The National Hemophilia Foundation Has a New Name
News and Stories
News and Stories
The stories on this page are a combination of community member highlights, event and fundraiser recaps, advocacy updates, personal stories, announcements, educational articles, research studies, volunteer recognition, and more. Most stories below are pulled from our printed newsletters.
If you are interested in writing an article to an upcoming publication, please contact us.
Medical Advisory: Notice Regarding BAXJECT® II Reconstitution Devices
Why I Run
Regional Update: Hemophilia Alliance of Maine (HAM)
Mystery Bruises Reveal Rare Severe Hemophilia A Diagnosis – WCVB 5 Boston
Opinion: Insurer Double Dipping Comes At Cost To Patients
Regional Update: Connecticut Hemophilia Society (CHS)
Coalition Advocates for Substance Use Disorder/Behavioral Health Services for Patients With Bleeding Disorders
Celebrating BDAM in Massachusetts
Making The Walk Magical
Gene Therapy: An Oasis or Mirage?
Cómo Encontramos a NEHA
Our Journey Finding NEHA
PTSD & Bleeding Disorders: What Does It Mean
The 5 Ws of the NEHA Board Advisory Council
Finding Our Wicked Strong Family
Support In Every Stitch
The Deciding Factor
Lawson’s Story
Hiking With Hemophilia
Inspiring Shots
Lacing Up To Raise Awareness
Coping Tools For The Here And Now