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July 2020

Virtual Chat: Moms & Women

July 7 @ 9:00 am - 10:00 am

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Tuesday, July 7 at 9 AM ET, we will host a Virtual Chat for moms and women with a bleeding disorder. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques to help us stay connected virtually. Register Here

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Consumer Medical Symposium

July 8 @ 7:00 pm - August 8 @ 7:00 pm
United States

This event was originally scheduled for Saturday, March 28, but is being moved to a virtual event.    This event helps consumers understand what current and potential medical advancements (including gene therapy) may mean for you and your family. Information will be presented about hemophilia A, hemophilia B, vWD, and other rare bleeding disorders. Information will also be shared about current insurance barriers and trends, as well as a forum about the psychosocial and emotional implications of change. Agenda Overview…

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Educational Webinar – The Shifting Paradigms of Hemophilia Treatment

July 8 @ 7:00 pm - 8:00 pm

This is the first event during our Virtual Consumer Medical Symposium. To learn more about this virtual series of events, please click here.   About This Webinar This webinar will be held on Wednesday, July 8 at 7 PM ET. This session will provide an overview of the current treatment landscape and where we are heading with emerging therapies. During this talk, the pros and cons of current and emerging therapies will be discussed, including standard and extended half-life factor…

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Virtual Chat: Dads in Action

July 9 @ 8:00 pm - 9:00 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Thursday, July 9 at 8 PM ET, we will host our next Virtual Chat for Dads in Action. All dads with a bleeding disorder, or dads that have children with a bleeding disorders are invited to grab their beverage of choice and join other dads for this chat. These informal conversations allow you to come together and chat about the challenging situation…

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Virtual Family Fitness Class

July 12 @ 10:00 am - 11:00 am

On Sunday, July 12 at 10 AM ET, we are hosting a Virtual Family Fitness Class to help you learn and practice exercises and stretches that can be done while inside your home. While many gyms and recreational areas are closed due to COVID-19, it is crucial that both children and adults living with a bleeding disorder continue to be active. To see what this class is like, watch a recording of our previous classes. Watch the videos here.   About…

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Educational Webinar – Looking Ahead: Treatment For vWD and Other Rare Bleeding Disorders

July 15 @ 7:00 pm - 8:00 pm

This is the second event during our Virtual Consumer Medical Symposium. To learn more about this virtual series of events, please click here.   About This Webinar This webinar will be held on Wednesday, July 15 at 7 PM ET. This session will offer an overview of current treatments and new therapies on the horizon for von Willebrand's Disease and other rare bleeding disorders. Presenter: Aric Parnes, MD, Brigham and Women’s Hospital   Register Here

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Virtual Chat: Blood Brotherhood

July 16 @ 8:00 pm - 9:00 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Thursday, July 16 at 8 PM, we will host a Blood Brotherhood Virtual Chat for men with a bleeding disorders ages 16 and over. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to share stories and coping techniques to help us stay connected virtually. Register Here

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Educational Webinar – Understanding Research: It Starts with a Zebrafish

July 22 @ 7:00 pm - 8:00 pm

This is the third event during our Virtual Consumer Medical Symposium. To learn more about this virtual series of events, please click here.   About This Webinar This webinar will be held on Wednesday, July 22 at 7 PM ET. This presentation will explain the importance of Zebrafish related to bleeding disorders treatment and will introduce you to the Judith Graham Pool Research Fellowship. In 2019, NEHA made a large financial contribution to support this program and the great work it…

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Interactive Live Sessions

July 25 @ 9:00 am - 11:30 am
United States

This is the fourth event during our Virtual Consumer Medical Symposium. To learn more about this virtual series of events, please click here.   About This Session This live session will be held on Saturday, July 25 from 9 AM to 11:30 AM and will include breakout sessions to help you understand more about health insurance, and the psychosocial impact of processing changes. Following these sessions, participants will be able to attend two industry breakout sessions where they can enjoy…

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Virtual Chat: Families

July 28 @ 8:30 pm - 9:30 pm

We created Virtual Chats to allow our community members to stay connected during this public health emergency. On Tuesday, July 28 at 8:30 PM, we will host our next Virtual Chat for Families in our community. From distance learning, to preparing multiple meals and finding time for your own work and self-care, many parents are feeling overextended. These informal conversations allow you to come together and chat about the challenging situation we are all going through. Attendees are encouraged to…

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