Downtown, 1 Orms St Providence, RI 02904 United States

Our 6th Annual Von Willebrand Retreat was held on Saturday, May 6, at the Providence Marriott Downtown in Providence, RI. The educational programming throughout the event focuses solely on Von Willebrand Disease. This goal of this event is to provide community members living with VWD a chance to learn, network, and ask questions in a focused setting. Agenda Overview 8 AM: Registration and exhibit booths open. Breakfast will begin. 9 AM: Programming will begin for adults. Separate programming for youth…

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Madres en Acción

May 7 @ 5:00 pm - 6:00 pm

NEHA invita a las mamás latinas a participar en un evento de forma virtual para platicar, conocernos un poco más y escuchar que les gustaría aprender con nosotros, en este mes de Mayo que celebramos el Día de la Madre. Fecha: Domingo 7 de Mayo Hora: 5pm Confirma tu asistencia enviando un email a Nelly Miranda: [email protected] o envía un mensaje de texto al número (551) 243-3066. Después del evento recibirán una tarjeta de regalo de Amazon por $25.

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