The New England Hemophilia Association (NEHA) will host a virtual Newly Diagnosed Families Retreat on Saturday, May 15 from 9 AM to 11:30 AM. This event was created to bring families together in a relaxed setting to ease the anxiety surrounding a bleeding disorder diagnosis and offer peer support from other families in similar situations. The retreat is intended for families with kids ages 10 and under who have been diagnosed with a bleeding disorder.   Agenda The Retreat will feature three…

Throughout our Webinar Wednesday Series, we will be hosting a live webinar on Wednesday evenings at 7 PM about various topics of interest and importance in our community. To watch one of our previous webinars, click here.   About This Webinar This webinar, "Bleeds: How to Recognize and Respond," will be held on Wednesday, May 19 at 7 PM.  In this talk, you will hear about different types of bleeds and their impact, how to recognize and respond to bleeds, and…

Join us on Friday, May 21 at 6:30 PM for a virtual board and brush night!The first part of the evening will feature a mom’s story about making sure your child has the accommodations they need at school to be successful. Afterward, attendees will create a farm-house inspired wood sign with an inspirational message, like the one seen here. Space is limited to the first 25 individuals who register. Please register by May 18 to allow time for shipping program…

We created Virtual Chats to allow our community members to stay connected during the pandemic.  Join us for our second Virtual Community Chat of the year on Sunday, May 23 at 4 PM. Chats are intended to give community members an opportunity to gather in small groups for informal conversation. When registering, please select your preferred breakout room: Adult Men (Blood Brothers) Adult Women (Blood Sisters) Moms (Moms in Action) Dads (Dads in Action) Newly Diagnosed Families If multiple people…

Sesión educativa: “Como estar preparados para una emergencia relacionada a nuestro trastorno de sangrado” y decoración de galletas de azúcar! Únete a nosotros el viernes 28 de mayo a las 6:30 pm. Emergencia – una ocasión repentina que requiere una respuesta rápida. -Diccionario Webster’s Deseamos nunca experimentar una emergencia con nuestro trastorno de sangrado, pero estar preparados nos puede proveer mejores resultados. ¿Prepararnos para una emergencia de este tipo significa que lo único que necesitamos es llevar puesto una pulsera…

The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, June 4 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here

After three extremely successful sold-out Best Bloody Mary competitions in Providence, RI, and one incredibly successful Virtual Bloody Mary Extravaganza last year, the New England Hemophilia Association (NEHA) is excited to host the 2021 Virtual Bloody Mary Extravaganza on Saturday, June 12!   About The Event This will be held over Zoom on Saturday, June 12 from 11 AM to 12 PM. Our host will be Kitty Litter: the self-proclaimed First Lady of the City of Providence. Using her skill as a…

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   Our 4th Annual von Willebrand’s Retreat will take place on Saturday, July 17. This event is focused solely on families living von Willebrand’s Disease (vWD). Developed with community feedback, this virtual event will be led by professional…

NEHA’s Staff and Board of Directors are closely monitoring the COVID-19 situation. As of right now, we hope to hold this event in-person, but, depending on the situation, this may be transitioned to a virtual event. More information will be announced soon.   About the BLeaders Teen Retreat Our 6th Annual BLeaders Teen Retreat will be held virtually on Monday, July 26 and Tuesday, July 27. This program will be open to all teens with a bleeding disorder (ages 13-18)…

We are partnering with Save One Life to host Wheels for the World NEHA Day on Sunday, August 1! Join Team NEHA on the East Bay Bike Path for a socially distant 30-mile bike ride to raise funds for Save One Life and NEHA's Emergency Assistance Program. COVID restrictions and guidelines will be strictly followed and riders will meet at India Point Park in Providence on Sunday, August 1 at 9 AM. The scenic and oceanfront bike path is roughly…