On Wednesday, February 9 at 6 PM we hosted an interactive cooking class to help you learn how to make creamy garlic and lemon chicken dinner and a simple Valentine's Day themed dessert! Each household received a $25 gift card after the event to cover the cost of ingredients for this program. In addition to making this meal, this program provided a safe space for you to safely open and share ideas on the topics of goal setting, vulnerability, and…

NEHA te invita a cocinar juntos de forma virtual con las familias latinas el martes 15 de febrero a las 6pm para celebrar el día de San Valentín. Vamos a cocinar arroz frito con verduras y carne y galletas de postre. NEHA te enviará los ingredientes a tu casa.   This session was held only in Spanish on Tuesday, February 15 at 6 PM via Zoom. NEHA invited families to cook together with other Latino Families on February 15 at…

At the recommendation of NEHA’s Medical Advisors and Board of Directors, and following guidance from the Centers for Disease Control and Prevention, Winter Camp was held in a hybrid model with events happening virtually and in a socially-distant outdoor setting.    The Hemophilia Alliance of Maine (HAM) partnered with the New England Hemophilia Association (NEHA) to host our annual Winter Camp from Friday, February 18 to Sunday, February 20, 2022 during three separate sessions via Zoom and at Camp Mechuwana…

Each year, the National Hemophilia Foundation (NHF) hosts Washington Days to allow the bleeding disorders community to advocate for issues that are important to us. In 2021, more than 400 advocates from 45 states met virtually with legislators and staff to ask for their support of policies that increase affordability of coverage and access to care. Washington Days 2022 was an entirely virtual experience and took place on Tuesday, March 1 and Wednesday, March 2.   Learn More

The New England Hemophilia Association (NEHA) was proud to partner again with Baramor in Newton Centre, MA to raise money for the bleeding disorder community through their draft line dedicated to charity. The "Wicked Strong Family" brew was on tap for the entire month of March! For every pint purchased, Baramor donated $3 to NEHA. The money collected from supports our programs and services like our Emergency Assistance Program and Family Camp. Learn About Baramor In addition to their Pull…

On Saturday, March 5 from 4 PM to 7:30 PM, we hosted a paint night at Bird & Bear in Holliston, MA for moms of kids with a bleeding disorders in the New England bleeding disorders community. The goal of this event is to provide a space where bleeding disorders moms can connect and build relationships in an informal, social setting. This was a community driven event coordinated by hemophilia mom, Tracey Wickham. Community-driven events are designed by community members…

Our Annual Couples Retreat was held from Saturday, March 19 to Sunday, March 20 at Gurney’s Newport Resort & Marina in Newport, Rhode Island. This yearly event helps couples connect for a fun, interactive weekend to help you better navigate the stresses and burdens associated with bleeding disorders. The program included a day and a half workshop led by professional facilitators.  Our Annual Couples Retreat will be held from Saturday, March 19 to Sunday, March 20 at Gurney’s Newport Resort…

Our Consumer Medical Symposium was created six years ago to help you better understand what current and potential medical advancements are available to treat bleeding disorders and what they may mean for you and your family. This year's event was held on Saturday, April 9, 2022 at the Providence Marriott Downtown in Providence, RI. Agenda Information will be presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. This also includes information about insurance barriers and trends, as…

In recognition of World Hemophilia Day, we co-hosted a celebration event with Sanofi on Friday, April 15 from 6 PM to 8:30 PM. Community members from around New England joined us for a free dinner and family friendly activities at Le Méridien Boston Cambridge in Cambridge, MA. About World Hemophilia Day World Hemophilia Day is observed each year on April 17. To learn more about World Hemophilia Day, visit the World Federation of Hemophilia's website. In recognition of World Hemophilia Day,…

Every other year, NEHA hosts a Red Tie Soiree to honor and celebrate our outstanding members and the local businesses who donate their time, financial resources, vision, and guidance to supporting the New England bleeding disorders community. This event was held on Saturday, May 14 from 6 PM to 11 PM at Mechanics Hall in Worcester, MA! This featured a cocktail reception and silent auction, followed by a seated dinner, awards presentation and dancing.Every other year, NEHA hosts a Red…