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May 2018

Best Bloody Mary Competition

May 20, 2018 @ 11:00 am - 2:00 pm

And The Winners Are... The New England Hemophilia Association and Rhode Island Food Fights held their inaugural “Providence’s Best Bloody Mary” event on Sunday, May 20 at the Providence Arcade in downtown Providence. The Rosendale won first place by popular vote in an intense competition among nine local bars. Troop  won the award of best bloody mary garnish. The event was a tremendous success, with tickets sold out days before the event. More than 320 people tried samples from The Black Sheep,  The Grange,  Murphys Providence, New Harvest, Rogue Island…

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November 2018

Casino Night

November 29, 2018 @ 6:30 pm - 11:00 pm

Since 2016, NEHA was been the beneficiary of a Casino Night. Last October, over 100 people enjoyed friendly casino table gambling, live DJ, epic cocktails, passed foods, and majestic views of the city of Boston in a private club atmosphere.   A special thanks to Jon Taylor, a financial advisor, for putting this event together, which is 100% supported by local startup companies and entrepreneurs. Since the event began in 2016, over $15,000 has been raised for NEHA's programs and…

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February 2019

Winter Camp 2019

February 16 @ 5:00 pm - February 19 @ 10:00 am
Camp Mechuwana, 93 Holmes Road Winthrop, ME 04364 United States

The Hemophilia Alliance of Maine (HAM) and the New England Hemophilia Association (NEHA), hosted the third annual Winter Camp 2019, from February 16 - 19, 2019! With our partners, WinterKids, Winter Camp took us back to our Maine camp roots and was be held at Camp Mechuwana in Winthrop, Maine. Winter Camp is a weekend of engaging, intergenerational outdoor programming that includes ice fishing and snow shoeing! The 2019 program was extremely successful. Stay tuned for Winter Camp 2020 dates.

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March 2019

Consumer Medical Symposium 2019

March 9 @ 8:30 am - 5:30 pm
Westin Portland Harborview, 157 High Street Maine, ME 04101 United States

To recognize March as Bleeding Disorders Awareness Month and to help you understand what these potential medical advancements may mean for you and your family, we are proud to host our 3rd Annual Consumer Medical Symposium in Portland, Maine on Saturday, March 9, 2019. There will be information presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. The goals of this meeting are to provide consumers in the New England bleeding disorders community with the foundation and…

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April 2019

World Hemophilia Day

April 17 @ 6:00 pm - 8:30 pm
UMASS Club Boston, 1 Beacon Street Boston, MA 02108 United States

In recognition of World Hemophilia Day, we are co-hosting an event with Sanofi Genzyme that will include a free dinner and family friendly activities on Wednesday, April 17th, 6 PM at the UMass Club. Each family will get to take part in hands-on activities that will include team challenges related to this year's theme, Project Gratitude. The Zakim Bridge and the Prudential Center are both visible from the UMASS Club and will be lit in red to honor World Hemophilia Day. The UMass Club has some…

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Couples Retreat

April 27 @ 9:30 am - April 28 @ 11:30 am
Trapp Family Lodge, 700 Trapp Hill Road Stowe, VT 05672 United States

Our Annual Couples' Retreat is again at the beautiful Trapp Family Lodge in Stowe, VT on Saturday, April 27 – Sunday, April 28! The program includes a day and a half workshop led by professional facilitators. Attendees will receive a complimentary hotel room on Saturday, April 27th and meals on Saturday and Sunday morning.

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