Educational Webinars and Recordings

Recording sessions during our in-person programs, and hosting entirely-virtual events has allowed us to provide high-quality education, support, and advocacy to our community when meeting in-person was impossible or challenging–whether that is caused by a global pandemic or living in a remote geographic area. Sharing virtual recordings also allows members of our community to get involved and stay educated at any time, regardless of their location.

Use the following buttons to jump to specific topics on this page, or scroll down to view all recordings.

Please note: recordings specific to Von Willebrand Disease, are on their own separate page.

Advancements in Treatment of Bleeding Disorders

This is a recorded session from our 2024 Consumer Medical Symposium. The Speaker is Dr. Larissa Bornikova, MD, Adult Hematologist at Mass General Hospital. This session provided attendees with a broad overview of recently approved products, treatments coming down the pipeline, as well as medical practice updates. Dr. Bornikova also emphasized developments related to the care of women and girls with bleeding disorders and give some highlights on gene therapy.

Medical Panel Discussion & Consumer Q&A

This is a recorded session from FallFest 2023 in Portland, Maine. The panelists are: Katerina Funk, FNP-MSN, Maine Bleeding Disorders Center and Eric Larsen, MD, Maine Bleeding Disorders Center. The panel was moderated by Michael DeGrandpre, NEHA community member.

Our medical provider panel began with a short presentation about topics most requested by attendees when they registered for FallFest: (1) women and bleeding disorders, including identification, diagnosis, and basic care strategies, and (2) the evolution of treatment strategies for hemophilia, and alternative therapies for bleeding disorders.

Current Therapies Panel Discussion

This panel discussion took place during our Virtual Consumer Medical Symposium. This was focused on current treatments for bleeding disorders.

The panel included: Salley Pels, MD, RI Hospital; Jeremy Madrid, MD, Dartmouth Hitchcock; Shelia O’Donnell, APRN-FNP, Maine Medical Center; and Emily Bisson, CPNP-PC, Connecticut Children’s Medical Center.

The Shifting Paradigms of Hemophilia Treatment

Here, Dr. Cathy Rosenfield, MD, formerly at Tufts Floating Hospital for Children before retiring, provided an overview of the current and emerging treatment landscape for people with hemophilia. During this talk, she addressed topics like: the pros and cons of current and emerging therapies, standard and extended half-life factor replacement therapies, subcutaneous therapies, and gene therapy.

Gene Therapy Basics for Hemophilia

This presentation was in partnership with the National Bleeding Disorders Foundation (NBDF), formerly the National Hemophilia Foundation (NHF), and was designed to provide a basic overview of gene therapy for hemophilia in a way that is easy to understand.

Innovations in Care: Gene Therapy

During NEHA’s FallFest, Dr. Stacy Croteau, MD, MMS, attending hematologist at Boston Children’s Hospital, gave an introduction to gene therapy. Due to positive feedback about her presentation, Dr. Croteau, delivered her presentation again during a webinar for all community members to watch. This webinar explains what gene therapy is, the history of this potential treatment, an overview of recent and current clinical studies, and an outlook of what this could mean for those living with hemophilia.

Pros & Cons of Hemlibra Therapy

The U.S. Food and Drug Administration (FDA) recently approved Hemlibra (Emicizumab), a new subcutaneous treatment for hemophilia A with or without inhibitors. To help the bleeding disorders community better understand this therapy, we hosted a webinar with the Boston Hemophilia Center to discuss the pros and cons of this new treatment.

Genetic Counseling and Bleeding Disorders

This webinar will created to help our community learn about the genetic counseling field and get a quick refresher on some basic information related to your genes. This provided thought-provoking cases to help you better understand how genetic counselors help those in the bleeding disorders community. In addition, this webinar will you will learn how our community can stay involved and informed as technology and therapeutics improve.

Medical Marijuana & Pain

As cannabis becomes more mainstream, it is important to understand how those with bleeding disorders may incorporate it as part of their treatment program. This webinar covers the history and legalization of marijuana, legal implications when using and researching cannabis, and specifics on how to access and use cannabis legally.

Understanding Research: It Starts with a Zebrafish

This presentation helped explain the importance of Zebrafish related to bleeding disorders treatment and will introduce you to the Judith Graham Pool Research Fellowship. In 2019, NEHA made a large financial contribution to support this program and the great work it does for our community. This talk also explained different kinds of research, like: market research, HTC research, patient advocacy research and clinical research.

A Patient’s Perspective: Clinical Trials & Emerging Therapies

How do you decide whether or not to participate in a clinical trial? What does informed consent mean? What are good questions to ask your provider about new approved treatments and emerging therapies? These are just some of the questions that were answered by a panel of community members in this educational webinar.

COVID-19 & Bleeding Disorders

This was a recorded session during our Consumer Medical Symposium.

Dr. Leonard Valentino, CEO of the National Bleeding Disorders Foundation, formerly the National Hemophilia Foundation, provided an overview of bleeding disorders and COVID-19, including the effects of the virus and what to know about getting vaccinated.

COVID-19 & Bleeding Disorders

This webinar focused on the Coronavirus (COVID-19) pandemic, and how this relates to the bleeding disorder community and treatment options.

Dr. H. Cody Meissner, MD, Chief of the Division of Pediatric Infectious Disease and Dr. Cathy Rosenfield, Pediatric Hematologist and Associate Professor of Pediatrics came together to facilitate this discussion and to provide resources for our community.