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October 2019

Casino Night

October 18, 2019 @ 6:00 pm - 11:00 pm
Game On, 82 Lansdowne Street Boston, MA 02215 United States

Since 2016, the New England Hemophilia Association has been the beneficiary of a Casino Night. On Friday, October 18, over 100 people enjoyed friendly casino table gambling, delicious food, and great cocktails at Game On at Fenway Park! A special thanks to Jon Taylor, a financial advisor, for putting this event together, which is 100% supported by local startup companies and entrepreneurs. Since the event began in 2016, over $20,000 has been raised for NEHA's programs and services. Check Back…

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FallFest

October 26, 2019 - October 27, 2019
Crowne Plaza, 801 Greenwich Avenue Warwick, RI 02886 United States
Free

Each Fall, the New England Hemophilia Association (NEHA) hosts our annual meeting, called FallFest. This is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). In 2019, over 300 community members and industry partners attend FallFest in Warwick, RI at the Crowne Plaza Hotel from Saturday October 26 to Sunday, October 27! Our Keynote speaker was Heather Abbott, a survivor of the Boston Marathon bombing. She gave an inspirational…

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Halloween, Hollywood and Hemophilia Trivia at Baramor

October 29, 2019 @ 7:30 pm - 9:30 pm
Baramor, 45 Union Street Newton Centre, MA 02459 United States
$5

The New England Hemophilia Association (NEHA) and Baramor will be hosting a Trivia Night! Put your trivia skills to the test with us on Tuesday, October 29 from 7:30 PM - 9:30 PM while you try the "Wicked Strong Family Brew" and order from their delicious menu! Come as a pair or bring a team of up to six people to compete for three great prizes! Tickets for Trivia are only $5 per person.   Buy Tickets to Trivia Here…

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November 2019

von Willebrands Retreat

November 9, 2019 @ 8:00 am - 5:00 pm
Sheraton Portsmouth, 250 Market Street Portsmouth, NH 03801 United States

This retreat is focused solely on families living von Willebrand's Disease (VWD). Developed with community feedback, this retreat is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. Learn more about this event in 2020 by clicking here.

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Educational Advocacy Dinner

November 13, 2019 @ 6:00 pm - 8:00 pm
The Common Man, 25 Water St Concord, NH 03301 United States

Individuals and families like you can make a huge impact when it comes to shaping public policy. Your story is powerful, and we want to help you share it. On Wednesday, November 13 from 6:00 PM to 8:00 PM, NEHA and Takeda are hosting a free Educational Dinner entitled "Self-Advocacy: Sharing Your Story." This discussion will focus on understanding and practicing self-advocacy and how to build the confidence you need to speak up for yourself as an advocate. This talk…

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Educational Webinar: Genetic Counseling

November 19, 2019 @ 7:00 pm - 8:00 pm

The New England Hemophilia Association (NEHA) is hosting an Educational Webinar on Tuesday, November 19 at 7 PM. In this webinar, Janelle Shea, NEHA Intern and Boston University genetic counseling graduate student, will explain the the history of genetic counseling, share some thought-providing cases, and help you better understand how genetic counselors can help those in the bleeding disorders community. In addition, you will learn how you can stay involved and informed as technology and therapeutics improve.   Sign Up…

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Family Educational Cooking Class

November 20, 2019 @ 6:00 pm - 9:00 pm
Taste Buds Kitchen, 14 High Street North Andover, MA 01845 United States

Maintaining a proper diet is key to managing your bleeding disorder. The New England Hemophilia Association is happy to partner with CSL Behring to host an educational cooking class on Wednesday, November 20 from 6 PM - 9 PM at Taste Buds Kitchen in North Andover! Dr. Diane Dimon, CSL Behring Common Factors Advocate and founder and director of Matters of the Mind, will  teach us about mindful eating while we whip up some culinary masterpieces! This program is open to adults and families (children…

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December 2019

Ugly Sweater Holiday Party

December 1, 2019 @ 12:00 pm - 4:00 pm
Alnoba, 24 Cottage Road Kensington, NH 03833 United States

Our Ugly Sweater Holiday Party is an annual tradition here at NEHA! Here, families enjoy a holiday themed lunch, a visit with Santa Claus, arts and crafts and much more! All children under the age of 10 also receive a present from Santa! All presents are bought by NEHA and are wrapped by volunteers through Boston Cares, a non profit that connects volunteers to service opportunities in the Greater Boston area. More information on this event in 2020 will be…

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Educational Webinar: Copay Accumulators and Maximizers

December 10, 2019 @ 7:00 pm - 8:00 pm

The New England Hemophilia Association (NEHA) and the New England Bleeding Disorders Advocacy Coalition (NEBDAC) hosted an education webinar to help our community members better understand what copay accumulators and maximizers are. These harmful programs allow Pharmacy Benefit Managers to draw down the full value of the co-pay manufacturer card while still requiring the patient to pay co-pays and other out of pocket expenses up to the yearly out-of-pocket maximum. During this webinar, Kollet Koulianos, MBA, Senior Director Payer Relations at…

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Educational Dinner: Cognitive Conversations

December 12, 2019 @ 6:30 pm - 8:30 pm
Waterman Grille, 4 Richmond Square Providence, RI 02906 United States

The New England Hemophilia Association was happy to partner with Sanofi Genzyme to host this educational dinner on Thursday, December 12 at Waterman Grille in Providence, RI! This ground-breaking program explained how different parts of our brain work and why we make the choices we do. This presentation also explored insights from the field of behavioral science and how they can be applied in conversations and behaviors related to managing Hemophilia. This interactive program was presented by facilitators Gretchen Hover and…

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