This year, we are partnering with the Hemophilia Alliance of Maine (HAM) and the Connecticut Hemophilia Society (CHS) to celebrate the 31st Annual World Hemophilia Day. Join us on Saturday, April 17 at 7PM for the celebration! This virtual event offers an opportunity to connect with others from our New England bleeding disorders family on this special day. All-ages are welcome to attend. Attendees will complete a vision board activity about your hopes for the bleeding disorders community with supplies…

Throughout our Webinar Wednesday Series, we will be hosting a live webinar on Wednesday evenings at 7 PM about various topics of interest and importance in our community. To watch one of our previous webinars, click here.   About This Webinar This webinar is on Wednesday, April 28 at 7 PM, for a presentation focused on helping families care for their bleeding disorder at home. During this session, our speaker with highlight the diversity of home infusion experiences and share strategies…

Throughout our Webinar Wednesday Series, we will be hosting a live webinar on Wednesday evenings at 7 PM about various topics of interest and importance in our community. To watch one of our previous webinars, click here. This webinar will take place on Wednesday, May 5 at 7 PM. This presentation will walk you through the journey that started over 50 years ago with the beginnings of gene therapy research. We will review the basics of genetics and how that plays…

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, May 7 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here

The New England Hemophilia Association (NEHA) will host a virtual Newly Diagnosed Families Retreat on Saturday, May 15 from 9 AM to 11:30 AM. This event was created to bring families together in a relaxed setting to ease the anxiety surrounding a bleeding disorder diagnosis and offer peer support from other families in similar situations. The retreat is intended for families with kids ages 10 and under who have been diagnosed with a bleeding disorder.   Agenda The Retreat will feature three…

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, June 4 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   Our 4th Annual von Willebrand’s Retreat will take place on Saturday, July 24. This event was focused solely on families living von Willebrand’s Disease (vWD). Developed with community feedback, this virtual event will be led by professional…

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   About the BLeaders Teen Retreat Our 6th Annual BLeaders Teen Retreat will be held virtually on Monday, July 26 and Tuesday, July 27. This program will be open to all teens with a bleeding disorder (ages 13-18)…

We are partnering with Save One Life to host Wheels of the World NEHA Day on Sunday, August 1! Join Team NEHA on the East Bay Bike Path for a socially distant 40-mile bike ride to raise money for Save One Life and NEHA's Emergency Assistance Program. Riders will meet at India Point Park in Providence at TIME on Sunday, August 1. The scenic and ocean-front bike path is 20 miles in each direction running from Providence to Bristol along…

Since 1992, NEHA has offered a Family Camp program to anyone with a bleeding disorder who receives care New England. This event focuses on achieving two key goals: increasing and enhancing self-infusion skills, and community building. NEHA’s Staff, Board of Directors and Medical Team are closely monitoring the COVID-19 situation. Right now, we are planning to host an in-person Family Camp from August 14 to August 21. If Camp is held in-person at Geneva Point, we will provide an update…