Policy Priorities

Federal Policy Priorities

NEHA works with our national organizations–the National Hemophilia Foundation and the Hemophilia Federation of America–to develop our Federal advocacy agenda and strategy. Federal policy priorities include support for:

  • federal hemophilia programs;
  • blood and blood product safety;
  • patient access to care; and
  • federally-funded research.

 

State Policy Priorities

NEHA works with the New England Bleeding Disorder Advocacy Coalition to define its state policy priorities. Currently, NEBDAC is working to ensure that:

  • People with bleeding disorders can get financial assistance from manufacturers’ co-pay assistance programs; and
  • Any “fail first” provisions adopted by insurance companies will not apply to factor products, or will include patient protection provisions that ensure continued access to the product that the patient’s physician deems necessary;
  • State legislatures/ governors recognize March as Bleeding Disorder Awareness Month.