Substance Use & Mental Health Access Coalition

As a founding member of the Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC), the New England Hemophilia Association (NEHA) is leading the way to ensure that all individuals with bleeding disorders have access to appropriate substance use and mental health treatment facilities.

BD SUMHAC now has their own website! Visit for the most up-to-date information from the coalition and for their latest resources.

Coalition Origins

In late 2021, a 20-year-old individual from New England with a bleeding disorder asked their hemophilia treatment center (HTC) for help in finding a residential treatment facility for their substance use disorder (SUD). Although the HTC nurse called many local residential SUD treatment facilities, none of them would take a patient with bleeding disorder who required intravenous (IV) infusion medications during their stay. Without access to appropriate treatment, the patient overdosed and died.

After her patient’s death, the HTC nurse contacted NEHA to help ensure that no one else would be denied access to necessary SUD treatment because of their bleeding disorder. Chaired by a board member, NEHA brought together the Hemophilia Federation of America, the National Hemophilia Foundation, HTC providers, other chapters, and bleeding disorder community members to establish the BD SUMHAC. The mission of the coalition is to advocate for access to appropriate substance use and mental health treatment facilities for all individuals with bleeding disorders. Learn more about the coalition here.

Resources From The Coalition

  • Click here to see resources from BD SUMHAC for Hemophilia Treatment Center (HTC) providers.
  • Click here to see resources for Bleeding Disorder Chapters.

Advocating for Change

The American Society of Addiction Medicine (ASAM) publishes national guidelines for residential SUD treatment facilities. In 2022, they began reviewing these guidelines. Our coalition submitted public comments requesting changes to increase access to residential SUD facilities for patients with bleeding disorders. Below are our communications with ASAM.

Our coalition plans to continue working with ASAM on the revisions until they finalize the criteria in 2023.

Contact Information

If you or a loved one has been denied access to a SUD or MH treatment facility due to their bleeding disorder, please contact the following members of the Coalition to share your denial experience:

  • Kate Bazinsky, Chair, Bleeding Disorders Substance Use and Mental Health Access Coalition: [email protected].