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June 2023
Moms’ Dinner
On Saturday, June 3 from 5 PM to 8 PM, we are hosting a dinner for moms who have someone with a bleeding disorder in their family, from the New England area. The gathering will be held at The Rusty Rail Tavern in Deep River, CT. Dinner and dessert will be provided by NEHA. The Rusty Rail also offers corn hole, giant connect four, and has live entertainment. Parking is free. This is a community driven event being coordinated by…
Boston’s Best Bloody Mary
After hosting sold-out Best Bloody Mary competitions in Providence, RI, Burlington, VT, and virtually during the pandemic, we are excited to bring our Best Bloody Mary Competition to Newton, MA! Join us on Sunday, June 4 from 11 AM - 2 PM at Baramor in Newton Centre, MA to raise funds and awareness for bleeding disorders while also helping us decide which Boston-area bar can pour the best bloody mary! Logistical Information Date: This will be held on Sunday, June…
WooSox Game
We’re taking you out to the ballgame! Join us on Sunday, June 11 for lunch at the famous George’s Coney Island followed by a ballgame as the Worcester Red Sox (WooSox) take on the Rochester Red Wings at Polar Park in Worcester, MA. Agenda 10:30 AM - Arrive at George's Coney Island (158 Southbridge Street, Worcester, MA 01608). Short-term, temporary parking is available at the restaurant, but cars can not be left after lunch while the game is going on. We…
Family Camp
NEHA's 31st Annual Family Camp will be held from Wednesday, June 28 to Saturday, July 1 at Geneva Point Center on Lake Winnipesaukee in Moultonborough, New Hampshire.Since 1992, NEHA has offered Family Camp to anyone with a bleeding disorder who receives care in one of the six New England states. Through Camp, we aim to accomplish two goals: increasing and enhancing self-infusion skills and building strong connections within our community.For more than thirty years, even during a global pandemic, the purpose…
July 2023
Gettin’ in the Game Junior National Championship
Each Fall, CSL Behring hosts the Gettin’ in the Game Junior National Championship (JNC): the first national, and currently the only, sports competition for children with bleeding disorders. At the games, participants will have the opportunity to learn the fundamentals of their respective sport, participate in friendly competition, and have a chance to connect with fellow members of the bleeding disorders community from across the country. About the JNC The Junior National Championship is held from October 6 to October…
Family Day at Canobie Lake Park
On Saturday, July 15, we are hosting a Family Fun Day at Canobie Lake Park in Salem, NH! The goal of this event if to help families from the New England bleeding disorders community come together to connect with one another while enjoying a fun day at the park. Agenda Overview 11:30 AM: Registration begins at the Park Entrance. 12 PM: Backyard cookout and short educational presentation at the North Grove Catering area. Educational Presentation: Stuck On You: K-tape Basics -…
Wheels for the World Bike Ride
On Sunday, July 30, we are partnering with Save One Life to host the 3rd Annual Wheels for the World NEHA Day! Riders are invited to join us on the oceanfront East Bay Bike Path for a 30-mile bike ride to raise funds for Save One Life and NEHA's Emergency Assistance Program. This Year's Ride The ride will begin and end at India Point Park in Providence, RI. The paved path is 15 miles in each direction, from Providence to…
August 2023
Women’s Retreat
Our 10th Annual Women's Retreat will be held from Friday, August 11 to Sunday, August 13, at the Stratton Mountain Resort in Stratton Mountain, VT This event brings together people who identify as female (ages 18+) with any type of a bleeding disorder, carriers, and caregivers living in New England. The weekend features educational sessions, social activities, health and wellness workshops, breakout sessions, and much more! Agenda Overview Attendees will check into their hotel rooms on Friday evening. Dinner will be…
NHF Bleeding Disorders Conference
The National Hemophilia Foundation (NHF) is hosting their 75th Annual Bleeding Disorders Conference (BDC) from Thursday, August 17 to Saturday, August 19 at the waterfront Gaylord National Resort & Convention Center in National Harbor, Maryland. This conference is packed full of educational sessions and opportunities to connect with others in the bleeding disorders community from around the country. NEHA offered a travel scholarship to help one family attend this event. Applications were accepted until Friday, April 7. To attend on…
Falmouth Road Race
For the sixth year in a row, NEHA has been selected as a non-profit partner of the ASICS Falmouth Road Race! Since our partnership began, Team NEHA's runners have raised over $20,000 to ensure New England families have continued access to programs and services like Family Camp and the Emergency Assistance Fund. About The Race The race will be held in-person, on Sunday, August 20, 2023 at Woods Hole in Falmouth, MA. This is a great opportunity for experienced runners…