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May 2022
Family Camp Brick Campaign
Since 1992, NEHA has offered Family Camp to anyone with a bleeding disorder who receives care in one of the six New England states. This summer we are excited to celebrate the 30th anniversary of Family Camp! Over the last thirty years, more than 1,000 campers have rotated through this special program that features arts and crafts, wood shop, archery, games, waterfront visits, education sessions, self-infusion classes and more! For many, Family Camp is a place where life-long memories and…
June 2022
NEHA Board Advisory Council Meeting
Many community members have ideas and feedback to share throughout the year regarding programs, events, fundraisers, and more. But with the exception of post-event surveys and needs assessments, there was no formal way to share them. The NEHA Board Advisory Council was created as part of the Board of Director's five-year strategic plan to help address this problem. The Board Advisory Council allows community members to express feedback and discuss their ideas on a variety of topics. This information will…
Family Camp
Since 1992, NEHA has offered Family Camp to anyone with a bleeding disorder who receives care in one of the six New England states. Through Camp, we aim to accomplish two goals: increasing and enhancing self-infusion skills and building strong connections within our community.This summer will commemorate our 30th Annual Family Camp! Together, over the past thirty years, even during trying times and a global pandemic, we have never lost the magic of Camp. Watch this video to see what Family Camp…
July 2022
Family Day at Canobie Lake Park
Join us on Saturday, July 9 for a Family Fun Day at Canobie Lake Park! This will allow families to come together to connect in-person while enjoying a fun day at the park. Agenda 11:30 AM: Registration begins at the Park Entrance. 12 PM: Backyard Cookout Lunch at the North Grove Catering area. After lunch, you’ll be free to explore the park on your own. The park closes at 10 PM, but you may leave at any time you wish…
Von Willebrand Retreat
We are thrilled to announce our 5th Annual von Willebrand Retreat will be held on Saturday, July 23, at the Sheraton Springfield Monarch Place Hotel in Springfield, MA. This event is focused solely on families living with von Willebrand Disease (vWD). Developed with community feedback, this retreat is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a focused…
Wheels for the World Bike Ride
On Sunday, July 31, we are partnering with Save One Life to host the 2nd Annual Wheels for the World NEHA Day! Riders are invited to join us on the oceanfront East Bay Bike Path for a 30-mile bike ride to raise funds for Save One Life and NEHA's Emergency Assistance Program. This Year's Ride The ride will begin and end at India Point Park in Providence, RI. The paved path is 15 miles in each direction, from Providence to…
August 2022
BLeaders Teen Retreat
Our 7th Annual BLeaders Teen Retreat will be held from Monday, August 8 to Tuesday, August 9 at Alnoba in Kensington, New Hampshire. This overnight retreat offers teens: Life skills development activities Opportunities to expand leadership skills Bleeding disorders education, and more! A registered nurse will be in attendance as well as a NEHA staff member and additional adult community volunteers. The youth development aspects of this program will be led by experts in the field. A packing list will be…
Falmouth Road Race
For the fifth year in a row, NEHA has been selected as a non-profit partner of the ASICS Falmouth Road Race! Since our partnership began, Team NEHA has raised over $20,000 through this race! These funds ensure New England families have continued access to programs and services like Family Camp and the Emergency Assistance Fund. This year is the 50th Anniversary of the Falmouth Road Race and registration is officially open! This is a great opportunity for experienced runners who…
32nd Annual Golf Tournament
Our 32nd Annual Golf Tournament, Raffle and Silent Auction will be held in memory of Charles L. Doherty, Jr., at the beautiful Cyprian Keyes Golf Club in Boylston, MA on Monday, August 22, 2022. All proceeds from this event assist the New England Hemophilia Association (NEHA) to fulfill its mission by providing support, education, and advocacy to the bleeding disorder community. Participation Includes Breakfast and lunch, 18 holes of golf, a golf-cart, and a goodie bag. Each golfer that plays…
Women’s Retreat
About The Women's Retreat Our annual Women's Retreat will be held from Friday, August 26 to Sunday, August 28, at the Stoweflake Mountain Resort in Stowe, VT. This event brings together females (ages 18+) with any type of a bleeding disorder, carriers, and caregivers living in New England. The weekend features educational sessions, team building activities, health and wellness workshops, breakout sessions, and much more! Program Overview Attendees will check into their hotel rooms on Friday evening. Dinner will be…