Kenneth Wagg

Ken became familiar with the bleeding disorder community in 2000 when he began working as a pharmacist with a specialty pharmacy. Although he did not have a family history of a bleeding disorder, he was quickly welcomed into the community and found his niche working with patients, summer camps, and education. Having already practiced pharmacy for twenty years at that point, he had never been invited by any patients to their family’s graduation party or wedding—but this community was different.

His career in the bleeding disorder community took him across the U.S. and even overseas. He retired at the end of 2024 after spending four years working with the Rhode Island Hemophilia Treatment Center. Throughout his career, he served as a song leader for summer camps, a camp director, and an advocate for patients. He engaged with insurance companies, worked with the high risk pool community when insurance companies had lifetime maximums, educated nurses, pharmacists, and doctors, and even walked the halls of the U.S. Congress and Senate advocating for bleeding disorders.