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March 2023

Consumer Medical Symposium

March 25 @ 9:00 am - March 26 @ 11:30 am
Hartford Marriott Downtown, 200 Columbus Blvd Hartford, CT 06103 United States

Our Consumer Medical Symposium was held on Saturday, March 25 and Sunday, March 26 in Hartford, CT. This event was created to help you better understand what current and potential medical advancements are available to treat bleeding disorders and what they may mean for you and your family.  Agenda Overview Friday, March 24 (optional, unofficial kick-off to Consumer Medical Symposium). 6 PM: Welcome Reception Saturday, March 25 (breakfast, lunch and dinner will be provided).  8 AM: Registration & Breakfast 9 AM:…

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April 2023

Taco Cook-Off

April 2 @ 4:30 pm - 7:00 pm
Foodology Cooking School, 991 S. Main Street Plantsville, CT 06479 United States

On Sunday, April 2 at 4:30 PM, we are hosting a Taco Cook-Off at Foodology Cooking School in Plantsville, CT! With the help of a culinary expert, families will create a unique interpretation of both sweet and savory tacos for the judges before times run out! Our Taco Cook-Off will also be blended with an educational session, "Rebuilding the Body With Diet." This will help attendees understand the components of food to help balance not only a plate, but an…

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HFA Symposium

April 13 - April 16

The Hemophilia Federation of America (HFA) is heading to Orlando for what is shaping up to be their biggest and best Symposium yet! Join them for this year's conference from Thursday, April 13 to Sunday, April 16 at the Sea World Renaissance Hotel in Orlando, FL. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with the new and old friends from around the country. You won't…

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World Hemophilia Day Celebration

April 14 @ 6:00 pm - 8:30 pm
Le Méridien Boston Cambridge, 20 Sidney Street Cambridge, MA 02139 United States

In recognition of World Hemophilia Day, we are hosting a special celebration in Cambridge, MA! Wear something red and join us for a free dinner and family-friendly, hands-on activities (including team challenges) to help celebrate together as a community. Join us for the celebration on Friday, April 14 from 6 PM to 8:30 PM at Le Méridien Boston Cambridge in Cambridge, MA. Parking will be free (validated) for all attendees. Cambridge, MA (Boston) Friday, April 14 from 6 PM to…

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Men’s Retreat

April 21 @ 6:00 pm - April 23 @ 11:30 am
Stratton Mountain Resort, 5 Village Lodge Rd Stratton Mountain, VT 05155 United States

Based on your feedback, we are excited to host a Men's Retreat! Join us from Friday, April 21 to Sunday, April 23, at Stratton Mountain Resort in Vermont. The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more! Who Can Attend? Blood Brothers (people who identify as male, ages 18+, with any type of a bleeding disorder), or; Caregivers/parents (dads or grandfathers) of children with a bleeding disorder. Agenda Overview  Attendees will…

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May 2023

Von Willebrand Retreat

May 6 @ 9:00 am - 5:00 pm
Providence Marriott Downtown, 1 Orms St Providence, RI 02904 United States

Our 6th Annual von Willebrand Retreat will be held on Saturday, May 6, at the Providence Marriott Downtown in Providence, RI. The educational programming throughout the retreat will be led by Hemophilia Treatment Center (HTC) medical providers and will focus solely on von Willebrand Disease. This event is intended to provide community members living with vWD a chance to learn, network, and ask questions in a focused setting. Agenda Overview 8 AM: Registration and exhibit booths open. Breakfast will begin. 9…

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Fitness Challenge: Destination GO

May 24 - July 26

Being physically active is one key to managing a bleeding disorder. It also has many other benefits, like relieving stress, strengthening connections within the community, and improving general quality of life. Physical activity has been crucial during the pandemic: whether that was by going for socially distant walks, hiking locally, or using household objects as weights! To help encourage physical activity within our community, the New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are hosting…

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June 2023

Family Camp

June 28 - July 1
Geneva Point Conference Center, 108 Geneva Point Rd Moultonborough, NH 03254 United States

NEHA's 31st Annual Family Camp will be held from Wednesday, June 28 to Saturday, July 1 at Geneva Point Center on Lake Winnipesaukee in Moultonborough, New Hampshire.Since 1992, NEHA has offered Family Camp to anyone with a bleeding disorder who receives care in one of the six New England states. Through Camp, we aim to accomplish two goals: increasing and enhancing self-infusion skills and building strong connections within our community.For more than thirty years, even during a global pandemic, the purpose…

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July 2023

Family Day at Canobie Lake Park

July 15 @ 11:30 am - 10:00 pm
Canobie Lake Park, 85 N Policy Street Salem, NH 03079 United States

On Saturday, July 15, we are hosting a Family Fun Day at Canobie Lake Park! The goal of this event if to help families from the New England bleeding disorders community come together to connect in-person while enjoying a fun day at the park. Agenda Overview 11:30 AM: Registration begins at the Park Entrance. 12 PM: Backyard Cookout Lunch at the North Grove Catering area. After lunch, you’ll be free to explore the park on your own. The park closes…

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Wheels for the World Bike Ride

July 30 @ 9:00 am - 12:00 pm
East Bay Bike Path, India Point Park, 201 India St Providence, RI 02903 United States

On Sunday, July 30, we are partnering with Save One Life to host the 3rd Annual Wheels for the World NEHA Day! Riders are invited to join us on the oceanfront East Bay Bike Path for a 30-mile bike ride to raise funds for Save One Life and NEHA's Emergency Assistance Program. This Year's Ride The ride will begin and end at India Point Park in Providence, RI. The paved path is 15 miles in each direction, from Providence to…

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