NEHA works with the New England Bleeding Disorder Advocacy Coalition to define its state policy priorities. Currently, NEBDAC is working to ensure that:
- People with bleeding disorders can get financial assistance from manufacturers’ co-pay assistance programs; and
- Any “fail first” provisions adopted by insurance companies will not apply to factor products, or will include patient protection provisions that ensure continued access to the product that the patient’s physician deems necessary;
- State legislatures/ governors recognize March as Bleeding Disorder Awareness Month.