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December 2019

Educational Webinar: Copay Accumulators and Maximizers

December 10 @ 7:00 pm - 8:00 pm

The New England Hemophilia Association (NEHA) is happy to host an education webinar titled, "Copay Accumulators and Maximizers: What's the Difference?" Please join us for this webinar on Tuesday, December 10 at 7 PM to learn more about this important topic. Pharmacy Benefit Managers (PBMs) are continuing to implement “accumulator adjusters" and “accumulator maximizers." These harmful programs allow the PBM to draw down the full value of the co-pay manufacturer card while still requiring the patient to pay co-pays and…

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Educational Dinner: Cognitive Conversations

December 12 @ 6:30 pm - 8:30 pm
Waterman Grille, 4 Richmond Square Providence, RI 02906 United States

This ground-breaking program will explain how different parts of our brain work and why we make the choices we do. We’ll explore insights from the field of behavioral science and how they can be applied in conversations and behaviors related to managing Hemophilia. The New England Hemophilia Association is happy to partner with Sanofi Genzyme to host this educational dinner on Thursday, December 12 at 6:30 PM at Waterman Grille in Providence, RI! This interactive program will be presented by…

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February 2020

Winter Camp

February 14, 2020 @ 5:00 pm - February 16, 2020 @ 2:00 pm
Camp Mechuwana, 93 Holmes Road Winthrop, ME 04364 United States

The Hemophilia Alliance of Maine (HAM) and the New England Hemophilia Association (NEHA) are excited to host Winter Camp at Camp Mechuwana in Winthrop, Maine from Friday, February 14 to Sunday, February 16. Winter Camp is a weekend of fun, engaging, and intergenerational outdoor programming that includes ice fishing and snow shoeing, sled dog rides, and lots of outdoor activities! Please note that registration will be open until Wednesday, January 15 at 5 PM.   Learn More and Register Here  …

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March 2020

New Families Retreat

March 7, 2020 @ 8:00 am - 5:00 pm
Sheraton Springfield Monarch Place Hotel, One Monarch Place Springfield, MA 01144 United States

NEHA will be holding our 2020 New Families Retreat at the Sheraton Springfield Monarch Place Hotel in Springfield, MA on Saturday, March 7. This retreat was created last year after new members of our community requested this type of retreat to meet and connect with other new families. The objective of the program is to: serve as touchpoint for families who have young children who were recently diagnosed connect new families to NEHA share resources provide tailored, smaller events specifically…

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Consumer Medical Symposium

March 27, 2020 @ 8:30 am - March 28, 2020 @ 5:30 pm
Sheraton Hartford South Hotel, 100 Capital Blvd Rocky Hill, CT 06067 United States

NEHA is happy to host our 4th Annual Consumer Medical Symposium in at the Sheraton Hartford South Hotel in Rocky Hill, CT from Saturday, March 27 - Sunday, March 28. This event is intended to recognize March as Bleeding Disorders Awareness Month and to help you understand what these potential medical advancements may mean for you and your family. Here, information will be presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. The goals of this meeting…

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April 2020

World Hemophilia Day

April 17, 2020 @ 6:00 pm - 8:30 pm
MA United States

We were proud to recognize the 30th Annual World Hemophilia Day in 2020! This event will take place on Friday, April 17. This will include a free dinner and activities for the entire family. To learn more about World Hemophilia Day, click here! More information on this event will be released soon. Registration Will Open Soon

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Couples Retreat

April 18, 2020 @ 9:30 am - April 19, 2020 @ 11:30 am
Gurney’s Newport Resort, 1 Goat Island Newport, RI 02840 United States

Our 2020 Couples' Retreat will be held at the beautiful Gurney's Newport Resort in Newport, RI from Saturday, April 18 to Sunday, April 19! This retreat includes a day and a half workshop led by professional facilitators. Attendees will also receive a complimentary hotel room on Saturday, April 18 and all meals on Saturday and Sunday morning are included! More information will be released soon. Registration Will Open in Spring of 2020

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May 2020

Best Bloody Mary Competition

May 2, 2020 @ 11:00 am - 2:00 pm
RI United States

The New England Hemophilia Association (NEHA) will be hosting our 3rd Annual Providence’s Best Bloody Mary Competition in Providence, RI on Saturday, May 2. Competing bartenders are invited to compete for free and are granted a table at the event where they can create their unique bloody mary concoctions with their own mix, spices, and garnishes. All competitors will be provided with vodka from event partner Tito’s Handmade Vodka. More information will be released soon. Ticket Sales Will Begin Soon…

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June 2020

11th Annual Unite Walk

June 13, 2020 @ 8:30 am - 2:00 pm
Prowse Farm, 5 Blue River Hill Road Canton, MA 02021 United States

The New England Hemophilia Association (NEHA) hosts an Annual Walk to bring together the community and supporters to raise funds for the bleeding disorders community. This year, we invite you to join us at Prowse Farm in Canton, MA on Saturday, June 13 for our 11th Annual Unite Walk! Last year, we broke a national record: Nearly 2,000 walkers raised an unbelievable total of $431,321 for our community! This is the most money ever raised at a walk in the history…

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Family Camp

June 24, 2020 - June 27, 2020
Geneva Point Conference Center, 108 Geneva Point Rd Moultonborough, NH 03254 United States

Family Camp 2020 will be held at the Geneva Point Center in Moultonborough, NH from Wednesday, June 24 to Saturday, June 27.  Since 1992, NEHA has offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. This event focuses on 2 key goals: increasing and enhancing self-infusion skills, and community building. Now serving 77 families (300+ individuals) annually, NEHA's Family Camp has earned support from many of the…

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