What Is Advocacy?

Advocacy is “the act of pleading or arguing in favor of something, such as a cause, idea, or policy.” Advocacy can take place in many different ways.

Advocacy is a key part of the New England Hemophilia Association’s mission. In 2016, the New England Bleeding Disorders Advocacy Coalition (NEBDAC) formed to create a collaborative advocacy effort across all six states. This is a joint effort between the New England Hemophilia Association (NEHA), Hemophilia Alliance of Maine (HAM), and Connecticut Hemophilia Society (CHS).

Virtual Advocacy Resources

As a result of the COVID-19 public health emergency, many of our in-person advocacy events were transitioned to a virtual setting. While these current conditions limited us from meeting face-to-face, our advocacy work must continue.

Types of Advocacy

  • Legislative Advocacy: Influencing state and federal lawmakers to pass legislation that supports our goals or to oppose legislation that is harmful to our community. This includes safe product advocacy.
  • State Agency Advocacy: Working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community.
  • Insurance Advocacy: Monitoring individual insurance agency and the state’s Department of Insurance practices that affect the bleeding disorders community.
  • Personal Advocacy: Addressing school and workplace issues facing our families, individuals, and children.

You Can Be An Effective Advocate!

To learn about the NEBDAC Ambassador program, please click here.

For more information about NEBDAC or any of our advocacy efforts, please email Joe Zamboni, NEBDAC’s Coordinator at: [email protected].

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