Each year, we host a Walk to bring together the New England bleeding disorders community and supporters of the community to raise crucial funds for our programs and services. Last year, 1,600+ walkers & virtual walkers raised an incredible $340,000! This was our most successful and largest Walk to date. Your past dedication and support to this important fundraiser allows us to assist, advocate, and serve the New England bleeding disorders community! 100% of all individual donations raised go directly…

The application process for Family Camp 2019 has closed. If you wish to be added to the wishlist, please email Heather Case, NEHA Family Camp Director, at hcase@nehemophilia.org. About Family Camp Since 1992 we have offered a Family Camp program to anyone with a bleeding disorder who receives care in one of the six New England states. Now serving 77 families (300+ individuals) annually, Camp has earned support from many of the providers of our local Hemophilia Treatment Centers. Family Camp…

We are hosting our first annual Murder Mystery Dinner to bring together community members and supporters.  This event will offer engagement to the bleeding disorder community that will raise awareness and funds for the New England bleeding community.

Each year, we host a women's retreat that brings together 40 females (ages 13+) with any type of a bleeding disorder, carriers, and caregivers living in New England.  The weekend features educational keynote sessions from New England Hemophilia Treatment Center (HTC) physicians, nurses, social workers, health and wellness workshops, breakout sessions, and much more! We had over 40 women attend in 2018.

Building on the success of the Adventure Club and Junior Counselor programs at NEHA Family Camp, this two-day, 1 night program offers young adults with a bleeding disorder and their siblings (ages 13-19) an opportunity to expand their leadership skills, participate in educational activities designed specifically for teens that include: a high ropes course, skill development activities, campfire, group interaction, infusion sessions, etc. Attendance for our 2018 BLeaders teen retreat was 11 young adults.  We are at new location in…

Calling All Runners!   For the second year in a row, we have been selected as a non-profit partner to participate in the 45th Annual New Balance Falmouth Road Race on Sunday, August 18th. This beautiful seven–mile road race begins in Woods Hole and runs along scenic Cape Cod, ending at the beach in Falmouth Heights. This race sells out each year with more than 11,000 runners! We are fortunate to have five spots for Team NEHA. See the course map. Participants must commit…

Planning and preparations are underway for our 29th Annual Golf Tournament and Auction! The beautiful Cyprian Keyes Golf Club in Boylston, MA will once again host our event on Monday, September 9, 2019 from 8:30 AM – 3:00 PM.  Join us on the course as an individual, or, bring three family members or friends to make it a foursome! Your participation includes: breakfast and lunch, 18 holes of golf, a golf-cart, and a goodie bag. Each golfer that plays in the NEHA Tournament…

First Connections is a new NEHA program dedicated to families who are recently diagnosed and new to the community. The objective of the program is to * serve as touchpoint for families who have young children who were recently diagnosed * connect families to NEHA * share resources * provide tailored, smaller events specifically to meet the needs of newly diagnosed families. One aspect of the First Connections program in 2019 is a collaboration with PEP.  PEP stands for Parents…

Each year, NEHA is proud to offer programming specific to our Hispanic community. In 2018, nearly 60 individuals attended our annual Hispanic Heritage Month Event.  The conference is filled with educational opportunities for community members to learn and connect with others.  All educational sessions are presented in Spanish only. Our Annual Hispanic Heritage Month Event takes place on Saturday, September 28, 2019.  The entire event is in Spanish with multiple presentations and exhibits focused on our Spanish-speaking community. The event…

Educational Programing FallFest is a two-day event that provides educational programming for adults, teenagers (13-18 years old), youth (6–12 years old), and children (newborns–5 years old). Highlights include: Providers from New England Hemophilia Treatment Centers (HTCs) will give an important update about medical advancements NEHA's Annual Meeting 2019 volunteer awards A family friendly dinner  And much more! Keynote Speaker FallFest offically begins with check-in at 7:30 AM on Saturday, October 26th.  The keynote talk will be on Saturday, October 26th at…