We are happy to again partner with the Hemophilia Alliance of Maine (HAM) to host our annual Winter Camp from Friday, February 17 to Sunday, February 19 at Camp Mechuwana in Winthrop, Maine!  Winter Camp features a weekend full of engaging, intergenerational outdoor programming that includes ice fishing, snow shoeing, sled dog rides and more! About Winter Camp We will be staying in bunk-style, heated and insulated accommodations and all meals are included. Equipment will be provided, but you are welcome…

On Thursday, March 2 at 4:30 PM, Rhode Island Governor Dan McKee will be issuing a proclamation to recognize March as Bleeding Disorders Awareness Month in the Ocean State. Rhode Islanders with bleeding disorders and their families to attend the short ceremony at the Rhode Island State House. Arrive: Please arrive by 4:15 PM. Our group will meet insider, near the security checkpoint. Entrance: You must enter the building through the security checkpoint on Smith Street. Security: All visitors must go through a metal…

Join us for an educational dinner on Thursday, March 2 at 6 PM at Il Massimo in Dedham, MA. In addition to enjoying an incredible meal and dessert, attendees will also leave with a better understanding of hemostasis and the clotting cascade.  This educational program will review the clotting fundamentals, providing an understanding about hemostasis, the clotting cascade, and what happens when you have a bleed. Our speaker will discuss how factor behaves in the body, including the relationship between FVIII and von Willebrand…

Our 8th Annual BLeaders Teen Retreat will be held from Friday, March 3 to Sunday, March 5 at Alnoba in Kensington, New Hampshire. Teens will arrive on Friday evening and the retreat will end on Sunday afternoon. Agenda Overview  This weekend-long retreat offers teens life skills development activities, opportunities to expand leadership skills, bleeding disorders education, and more! A registered nurse will be in attendance as well as a NEHA staff member and additional adult community volunteers. The youth development aspects…

The National Hemophilia Foundation (NHF) is once again hosting Washington Days in-person, in Washington, D.C., from Wednesday, March 8 to Friday, March 10. This event is an excellent opportunity for you to share your story with your elected officials and their staff while also asking for them to support policies that are important to our community. Attendees will also learn how the legislative process works and meet other community members from across the country.  Scholarship Application Process Each year, the…

Our Consumer Medical Symposium will be held on Saturday, March 25 and Sunday, March 26 at the Hartford Marriott Downtown in Hartford, CT. An optional welcome reception will be held on Friday evening.  This event was created to help you better understand what current and potential medical advancements are available to treat bleeding disorders and what they may mean for you and your family.  Agenda Overview Friday, March 24 (optional, unofficial kick-off to Consumer Medical Symposium). 6 PM: Welcome Reception…

On Sunday, April 2 at 4:30 PM, we are hosting a Taco Cook-Off at Foodology Cooking School in Plantsville, CT! With the help of a culinary expert, families will create a unique interpretation of both sweet and savory tacos for the judges before times run out! Our Taco Cook-Off will also be blended with an educational session, "Rebuilding the Body With Diet." This will help attendees understand the components of food to help balance not only a plate, but an…

The Hemophilia Federation of America (HFA) is heading to Orlando for what is shaping up to be their biggest and best Symposium yet! Join them for this year's conference from Thursday, April 13 to Sunday, April 16 at the Sea World Renaissance Hotel in Orlando, FL. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with the new and old friends from around the country. You won't…

In recognition of World Hemophilia Day, we are hosting two special celebrations in New England! Wear something red and join us for a free dinner and family-friendly, hands-on activities (including team challenges) to help celebrate together as a community. Cambridge, MA (Boston) Friday, April 14 from 6 PM to 8:30 PM.   Le Méridien Boston Cambridge in Cambridge, MA. Parking will be free (validated) for all attendees. Register for Cambridge Rocky Hill, CT (Hartford) Friday, April 14 from 6 PM…

Based on your feedback, we are excited to host a Men's Retreat! Join us from Friday, April 21 to Sunday, April 23, at Stratton Mountain Resort in Vermont. The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more! Who Can Attend? Blood Brothers (people who identify as male, ages 18+, with any type of a bleeding disorder), or; Caregivers/parents (dads or grandfathers) of children with a bleeding disorder. Agenda Overview  Attendees will…