Our History

Founded in 1957, The New England Hemophilia Association (NEHA) is a non-profit organization dedicated to improving the quality of life of all persons with bleeding disorders and their families through education, support and advocacy in CT, MA, ME, NH, RI, VT.

Our Staff

Rich Pezzillo
Executive Director

(781) 326-7645 x11
[email protected]

Jill DeVirgilio
Event/Office Manager

(781) 326-7645 x13
[email protected]

Gabrielle Roth
Development Manager

(781) 326-7645 x10
[email protected]

Brandon Greene
Communications/Marketing Manager

(781) 326-7645
[email protected]

Joe Zamboni
Advocacy Coordinator

(207) 318-6158
[email protected]

Board of Directors Officers

Nancy Messina
President
William McCartney
Treasurer
John Bruno
Secretary

Board of Directors Members

Kate Bazinsky, MPH
Peg Geary, MA, MBA, MPH
Margaret Hudlin MD, MHCM
Alan Hurley

To contact the NEHA Board of Directors with thoughts or suggestions, please email: [email protected].

Employment

Program Director

Are you an enthusiastic, passionate leader interested in continuing and establishing innovative educational programming in a community that supports those with a chronic condition? The New Hemophilia Association (NEHA) is seeking to fill our Program Director position with a person like you!

NEHA is a regional advocacy nonprofit that serves all six New England states (RI, CT, MA, NH, VT, and ME) by providing families and individuals with a bleeding education, support, and advocacy.

The Program Director will be responsible for educational curriculum; planning, executing and managing special events which includes 8-12 events per year, which rotate throughout the six New England states. A successful candidate will ensure the delivery of programming continues at the highest quality to meet the needs of the bleeding disorders community.

Essential Duties and Responsibilities:

Leadership

  • Deliver the highest quality events in keeping with our mission, vision and values
  • Take responsibility for innovative programming which continues our dedication to excellence
  • Possess proven decision-making skills which the executive director, board and other staff members can trust
  • Demonstrate courteous, cooperative behavior when interacting with internal and external stakeholders; staff, board, health care providers, community members, pharmaceutical companies, etc.
  • Act in a manner that promotes a harmonious and effective workplace environment
  • Assist in the leadership for program creation, in-service trainings, outreach and presentations to donors, medical providers, and volunteers

Communication

  • Ability to clearly and effectively communicate with all stakeholders; staff, board, health care providers, community members, pharmaceutical companies, etc.
  • Manage multiple priorities, work in a fast-paced environment and remain flexible while being able to report out on projects confidently, at any time
  • Understand the non-negotiable importance of confidential and discreet (often patient related) information
  • Proven experience dealing with tough situations, clearly communicating and delivering results to proceed with positive outcomes
  • Have excellent public speaking skills, with the ability to command and bring a room of people together

Strategic Planning

  • Work closely with the Executive Director to engage in development and long-term planning
  • Take ideas and feedback to turn into action for moving forward and bettering NEHA’s quality of programming
  • Develop and maintain existing relationships with community partners that support NEHA’s growth and development

Data Management

  • Oversee collection and analysis of survey results for programming we host throughout the year
  • Monitor trends and needs based on the aforementioned survey to improve programming
  • Accurately enter patient information into NEHA’s cloud-based database system
  • Share data as needed with board and community members to enhance programming, provide transparency, and assess on-going and evolving program needs

Operations & Fiscal Management

  • Develop content, identify speakers and create curriculum for programs which follows the needs of the community we serve
  • Coordinate volunteers
  • Assume the role of Family Camp Director for the only all bleeding disorders camp in New England
  • Oversee counselor and junior counselor training during the event
  • Develop and revise as necessary all program policies and procedures
  • Participate in the creation of the annual budgets and work plans
  • Assist in the monitoring and adherence to assigned and approved budgets
  • Participate in the acquisition of new and renewed grants

Qualifications:

  • Minimum of a bachelor’s degree
  • Minimum of five years of experience working in a non-profit
  • Travel up to 30% of the time
  • At least three years of management experience
  • Strong leadership skills including professionalism, active listening, critical thinking and effective delegation
  • Ability to work and embrace a changing environment
  • Must have strong meeting, training, facilitating and project management skills
  • Demonstrated experience in service coordination and networking with health care providers
  • Must be independent and self-directed but able to work collaboratively and lead or manage a team
  • Must have a strong understanding of non-profit organizations and the ability to implement/promote best practices
  • Ability to act with integrity and compassion and foster a culture of mission, trust, respect and accountability for outcomes
  • Ability to demonstrate cultural awareness and competency, including the ability to understand, respond and work effectively, with sensitivity toward staff and members from diverse cultures and backgrounds
  • Assess to reliable transportation

Days/Schedule:

  • Full-time exempt position (40 hours/week) (flexible)
  • Position can be remote from home 80% of time and 20% at office in Dedham, MA
  • Must live in New England

How to Apply: 

Submit letter of interest and a resume by end of business by January 17, 2020 to Rich Pezzillo, NEHA Executive Director at [email protected]

NEHA encourages applications from individuals regardless of race, color, ethnic origin, religion, ability and sexual orientation. We thank all applicants for their interest. Only those selected for interviews will be contacted.

Note: No telephone inquiries accepted. Candidates will be subject to a criminal records check (CORI).

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