The New England Hemophilia Association (NEHA) is partnering with the Hemophilia Alliance of Maine (HAM) and the Connecticut Hemophilia Society (CHS) to host a two-part workshop, titled "Less Stress: Let’s Calm The Monkey Mind." Have you ever noticed the constant chatter going on in your mind? Want to turn down the volume on anxiety and worry? Attendees will learn about the concept, "the monkey mindset," and how it creates excessive stress and worry, the parts of an anxiety cycle, and…

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, March 5 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here

Join us for an interactive cooking demonstration on Sunday, March 7 at 5 PM. Attendees are encouraged to participate in this webinar from their kitchen, as our instructor demonstrates how to make chicken tortilla soup. In addition to a great meal, you will gain a better understanding of how to easily create a wholesome dinner and more about the components of food to balance out an entire day’s nutrition. See how specific patterns in the diet may also impact areas…

Our Consumer Medical Symposium was created five years ago to help you better understand what current and potential medical advancements, including gene therapy, may mean for you and your family. Presentations will include information about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. This will also include information about insurance barriers and trends, as well as a forum about the psychosocial and emotional implications of change. Agenda Overview Beginning on Wednesday, March 10, this month-long, virtual event will…

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, April 2 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here

Join us for our Virtual Couples Retreat on Friday, April 9 from 8 PM to 9:30 PM. During this event, couples will connect via Zoom for a fun, interactive evening of games and education. This event will help couples better navigate the stresses and burdens associated with bleeding disorders. A detailed description of the session and speakers will be released soon.   Registration This event is open only to 2021 NEHA Members. To become a member, or to request a…

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, May 7 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here

The New England Hemophilia Association (NEHA) will host a virtual Newly Diagnosed Families Retreat on Saturday, May 15. This retreat was created to help new members of our community meet and connect with other new families. The objective of the program is to serve as touchpoint for families who have young children who were recently diagnosed and/or have children under the age of 6, connect new families to NEHA, share resources, and provide tailored, smaller events specifically to meet the…

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, June 4 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here

NEHA’s staff, board of directors, and healthcare advisors are closely monitoring the ongoing COVID-19 pandemic. We are currently planning to host this event in-person on Saturday, July 24. As we get closer to the program, a decision will be made with the community’s safety our top priority on keeping this as an in-person event or transitioning to a virtual platform. Please check back regularly to this page as more information will be released.   Our 4th Annual von Willebrand’s Retreat…