During NEHA's Annual FallFest in 2019, Debbie de la Riva, founder of Mental Health Matters Too, provided an interactive keynote session about mental health. We are excited that Debbie will be offering this session for NEHA community members as a webinar on Wednesday, January 29 from 7 PM - 8 PM to discuss mental health issues in the bleeding disorders community, to help you recognize when someone is struggling psychologically, and to offer resources on where to turn for help.…

Join NEHA's Moms in Action and Blood Sisterhood for a Paint N' Sip educational dinner on Sunday, February 2 from 11:30 AM – 2:00 PM at the Muse Paintbar in Dedham, MA. All moms from the New England bleeding disorders community and women with a bleeding disorder are invited to attend. This event will include a painting session, dinner, and an educational presentation. Due to the size of Muse Paintbar, there are limited spots available. There is no cost to attend this event…

The Hemophilia Alliance of Maine (HAM) and the New England Hemophilia Association (NEHA) are excited to host Winter Camp at Camp Mechuwana in Winthrop, Maine from Friday, February 14 to Sunday, February 16. Winter Camp is a weekend of fun, engaging, and intergenerational outdoor programming that includes ice fishing and snow shoeing, sled dog rides, and lots of outdoor activities! Please note that registration will be open until Wednesday, January 15 at 5 PM.   Learn More and Register Here  …

NEHA will be holding our Newly Diagnosed Families Retreat at the Sheraton Springfield Monarch Place Hotel in Springfield, MA from Saturday, March 7 to Sunday, March 8. This retreat was created last year after new members of our community requested this type of retreat to meet and connect with other new families. The objective of the program is to: serve as touchpoint for families who have young children who were recently diagnosed and/or have children under the age of 6.…

We are excited to host our 4th Annual Consumer Medical Symposium at the Sheraton Hartford South Hotel in Rocky Hill, CT on Saturday, March 28. This event recognizes March as Bleeding Disorders Awareness Month by helping you understand what current and potential medical advancements (including gene therapy) may mean for you and your family. Information will be presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. Information will also be shared about current insurance barriers and trends,…

We were proud to recognize the 30th Annual World Hemophilia Day in 2020! This event will take place on Friday, April 17. This will include a free dinner and activities for the entire family. To learn more about World Hemophilia Day, click here! More information on this event will be released soon. Registration Will Open Soon

Our 2020 Couples' Retreat will be held at the beautiful Gurney's Newport Resort in Newport, RI from Saturday, April 18 to Sunday, April 19! This retreat includes a day and a half workshop led by professional facilitators. Attendees will also receive a complimentary hotel room on Saturday, April 18 and all meals on Saturday and Sunday morning are included! More information will be released soon. Registration Will Open February 28

After three extremely successful sold-out Best Bloody Mary competitions in Providence, RI the New England Hemophilia Association (NEHA) is excited to bring back this battle of the bartenders on Saturday, May 2 from 11 AM - 2 PM at the Roger Williams Park Casino! We are expecting this competition to sell out quickly. Tickets will include tasting of bloody marys with their own mix, spices, and garnishes whipped up by local bartenders! Bar names will be announced as they join the competition.…

For over six decades, advocacy has been the heartbeat of everything we do. As part of the New England Bleeding Disorders Advocacy Coalition (NEBDAC) initiative, we are excited to host our 4th Massachusetts Advocacy Days from Monday, May 11 at 5:30 PM to Tuesday, May 12 at 2:00 PM, for Massachusetts residents living with a bleeding disorder. Families with kids of all ages are strongly encouraged to attend. Hotel rooms are available for Monday evening to 2020 NEHA members who need them.  This event is an excellent…

The New England Hemophilia Association (NEHA) hosts an Annual Walk to bring together the community and supporters to raise funds for the bleeding disorders community. This year, we invite you to join us at Prowse Farm in Canton, MA on Saturday, June 13 for our 11th Annual Unite Walk! Last year, we broke a national record: Nearly 2,000 walkers raised an unbelievable total of over $450,000 for our community! This is the most money ever raised at a walk in the…