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April 2020

Educational Webinar: Communicating in the Era of Social Media

April 1 @ 7:00 pm - 8:00 pm

This is the second event in our Webinar Wednesday Series. Throughout this series, we will be hosting a live webinar or group video hangout every Wednesday evening about various topics of interest and importance in our community. On Wednesday, April 1 at 7PM ET, we will be hosting "Sense, Nonsense, Science: Communicating in the Era of Social Media." The discussion will help you understand medical facts, like information about COVID-19, during a time when social media is the source of…

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Virtual Coffee Cafe: Women’s Chat

April 2 @ 9:30 am - 10:30 am

On Thursday, April 2 at 9:30 AM ET we are hosting a Virtual Coffee Cafe for Moms and Women with a bleeding disorder! We created Virtual Coffee Chats to allow our community members to stay connected during this public health emergency. The discussion will be led by Allison Harrison, MSW, a social worker with the Hemophilia Federation of America (HFA). Register Here

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POSTPONED: World Hemophilia Day

April 17 @ 6:00 pm - 8:30 pm
MA United States

*** This event has been postponed due to the Coronavirus (COVID-19) *** Please check back soon for an update.   We were proud to recognize the 30th Annual World Hemophilia Day in 2020! This event will take place on Friday, April 17. This will include a free dinner and activities for the entire family. To learn more about World Hemophilia Day, click here! More information on this event will be released soon. Registration Will Open Soon

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POSTPONED: Couple’s Retreat

April 18 @ 9:00 am - April 19 @ 11:30 am
Gurney’s Newport Resort, 1 Goat Island Newport, RI 02840 United States

*** This event has been postponed due to the Coronavirus (COVID-19) *** Please check back soon for an update.   Our 2020 Couple's Retreat will be held at the beautiful Gurney's Newport Resort in Newport, RI from Saturday, April 18 to Sunday, April 19! The program includes a day and a half workshop led by professional facilitators meant to help couples better navigate the stresses and burdens associated with bleeding disorders.   Registration This event is only open to 20 couples in…

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May 2020

Best Bloody Mary Competition

May 2 @ 11:00 am - 2:00 pm
Roger Williams Park Casino, 1000 Elmwood Ave Providence, RI 02907 United States

After three extremely successful sold-out Best Bloody Mary competitions in Providence, RI the New England Hemophilia Association (NEHA) is excited to bring back this battle of the bartenders on Saturday, May 2 from 11 AM - 2 PM at the Roger Williams Park Casino! We are expecting this competition to sell out quickly. Tickets will include tasting of bloody marys with their own mix, spices, and garnishes whipped up by local bartenders! Your ticket will allow you to vote for your favorite bloody mary and…

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POSTPONED: Massachusetts Advocacy Days

May 11 @ 5:30 pm - May 12 @ 2:00 pm
AC Marriott Hotel, 95 Station Landing Medford, MA 02155 United States

*** This event has been postponed due to the Coronavirus (COVID-19) *** Please check back soon for an update.   For over six decades, advocacy has been the heartbeat of everything we do. As part of the New England Bleeding Disorders Advocacy Coalition (NEBDAC) initiative, we are excited to host our 4th Massachusetts Advocacy Days from Monday, May 11 at 5:30 PM to Tuesday, May 12 at 2:00 PM, for Massachusetts residents living with a bleeding disorder. Families with kids of all ages are strongly encouraged…

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June 2020

11th Annual Unite Walk

June 13 @ 8:30 am - 2:00 pm
Prowse Farm, 5 Blue River Hill Road Canton, MA 02021 United States

The New England Hemophilia Association (NEHA) hosts an Annual Walk to bring together the community and supporters to raise funds for the bleeding disorders community. This year, we invite you to join us at Prowse Farm in Canton, MA on Saturday, June 13 for our 11th Annual Unite Walk! Last year, we broke a national record: Nearly 2,000 walkers raised an unbelievable total of over $450,000 for our community! This is the most money ever raised at a walk in the…

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Family Camp

June 24 - June 27
Geneva Point Conference Center, 108 Geneva Point Rd Moultonborough, NH 03254 United States

Since 1992, NEHA has offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. This event focuses on 2 key goals: increasing and enhancing self-infusion skills, and community building. Family Camp will be held from Wednesday, June 24 to Saturday, June 27 at the Geneva Point Center on Lake Winnipesaukee in Moultonborough, New Hampshire. Now serving 77 families (300+ individuals) annually, NEHA's Family Camp has earned support from…

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July 2020

von Willebrands Retreat

July 18 @ 8:00 am - 5:00 pm
Providence Marriott Downtown, 1 Orms St Providence, RI 02904 United States

We are happy to host a retreat for families living von Willebrand's Disease (VWD). Please join us at the Providence Marriott Downtown in Providence, RI on Saturday, July 18. This retreat was developed with community feedback, and is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. More information will…

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BLeaders Teen Retreat

July 27 @ 9:00 am - July 28 @ 4:00 pm
The Browne Center, 340 Dame Road Durham, NH 03824 United States

This summer, NEHA is hosting our 5th Annual BLeaders Teen Retreat at The Browne Center for Innovative Learning in Durham, NH from Monday, July 27 to Tuesday, July 28. This retreat is open to all teens with a bleeding disorder (ages 13-18) living in any of the six New England states and their siblings. The program offers: educational and skill development activities, a high ropes course, opportunities to expand leadership skills, group infusion classes, and much more! More information will…

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