The application process for Family Camp 2019 has closed. If you wish to be added to the wishlist, please email Heather Case, NEHA Family Camp Director, at hcase@nehemophilia.org. About Family Camp Since 1992 we have offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. Now serving 77 families (300+ individuals) annually, Camp has earned support from many of the providers of our local Hemophilia Treatment Centers. Family Camp…

Join us on Saturday, July 27 from 6–10 PM at the historic MIT Endicott House in Dedham, MA for a Murder Mystery Dinner! This year's show will be hosted by the Italian "Mob Fellas" and will feature Boston's notorious criminals. Tickets includes the show, a full dinner and one drink ticket. Don't wait to get your tickets as this event will fill up quickly: https://nehamurdermystery2019.eventbrite.com

Our annual Women's Retreat at the beautiful the Guest House Retreat and Conference Center in Chester, CT is from Friday, August 2 through Sunday, August 4. This year we are proud to collaborate with the Connecticut Hemophilia Society on this retreat. This important event brings together females (ages 18+) with any type of a bleeding disorder, carriers, and caregivers living in New England. The weekend will feature team building activities, health and wellness workshops, breakout sessions, and much more! The…

Building on the success of the Adventure Club and Junior Counselor programs at NEHA Family Camp, this two-day, 1 night program offers young adults with a bleeding disorder and their siblings (ages 13-19) an opportunity to expand their leadership skills, participate in educational activities designed specifically for teens that include: a high ropes course, skill development activities, campfire, group interaction, infusion sessions, etc. Join us on Tuesday, August 13 through Wednesday, August 14 for this unique event at the Browne…

Calling All Runners!   For the second year in a row, we have been selected as a non-profit partner to participate in the 45th Annual New Balance Falmouth Road Race on Sunday, August 18th. This beautiful seven–mile road race begins in Woods Hole and runs along scenic Cape Cod, ending at the beach in Falmouth Heights. This race sells out each year with more than 11,000 runners! We are fortunate to have five spots for Team NEHA. See the course map. Participants must commit…

Planning and preparations are underway for our 29th Annual Golf Tournament and Auction! The beautiful Cyprian Keyes Golf Club in Boylston, MA will once again host our event on Monday, September 9, 2019 from 8:30 AM – 3:00 PM.  Join us on the course as an individual, or, bring three family members or friends to make it a foursome! Your participation includes: breakfast and lunch, 18 holes of golf, a golf-cart, and a goodie bag. Each golfer that plays in the NEHA Tournament…

First Connections is a new NEHA program dedicated to families who are recently diagnosed and new to the community. The objective of the program is to * serve as touchpoint for families who have young children who were recently diagnosed * connect families to NEHA * share resources * provide tailored, smaller events specifically to meet the needs of newly diagnosed families. One aspect of the First Connections program in 2019 is a collaboration with PEP.  PEP stands for Parents…

Each year, NEHA is proud to offer programming specific to our Hispanic community. In 2018, nearly 60 individuals attended our annual Hispanic Heritage Month Event.  The conference is filled with educational opportunities for community members to learn and connect with others.  All educational sessions are presented in Spanish only. Our Annual Hispanic Heritage Month Event takes place on Saturday, September 28, 2019.  The entire event is in Spanish with multiple presentations and exhibits focused on our Spanish-speaking community. The event…

Educational Programing FallFest is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). Highlights include: Providers from New England Hemophilia Treatment Centers (HTCs) will give an important update about medical advancements NEHA's Annual Meeting 2019 volunteer awards A family friendly dinner  And much more! Keynote Speaker FallFest offically begins with check-in at 7:30 AM on Saturday, October 26th.  The keynote talk will be on Saturday, October 26th at…

A New Program For The VWD Community We are thrilled to announce our 2nd Annual von Willebrand's Retreat. This event is focused solely on families living von Willebrand's Disease (VWD). Developed with community feedback, this retreat led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. A formal agenda will be…