Advocacy Webinars and Recordings

Recording sessions during our in-person programs, and hosting entirely-virtual events has allowed us to provide high-quality education, support, and advocacy to our community when meeting in-person was impossible or challenging–whether that is caused by a global pandemic or living in a remote geographic area. Sharing virtual recordings also allows members of our community to get involved and stay educated at any time, regardless of their location.

Topics include:

  • Reviewing your legal rights as a patient
  • Copay accumulator adjusters vs. maximizers
  • Tips and tricks to help you connect with lawmakers and elected officials
  • The difference between IEPs, IHPs and 504 Plans for kids in school

Legal Rights & Health Insurance

This webinar was designed for the bleeding disorders community and explored your legal rights in the workplace. It also provided attendees with an overview on health insurance. Our speaker also shared resources for patients on how to afford treatment. A question and answer period followed.

Accumulator Adjusters

The webinar aimed to improve your understanding of copay accumulator adjusters. In the presentation, our speaker explained the harm they posed to families, discussed preventive measures, and outlined steps you could take if your insurance plan had implemented these detrimental practices.

Difference Between Copay Accumulators & Maximizers

The webinar explains the difference between copay accumulators and maximizers, outlining why they were harmful to families and describing preventive measures. It also provides guidance on what you could do if your insurance plan had implemented one of these detrimental practices.

Connecting With Your Elected Officials

While this webinar was originally created to help you connect with your elected officials during the COVID-19 pandemic, the information shared is still relevant now that restrictions are lifted. Massachusetts State Representative, Joseph McKenna, also joined us to provide insight into the lawmaking process and to explain why connecting with lawmakers is so important.

IEP & 504 Discussion

This webinar provides explanations of IEPs, IHPs and 504 Plans. At the beginning of each school year, it is vital for parents and caregivers to have conversations with their child’s teachers, guidance counselors, and school nurses about their child’s bleeding disorder and how this may impact their learning. For more resources regarding IEPs, 504 Plans, and other back to school resources, visit our Back To School Toolkit by clicking here.