Advocacy is a key part of the New England Hemophilia Association’s mission. In 2016, the New England Bleeding Disorders Advocacy Coalition (NEBDAC) formed to address a key missing infrastructure: a collaborative advocacy effort across all six states. This is a joint effort between the New England Hemophilia Association (NEHA), Hemophilia Alliance of Maine (HAM), and Connecticut Hemophilia Society (CHS).
Advocacy is “the act of pleading or arguing in favor of something, such as a cause, idea, or policy.” There are many types of advocacy, including:
Influencing state and federal lawmakers to pass legislation that supports our goals or to oppose legislation that is harmful to our community. This includes safe product advocacy.
State Agency Advocacy
Working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community.
Monitoring individual insurance agency and the state’s Department of Insurance practices that affect the bleeding disorders community.
Addressing school and workplace issues facing our families, individuals, and children.