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Virtual Board & Brush Night
Our Virtual Board and Brush night was held on Friday, May 21 at 6:30 PM. The first part of the evening featured a mom’s story about making sure your child has the accommodations they need at school to be successful. Afterward, attendees created a farm-house inspired wood sign with an inspirational message. This event was generously supported by CSL Behring.
Virtual Community Chat
We created Virtual Chats to allow our community members to stay connected during the pandemic. Our second Virtual Community Chat of the year was held on Sunday, May 23 at 4 PM. Chats are intended to give community members an opportunity to gather in small groups for informal conversation. The following breakout rooms were offered: Adult Men (Blood Brothers) Adult Women (Blood Sisters) Moms (Moms in Action) Dads (Dads in Action) Newly Diagnosed Families
Sesión Educativa: Emergencias
Sesión educativa: “Como estar preparados para una emergencia relacionada a nuestro trastorno de sangrado” y decoración de galletas de azúcar! Este evento fue el viernes 28 de mayo a las 6:30 pm. Esta sesión fue generosamente patrocinada por Bayer y Cottrill's Specialty Pharmacy.
Virtual Game Night
The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! This event took place on Friday, June 4 at 7 PM as families from our communities came together for a night full of fun, community, and laughs.
Educational Webinar: Aging With a Bleeding Disorder
Throughout our Webinar Wednesday Series, we will be hosting a live webinar on Wednesday evenings at 7 PM about various topics of interest and importance in our community. To watch one of our previous webinars, click here. About This Webinar It's never too early to start planning for your future! Community members of all ages were invited to join us on Wednesday, June 9 to learn about the potential ways adults with a bleeding disorder can plan for their financial…
Virtual Best Bloody Mary Extravaganza
After three extremely successful sold-out Best Bloody Mary competitions in Providence, RI, and one incredibly successful Virtual Bloody Mary Extravaganza last year, the New England Hemophilia Association (NEHA) was excited to host the 2021 Virtual Bloody Mary Extravaganza on Saturday, June 12! Our host was Kitty Litter: the self-proclaimed First Lady of the City of Providence. Using her skill as a comedian, performer, humanitarian, and drag queen, Kitty Litter led the event and interacted with everyone on screen, all while having lots…
Educational Webinar: Living Well with a Bleeding Disorder & Essential Oils
Throughout our Webinar Wednesday Series, we will be hosting a live webinar on Wednesday evenings at 7 PM about various topics of interest and importance in our community. To watch one of our previous webinars, click here. About This Webinar On Wednesday, June 16 we hosted a dual-presentation on living well with a bleeding disorder and essential oils. The first session was led by Cathy Tiggs-Johnson, a Social Worker for Adult and Pediatric Hematology, on how to manage physical…
Von Willebrand Retreat
Our 4th Annual von Willebrand’s Retreat was held virtually on Saturday, July 17. This event was focused solely on families living von Willebrand’s Disease (vWD). Developed with community feedback, this virtual event was led by professional facilitators and Hemophilia Treatment Center (HTC) providers. The goal of this retreat was to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Watch The Keynote Presentation Event Sponsors We are thankful to these…
BLeaders Teen Retreat
Our 6th Annual BLeaders Teen Retreat was held virtually on Monday, July 26 and on Tuesday, July 27. This annual program offers: Life skills development activities Opportunities to expand leadership skills Bleeding disorders education, and more! Registration This program was open to all teens with a bleeding disorder (ages 13-18) living in any of the six New England states and their siblings. Kids who are 12 years old and demonstrate interest and the maturity to participate could be considered…
Educational Webinar: Constructive Conversations
Throughout our Webinar Wednesday Series, we will be hosting a live webinar on Wednesday evenings at 7 PM about various topics of interest and importance in our community. To watch one of our previous webinars, click here. About This Webinar This webinar was held on Wednesday, July 28 and offered a comprehensive overview of how caregivers can gain a better understanding and learn ways to effectively communicate with individuals living with a bleeding disorder. During this webinar, the presenter and…