Each year, we host an annual Walk to celebrate the resilience, dedication and perseverance of our Wicked Strong Family! This important event also raises vital funds needed to allow our organization to continue to fulfill its mission of providing education, support and advocacy for the New England bleeding disorders community.  On October 1, community members, their families, friends, supporters, local businesses and our industry partners from all six New England states came together for our 13th Annual Walk at Prowse…

We hosted our annual Newly Diagnosed Families Retreat from Friday, October 14 to Sunday, October 16 at the Grand Summit Hotel and Conference Center at Attitash in Bartlett, NH. This event was created to bring families together in a relaxed, kid-friendly, setting to ease the anxiety surrounding a bleeding disorder diagnosis through education and targeted activities. It also aims to offer peer support from other families in similar situations. The retreat is intended for families with kids ages 10 and…

We hosted this webinar on Wednesday, November 9 at 7 PM. This webinar will created to help our community learn about the genetic counseling field and get a quick refresher on some basic information related to your genes. This provided thought-provoking cases to help you better understand how genetic counselors help those in the bleeding disorders community. In addition, this webinar will you will learn how our community can stay involved and informed as technology and therapeutics improve.   About…

Each Fall, the New England Hemophilia Association (NEHA) hosts our annual meeting, called FallFest. At FallFest, NEHA will provide a wide-range of educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and childcare (0–5 years old). FallFest was held from Saturday, November 12 to Sunday, November 13 at the Four Points by Sheraton Hotel in Norwood, MA. Agenda Overview See our full program and agenda here. Friday, November 11 (optional, unofficial kick-off to FallFest) 6 PM: Welcome Reception…

The Holiday Party is one of our favorite year-end traditions in the New England bleeding disorders community! This was held on Sunday, December 4 at 12 PM at Alnoba in Kensington, NH alongside our friends at the Hemophilia Alliance of Maine (HAM). Families enjoyed a holiday themed lunch, a visit with Santa Claus, arts and crafts activities and much more. Children under the age of 13 received a special present from Santa! This year's presents were bought and donated to…

On Sunday, December 11 at 12 PM, we hosted an afternoon get together featuring lunch and axe throwing for Blood Brothers and Dads in Action. This featured lunch, a short educational presentation on gene therapy, and an exhilarating axe throwing session with a highly skilled coach. On Sunday, December 11 at 12 PM, we are hosting an afternoon get together featuring lunch and axe throwing! Reconnect with us for our first in-person Blood Brotherhood / Dads in Action event since before the…

On Wednesday, December 14, we hosted our final educational webinar of the year! This session was designed for the bleeding disorders community and explored your legal rights in the workplace. It also provided attendees with an overview on health insurance. Our speaker also shared resources for patients on how to afford treatment. A question and answer period followed.   Watch The Recording

The New England Hemophilia Association (NEHA) was proud to partner with Baramor in Newton Centre, MA to raise money for the bleeding disorder community through their draft line dedicated to charity. The "Wicked Strong Family" brew was on tap for the entire month of January 2023! For every pint purchased, Baramor donated $3 to NEHA. The money collected supports our programs and services like our Emergency Assistance Program and Family Camp. Learn About Baramor The New England Hemophilia Association (NEHA)…

On Saturday, January 7, we hosted a dinner for moms who have a child(ren) with a bleeding disorder under the age of 10, in the New England bleeding disorders community. The gathering was held at Baramor in Newton, MA. This was a community driven event being coordinated by hemophilia mom, and NEHA Board member, Kate Bazinsky. Community-driven events are designed by community members with support from NEHA. The goal of these event is to provide a space where moms with…

Our Annual Couples Retreat was held from Saturday, January 21 to Sunday, January 22 at the Newport Harbor Island Resort (formerly Gurney’s) in Newport, Rhode Island. This yearly event helps couples connect for a fun, interactive weekend to help you better navigate the stresses and burdens associated with bleeding disorders. The program included workshops led by professional facilitators, social activities, scheduled free time and more. Our Annual Couples Retreat will be held from Saturday, January 21 to Sunday, January 22 at…