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July 2020

Educational Webinar – Understanding Research: It Starts with a Zebrafish

July 22 @ 7:00 pm - 8:00 pm

This was the third event during our Virtual Consumer Medical Symposium. To learn more about this virtual series of events, please click here.   About This Webinar This webinar was held on Wednesday, July 22 at 7 PM ET. This presentation explained the importance of Zebrafish related to bleeding disorders treatment and will introduce you to the Judith Graham Pool Research Fellowship. In 2019, NEHA made a large financial contribution to support this program and the great work it does…

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The Great Northeast Jeoparody Challenge

July 23 @ 7:00 pm - 8:00 pm

On Thursday, July 23 at 7 PM, NEHA took part in the Great Northeast Jeoparody Challenge! Here, BioMatrix, CSL Behring, and the Executive Directors of 7 Northeastern bleeding disorders chapters went head-to-head in bleeding disorders’ trivia. During some of the gameplay, community members were invited to participate by throwing their knowledge at a struggling Director. Participating chapters included: The New England Hemophilia Association, The Hemophilia Alliance of Maine, the Connecticut Hemophilia Society, the New York City Hemophilia Chapter, the Hemophilia…

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Medical Symposium Interactive Live Sessions

July 25 @ 9:00 am - 11:30 am
United States

This was the fourth event during our Virtual Consumer Medical Symposium. To learn more about this virtual series of events, please click here.   About This Session This live session was held on Saturday, July 25 from 9 AM to 11:30 AM and included educational sessions to help you understand more about health insurance, and the psychosocial impact of processing changes. Following these sessions, participants attended two industry breakout sessions where they enjoyed presentations about the each company' products, therapies,…

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Virtual Chat: Families

July 28 @ 8:30 pm - 9:30 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Tuesday, July 28, we hosted a Virtual Chat for Families in our community. From distance learning, to preparing multiple meals and finding time for your own work and self-care, many parents are feeling overextended. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques…

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August 2020

BLeaders Teen Retreat

August 3 @ 6:00 pm - August 4 @ 8:00 pm
NH United States

This event was originally scheduled to take place from July 27 - July 28, but was moved to a virtual event.   About the BLeaders Teen Retreat Our 5th Annual BLeaders Teen Retreat was held virtually on Monday, August 3 and Tuesday, August 4. This program was open to all teens with a bleeding disorder (ages 13-18) living in any of the six New England states and their siblings.  The program offered: Life skills development activities, Opportunities to expand leadership…

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Virtual Walk Kick-Off

August 4 @ 8:00 pm - 9:00 pm

This year, due to COVID-19, we are hosting our first-ever Virtual UNITE Walk on Saturday, September 26! Read our announcement here. While the finish line may look different this year, our mission remains the same. We are Wicked Strong. Together. In order to give you more information and to answer your questions about our Virtual Walk, we hosted a Virtual Walk Kick-Off on Tuesday, August 4. Here, we shared our plan, discussed how to fundraise in a virtual setting, heard advice…

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Women’s Retreat

August 14 @ 8:00 pm - 9:30 pm
CT United States

This event was originally scheduled to take place from September 25 – September 27, but was moved to a virtual event.   About The Women's Retreat Our Virtual Women's Retreat was held on Friday, August 14. This annual event brings together females (ages 18+) with a bleeding disorder, carriers, and caregivers living in New England. The retreat featured a distance reiki session, small group discussions, and attendees received a special package with items to help with self-care! Event Sponsors We…

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Falmouth Road Race

August 15 - August 29

For the third year in a row, NEHA was selected as a non-profit partner of the New Balance Falmouth Road Race. While this race was supposed to take place in-person, this took place as an At-Home Competition. From August 15 to August 29, the ten runners on Team NEHA were challenged to run seven miles anywhere they wanted. So far, over $11,000 has been raised during this event! These funds will ensure New England families have continued access to programs…

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Back To School Community Chat

August 19 @ 8:00 pm - 9:00 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Wednesday, August 19, we hosted a Virtual Chat focused on going back to school for parents with kids of all ages. A school psychologist, school nurse, and teacher, guided our conversation around helping families transition to a new learning environment. This virtual chat allowed parents to ask questions and connect from others facing similar changes and challenges. Speakers Included: Kathy Secinaro, certified school psychologist…

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September 2020

Virtual Chat: Dads in Action & Blood Brothers

September 3 @ 8:00 pm - 9:00 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Thursday, September 3, we hosted a special virtual chat for both Dads and Blood Brothers (men with a bleeding disorders ages 16 and over). This informal conversation allows you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques to help us stay connected virtually.

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